CSN Login
Members Online: 20

Three Years NED

Tethys41's picture
Posts: 1057
Joined: Sep 2010

It has been over three years since I received the glorious news that I was NED.  I’m certain it came as a shock to my gyn/onc, who, after my suboptimal debulking from a very aggressive cancer, said I would never achieve remission and would not last a year.  I think he wasn’t far from wrong.  The time of treatment was an endless struggle for me, having 20 gallons (80 liters) of ascites drained over the 2 months following surgery, enduring chemo that literally incapacitated me for 8 months, and relying on IV nutrition for 3 months, in order to prevent me from  dying of malnutrition. 

Since then, I’ve learned that, genetically, my body is a train wreck.  I don’t have the ability to produce or use glutathione, an essential antioxidant; I am predisposed to inflammation, autoimmunity, and sugar metabolism issues; and my body loves to produce VEGF – the factor that Avastin blocks. 

There’s no question, I was a sitting duck for a fast and furious recurrence.  But the same source that revealed my genetic predisposition to cancer, my naturopath, has guided me down a path that is keeping me NED.  All of the markers she looks at, many, many more than just the CA-125 or HE4, say that my body isn’t even thinking of allowing cancer growth.  And I feel amazing, way better than I felt for years prior to my diagnosis.

I can’t tell you what a gift and a blessing it is to have my life back, after the difficult journey I had with cancer.  I wish everyone here successful treatment and eternal NED.  I know it can be achieved, even if the cards are stacked against you.

poopergirl14052's picture
Posts: 1185
Joined: Nov 2010

Congratulations on your three year anniversary of being NED!  I am so happy for you..keep up the good work you do to take care of yourself. Stay strong...Val 


Alexandra's picture
Posts: 1310
Joined: Jul 2012

3+ years NED and going strong despite all odds and statistics. Your story is an inspiration to us all.

I feel ashamed to whine about 5 liters of ascites tapped compared to 80.

Your posts about alternative treatments are always so interesting and helpful.

Best of luck to you,

lovesanimals's picture
Posts: 1343
Joined: Sep 2011

I don't have the words to express how happy I am for you.  Your story is incredible and gives us all hope.  I am in awe over your strength and determination and I hope you remain NED forever. 


lulu1010's picture
Posts: 367
Joined: Feb 2011

So happy for you! You are an inspiration to us all!

seatown's picture
Posts: 266
Joined: Sep 2012

You are an inspiration to us all!

JulieL's picture
Posts: 141
Joined: Jan 2012

Thank you so much Tethys for your encouraging post.   Wonderful to have achieved 3 years NED after such a battle!  I too always enjoy your posts about taking charge of our bodies.  You have inspired me to change my diet and attend a naturopath and since I have my bloods have been so much better and I have been feeling so much better.  Though I am not yet NED everybody I see who knows what I am battling says how great and healthy I look.   So very thrilled for you and keep up the good work.

2timothy1 7's picture
2timothy1 7
Posts: 345
Joined: Jan 2012

Congratulations! Always glad to hear from you.

Cafewoman53's picture
Posts: 742
Joined: Jul 2010

I am so happy for you! It is so nice to hear about women who are successful in beating this disease, you rock!


Posts: 1961
Joined: May 2003

What an inspirational testimony you are!  Thank you for sharing!



His grace
Posts: 23
Joined: Mar 2013

Thank you for sharing your story.  I am so so so happy for you.  I was just diagnosed and had my first chemo treatment last week.  You are an inspiration to me.  : )

Subscribe with RSS
About Cancer Society

The content on this site is for informational purposes only. It is not a substitute for professional medical advice. Do not use this information to diagnose or treat a health problem or disease without consulting with a qualified healthcare provider. Please consult your healthcare provider with any questions or concerns you may have regarding your condition. Use of this online service is subject to the disclaimer and the terms and conditions.

Copyright 2000-2015 © Cancer Survivors Network