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8 years stage four, NED

levensweg
Posts: 55
Joined: Jul 2006

 It's been 8 years since I was d'xed with stage four cc, mets to the liver. I'm still NED. This board helped me get through so much. I was on it morning day and night. I'm so glad it is still here, and that people still reach out to eachother. My thoughts and positive energy go out to everyone who needs it on this board.

 

-R

 

 

Momof2plusteentwins's picture
Momof2plusteentwins
Posts: 467
Joined: May 2012

Congrats on 8 years! It's always great to hear good news!
Sandy :)

Trubrit's picture
Trubrit
Posts: 1630
Joined: Jan 2013

You give hope to many here who are just newly diagnosed (or a loved one) stage 4. You know how shocking it is to get that diagnosis, and now you can share the joy of being 8 years NED.

So very glad that you have posted. 

Varmint5's picture
Varmint5
Posts: 384
Joined: Feb 2012

Thank you so much for posting your update. That's wonderful. My daughter was diagnosed at age 32 with a 7 week old baby, her first. Stage IV, numerous liver mets. She is doing very well 1.5 years later - she was very sick then. Like you, she was extremely anemic and had to have quite a few blood transfusions right after being diagnosed. This was at the same time as she was discharged by her OB-Gyn with a "clean bill of health" even though she had a massive blood clot in her leg that they knew about, had lost weight the last two months of the pregnancy, diarrhea, etc. I need to hear stories like yours and some of the others to know this can happen. Thank you so much.

Sandy

janderson1964's picture
janderson1964
Posts: 1784
Joined: Oct 2011

Thank you for taking the time to post. We all need a story like yours for inspiration.

swimmer22
Posts: 53
Joined: Oct 2011

Great news for you!  I am 18 months out NED from a Stage IV diagonisis in December 2010. I have my next scan this coming Monday and praying for continued success.  Your post was inspiring! 

Chelsea71
Posts: 1170
Joined: Sep 2012

Congratulations. Eight years is wonderful. Thank you for sharing.

Chelsea

Doreen65
Posts: 46
Joined: Aug 2005

Congratulations on your eight years.... I too was diagnosed at age 38 with stage 4... Had liver mets as well.  It's been 9 years for me... I wonder if anyone I used to talk to is still on here.  

Trubrit's picture
Trubrit
Posts: 1630
Joined: Jan 2013

What a wonderful thread this is.

So many good stage 4 reports. 

Congrats on your nine years, Doreen. 

Doreen65
Posts: 46
Joined: Aug 2005

Trying to remember some people on here Stacey, Spongebob......

StacyGleaso's picture
StacyGleaso
Posts: 1246
Joined: Mar 2003

Lots of us are still here....and also lots are gone.  I just celebrated 11 yrs clear in January.  Doctor even called me cured, but I still don't stop looking for the other proverbial shoe to drop.  Stage 4 with liver mets, diagnosed at age 33.  I don't hang here too often becaue it's a whole new group of people.  That is both good and bad.  Good that support is still strong for those in the fight, but bad because people are still fighting this crazy disease.  Scouty, Lisa Perrin, Suzanne, Emily, Ron(50), Debbie, Joann, Katie and Spongebob are all still around.  My bffs Kerry, Bud, Jerseysue, Jana, Mark (Limey) still leave a huge hole in my heart...

PatchAdams
Posts: 272
Joined: Nov 2011

Thank you so much for this today.  We all need to hear good news as often as possible! 

YoVita's picture
YoVita
Posts: 562
Joined: Mar 2010

and sharing your continued good news.    

jasminsaba
Posts: 149
Joined: Jul 2011

for sharing your story of hope and encouragement ... congratulations on 8 years of NED.

jasminsaba
Posts: 149
Joined: Jul 2011

for sharing your story of hope and encouragement ... congratulations on 8 years of NED.

gizzyluv's picture
gizzyluv
Posts: 144
Joined: Feb 2013

That is SO wonderful! My husband Jason was diagnosed w/ stage 4 w/ 1 met to his liver & also peritoneal involvement the last of January. They did surgery but once in they discovered that the tumor was actually much larger than they thought so they closed him back up & he is doing chemo now, in hopes of shrinking the tumor enough to remove it. Stories like yours are the reason I joined this site....just proves there IS hope!

tabbyfatgirl1's picture
tabbyfatgirl1
Posts: 17
Joined: Nov 2011

Thank you for your post.  It gives me hope that my husband CAN survive this!

witt_31
Posts: 1
Joined: Sep 2012

Just want to say thank you to all for sharing their stories.  Each day is a blessing and I hope my husband can be around to share his story years from now and encourage others.  Thanks again and wishing all of you the best.

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