Mar 04, 2013 - 9:42 pm
In Sept of 2012, I was diagnosed after a heart attack that I had a tumor in my pulmonary artery. I had never heard of Sarcoma before that. I've heard it's one of the rarest forms of Sarcoma with only about 200 reported live cases. This is usually found post mortem. At age 35, the wife and mother to two beautiful kids, I have been shaken to my core. I'm told prognosis is not good based on the 200 cases. We don't really know about my case yet. I've had 4 rounds of intense chemo (5 day stays at Emory) and I have two weeks of 7 total weeks left of radiation. I was told the chemo probably did not do anything...no shrinkage to the tumor, but at least no growth either!! Very hopeful the radiation does the trick. I will have my next test in about a month.
I know because this is so rare that it may be hard for me to find anyone who has this....ANYONE?