Mar 23, 2013 - 2:44 am
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The Pet Scan showed a little progression of the cancer rather than a reduction after the 2 inpatient R-ICE treatments. I have a very aggressive lymphoma that is persistent and tenacious, and not responding to treatment the way we need it to for me to get better. I told my doc that after all it is made up of my mutated cells, so it’s got a bit of my strength. He laughed. I will continue to stay strong, while we figure out what chemo mix the cancer will respond to. Now the Stanford docs want me to do the more intensive bone marrow transplant that requires a donor. They want me to have a new immune system. I don’t fully understand the why, but will continue to ask questions. While I’m facing a little setback, with more intense treatment, I am determined to get through this. I am more determined, more persistent, more tenacious, and stronger than the cancer and I will kick it to the curb. It’s just taking longer than I would like. But I can do it. I have received incredible love and support from my amazing community, my friends, and my family. This will give me the additional strength I need to get through this.
I am back in the hospital for additional higher dose chemo. Now it's R-DHAP. I'll get 2 or 3 of these, and then another scan. I also get a blood transfusion as my counts are very low.
I vascillate between fear, anger, and hope. The progression of the cancer after all the treatment is very scary. And I'm pissed that the cancer won't go away. But I know there are other treatments, and we just need to find the right one. It sucks, but I'll get through it.
Reading everyone elses experiences here gives me hope. Many of us experience setbacks, and win in the end. And your support and prayers help too!
love and hugs,