Mar 27, 2013 - 11:55 pm
Three years out...we just got a second reading on her latest CT scan. Everything stable, with some shrinkage or disappearance. Blood biomarkers mostly back in the low end, slight rise in liver values. However she's gained a lot of weight this past year, too much eating out and comfort food combined with less exercise after a knee injury.
The original scope of her mets emerged slowly - the things in the lungs and in liver are spoken of more presumptively now, although they have not been biopsied. Some have virtually disappeared. The peritoneal seeding after removal of necrosed tumors from the mesentery almost 3 years ago has not re-emerged (per radiologists and surgeons' relieved, even enthusiastic comments). No additional para aortic lymph nodes have surfaced anywhere since the conglomerated PALN cluster was removed 22+ months ago.
Our journey has been quite different, welding diverse treatment regimens of Japanese chemo R&D, generic drugs, diet and supplements together. Treated at home, she goes out or with friends as she pleases. We are done debating outside opinions. She only talks to the surgeons, me and the alternative MD, we also get her radiology and lab reports directly. We are seldom bothered with the insurance, too small and restrictive, maybe 1-2x per year. Her regimen is adjusted based on research and blood testing. We recently, finally, added a generic like Celebrex to help keep the biomarkers down.
The most notable thing about my wife is that she is never sick, chemo, surgery or cancer wise. She takes a **lot** of specifically chosen, targeted supplements throughout the day, as well as her generic chemo meds. She doesn't go out for chemo, a small box of UFT is delivered monthly at home and a slender pack of leucovorin tablets. There are no meds for the usual nausea-dirrhea-stomatitis-blood-etc problems. The only emergency trip anywhere was after the first surgery, when she cut out of the hospital two days early, and went to the mall. Another notable is that she should hit the 500 mark on IV vitamin C at the end of the summer.
We are a curiosity to some. For example, recently her personal blood tech asked her about vitamin D injections (she doesn't, just high strength oral). It's been 18 months since she pegged out the reading of their automatic analyzer (it doesn't have a special dilution feature) so we don't get serum levels of vit D there anymore. Perhaps they are still watching and puzzling over her blood levels.
Our one slow motion debate is chemo forever vs more surgery pre-emptively.