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Anal Cancer Color Survey

mxperry220
Posts: 369
Joined: Mar 2011

Below are the anal cancer color survery results I received from The HPV and anal Cancer Foundation.

==============================================================

Dear Mike,

We are excited to announce that purple and green won the anal cancer ribbon vote!

It was a close call. The final tallies are:

Purple and Green 46%
Purple and Light Blue 44%
Green and Light Blue 10%

 

Thank you for your participation in this historic event -- and for getting your friends and family to vote! We also want to thank the Farrah Fawcett Foundation for their partnership in this initiative.

Anal cancer patients continue to face an uphill climb towards equitable awareness, support, and funding for new treatments. We hope that these colors will serve as just one way to tell the people around you about anal cancer. Please continue sharing your stories to increase awareness of the disease and early diagnosis.

Thrive On!

Justine Almada
Co-Founder

P.S. The Centers for Disease Control and Prevention (CDC) held a forum on the importance of HPV vaccination in February. During the forum they noted the rise of anal cancer and other HPV-related cancers, the safety of the HPV vaccine, and the importance of providers in helping parents and patients to understand the benefits of the HPV vaccine. We are glad the CDC is highlighting the importance of preventing HPV-associated cancers. A video of the forum is accessible here: http://www.cdc.gov/features/grandrounds/.

NYinTX's picture
NYinTX
Posts: 64
Joined: Feb 2013

so how does this impact us?

mp327's picture
mp327
Posts: 3120
Joined: Jan 2010

IMO, not one bit.  I am not into the ribbon thing.

mxperry220
Posts: 369
Joined: Mar 2011

I do not know about your question as to how it impacts us.  From my perspective this could bring more of an awareness to us anal cancer survivors as the color pink has for breast cancer survivors.   Personally I do not plan on attaching any ribbons on my vehicle.

Mike

Angela_K
Posts: 374
Joined: Jan 2011

on my ass. :)

Lorikat's picture
Lorikat
Posts: 566
Joined: Jul 2011

Hummmmmm...  A rear end tattooed ribbon of purple and green....  Only thing is I'm scared of needles!!

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Lorikat
Posts: 566
Joined: Jul 2011

Had a cancer ribbon butterfly tribut to ALL cancers tattooed on my foot today....  I don't know how to put up a picture but will try to get helptomorrow.   My kids are in a state of shock!  Mom with a tatoo.....  Lorie

Angela_K
Posts: 374
Joined: Jan 2011

I got my first tattoo last December with my best Austin friend who is treatment for recurring lymphoma and bone cancer. My tat is on the back of my neck and simply states 'sing.'  My husband has yet to see it and my kids think I've lost my mind.  Jenny got her first tat on her foot and she said it hurt like crazy.  Your tat sounds sooo cool.  Must send me a pic . . .2half@wcc.net.  I'm leaving this Board. Please keep in touch!

 

mp327's picture
mp327
Posts: 3120
Joined: Jan 2010

I'm sorry to hear that you are leaving us here!  Please keep in touch with me--you know where to find me!

Lorikat's picture
Lorikat
Posts: 566
Joined: Jul 2011

Angela, tried to email you.  Did you receive it?  Lorie

 

RoseC's picture
RoseC
Posts: 513
Joined: Jun 2011

Thanks for the information. While I don't expect to see purple and green ribbons in the stores or anything, I'm kinda glad we have a ribbon. (And I like the color combination.)

Marynb
Posts: 1134
Joined: Aug 2012

I am thinking that maybe the ribbon can be used to help raise awareness. I think that corporations should be approached for sponsorhip. Products like Preparation H and all toilet paper products should have the ribbon in plain sight on the packaging with an explanation of the symptoms of anal cancer. So many of us used Prep H like products for years before being diagnosed, that I believe they have a corporate responsibility to contribute substantial funds for research and should have clear language on their products alerting users of anal cancer symptoms. I am not sure what organizations exist to raise awareness of anal cancer, but frankly, if there is a strategy, it is not working. So, the ribbon colors are something corporations can use on their packaging to show their commitment to social responsibility. It could be of help in catching this disease earlier.

Phoebesnow
Posts: 453
Joined: Apr 2011

What a great idea Mary.  R u in marketing?

Marynb
Posts: 1134
Joined: Aug 2012

No....not in marketing. I am a lawyer, presently looking for less stressful work.

shirlann54
Posts: 161
Joined: Aug 2011

That would be a good thing to do.To make people aware  of anal cancer.

Marynb
Posts: 1134
Joined: Aug 2012

Yes, it would. I would like to see public service announcements on tv, social media, etc.

Angela_K
Posts: 374
Joined: Jan 2011

and done well in the UK.

Behind Cancer    Behind Cancer Campaign UK

There is a calendar for sale in the UK.  It seems that they are more active in this effort than in the US. I feel that it has to be a grassroots movement, starting with us, the survivors, who must find our voices and rid ourselves of the shame that so many of us carry.  We have to say it - anal cancer - and acknowledge it and own it. It starts with us.

We need to become involved with the HPV and Anal Cancer Foundation.  From what I know, the Farrah Fawcett Foundation is not focused on anal cancer awareness and prevention.

 

 

censation
Posts: 16
Joined: Jun 2010

It gives me great joy to hear we are finally getting an anal cancer ribbon I for one needed this after the pain I went through I deserved a ribbon

and I for one was glad and honored to start a petiion for a ribbon after my diagnosis and with the help of HPV and Anal Cancer Foundation and Farrah

Fawcett Foundation this day has finally come let's show our butts and let them no we are hear this is a good day.

 

LaCh
Posts: 537
Joined: Dec 2012

I personally don't care or think about ribbons, colors of ribbons or incorporating ribbons or this experience as a part of my identity any more than I identify as someone who had measels, mumps, chicken pox and all of that.  I had a bad skiiing accident 24 years ago and three knee operations as a result. But I'm not that experience either. I'm just not my experiences. Anal cancer (for me) was a problem that I had to address (just as I'd have to address a flat tire on my car if I got one, only with stakes that were higher). I addressed it and I'm ready to move on, and I do mean move on, which, for me means not identifying as someone who had cancer any more than I identify with any other of my life experiences. That's just my take but I respect others' and know that what "works" for me might not "work" for the next person. Maybe I should be more involved or, I dunno, aware of what I had and what it means...except that I don't think it means anything, except that I had it.  And now I assume that I don't and am ready to move on to the next thing.  That said, I do think that I might try to do some volunteer work at Sloan Kettering. They require that you wait a year post treatment, but while I don't identify as "Hi, I'm so-and-so and I had cancer," it does give me some street cred, and if that's meaningful to a volunteer department or, more importantly, to someone experiencing cancer, then so be it.   

mxperry220
Posts: 369
Joined: Mar 2011

Had you had anal cancer a few years ago you might have a little different attitude.   The ribbon thing is about awareness which can promote more attention/money directed toward research to one day have a cure for this disease. Your incident of a skiing accident 24 years ago cannot even begin to compare to this awful cancer. 

Mike 

Marynb
Posts: 1134
Joined: Aug 2012

I understand what you are saying, but there is a big difference between cancer and broken bones, or car accidents. Once you have had cancer, you never really know if it is gone. There is a high success rate for anal cancer, but as you have said many times, the treatments now available are rather rudimentary and with more research a better cure is surely in the future. Research requires money from private sources. In order to raise money, corporatons like to have a visible symbol to show their financial commitment. It is just the way it is. A color helps with this.

I have a cancer that is so rare that they use a zebra as their symbol. This symbolizes the fact that this cancer is often diagnosed too late because the symptoms are often mistaken for more common illnesses. When doctors hear hoofbeats they think horses, not zebras. This is why raising awareness is so important. I have had two cancers. I don't live to fight cancer, I fight cancer to live! We are not our cancers! Cancer may take my life....but not a day before I die!

LaCh
Posts: 537
Joined: Dec 2012

My point was that I don't identify with my injuries or diseases.

Marynb
Posts: 1134
Joined: Aug 2012

I got your point. I don't think anybody identifies with their disease. By the way, how are you feeling these days? Seems the good weather is on its way! I hope each day gets a little bit better than the day before!

LaCh
Posts: 537
Joined: Dec 2012

Thanks Marynb. You know, I'm feeling ok. My main issue right now is the fatigue but that seems a tad better. I'm having accupuncture to treat it and it seems to help. The thing is that the fatigue comes and goes and there's never a reason that I can identify for either. It seems to be independent of what I do (or don't do) but as I said, it seems a bit better.  The weather here is cold, 30 degrees when I woke up and 40 right now, overcast, grey...  But it's heading in the right direction. They're predicting rain for almost the entire week next week, but nexrt week is the official arrival of spring, and mentally, that's very  welcome. My goal is to be able to take my dog to Central Park when the cherry trees are in bloom.  The other "issue" isn't really an issue but a return to my normal state of being; I have a slow gut, slow digestion, I've had it for a long while. So it was almost a welcome change when I was "going" 4 or 5 times a day. Now I always feel full and bloated and I'm back to my normal once a day (or maybe twice).  My diet isn't normal but close to what it used to be, but I've always eaten a pretty healthy diet.  So that's not new. I'm just re-introducing foods a little at a time. Thanks for asking.  How are you doing? 

Marynb
Posts: 1134
Joined: Aug 2012

I am glad you are on the road to recovery. This is the first year that my daughter is no longer living in NY so If I see the cherry trees it will be on a leisure weekend. I am very much looking forward to Spring this year!

I am doing better also. I had a couple of bad weeks, but I am feeling more positive this week. My challenge is to keep the faith despite never ending trips to the doctors.

Life, with all its ups and downs, is good!

LaCh
Posts: 537
Joined: Dec 2012

Yes, I really feel for you.  I avoid doctors whenever I can and get depressed if I even have to think of going to see one. It's difficult to have to go over and over and over and.... 

And yes, life, despite all its vicissitudes, or maybe because of them, is good.  I know that conventional thinking (eastern, western, practical and esoteric) is to live in the moment, but when I'm in a difficult situation I mentally leave it and go somewhere else.  It's been a long, dark winter. Think of spring that's just around the corner or whatever else carries you to happy places.

eihtak
Posts: 887
Joined: Oct 2011

After my husbands bone marrow transplant as I was also recovering from anal cancer treatment, I took a "yoga for cancer recovery" class at Froedtert Hospital in Milwaukee. One of the first exercises was to meditate on a "happy place". I found myself going there ALL the time, think I should have bought a house!

LaCh
Posts: 537
Joined: Dec 2012

whatever keeps one happy and grounded.  That's the rule: no rules. Stay present or fly away, whichever best serves.

Marynb
Posts: 1134
Joined: Aug 2012

Oh, I do fly away! I am blessed to have had so many, many happy moments in my life in so many beautiful places! I have a great visual memory and when I close my eyes, I can bring myself back to those places in time, like they were photographs in an album. I used it a lot during radiation. I also escape pain that way. I find myself flying away a lot these days!

eihtak
Posts: 887
Joined: Oct 2011

The minds eye is a wonderful thing. I think that even if my body should ever fail me I could survive in my "minds eye". I too feel like I have my life recorded in happy photos in my mind, funny how in time many of the unpleasant photos seem to fade.

pializ
Posts: 308
Joined: Nov 2012

For me, the ribbon is about raising awareness and preventing people getting past stage 1 or 2 of this cancer. How many of us were previously mistakenly diagnosed with haemorroids? So I think a poster (with ribbon) on the back of toilet doors and on haemorroid treatment packs would be a good place to start. That along with HPV vaccination for males & females, should kick this cancer in the butt.

mp327's picture
mp327
Posts: 3120
Joined: Jan 2010

I really like your idea of putting a poster in restroom stall doors to bring awareness to anal cancer.  Have you thought of contacting the Anal Cancer Foundation with that idea?  www.analcancerfoundation.org

 

Marynb
Posts: 1134
Joined: Aug 2012

Martha, about a year ago, I sent an email to that foundation with sone ideas. I got an email back asking me if I had any proof that Prep H CAUSED anal cancer. What the heck??? I don't know what their mission is, but raising awareness doesn't seem to be one of their goals. Otherwise, they would have done it by now.

mp327's picture
mp327
Posts: 3120
Joined: Jan 2010

I'm sorry to hear of this.  I would guess, regarding the Prep H comment from them, it had something to do with possible legal issues, but that's just my laymen's guess.  I haven't visited their site in quite awhile, so I don't know what they are up to these days.  I guess I should take a look.

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