Mar 12, 2013 - 5:57 pm
So.... one year ago I had a double mastectomy for Secretory Carcinoma of the breast. This is a rare BC accounting for less than 1% of ALL breast cancers! It is often missed on mammograms and was found when I had a follow-up PET scan for Anal Cancer (diagnosed and treated just 1yr prior). A while back I registered with NCCN just to become more familiar with treatment guidelines and follow-up care for the AC. I am having a difficult time finding any info on protocal follow-up, ex. scans, x-rays, etc. for my BC. I did not receive chemo or rad for the BC but did both along with a colostomy for the AC. I am taking Anastrozole (Arimidex), and Alondronate, along with iron, calcium, and Vit.D. I trust my doctor, and feel great, just like to know what "standards" are and kind of make sure I am having everything I am supposed to. It is difficult to even find any info on "Secretory Carcinoma" in specific, so anything you have would be appreciated.