Mar 03, 2013 - 3:42 pm
I am a 40 year old woman who is new to this site and I sincerely appreciate any feedback. In 2010 I had an abdominal ultrasound, as a requirement for the Lap Band procedure (later decided against the surgery). 3 months after the procedure, I received a letter stating that they found a suspicious mass on my left kidney & suggested that I see my regular Dr. So, I went to my Dr and he stated they found a 2.6 cm solid mass on my left kidney & wanted an MRI to confirm. Needless to say, my world was devastated. A little history...I lost 3 family members to pancreatic cancer, 1 to lung cancer, 1 to bone cancer and this is all from my mothers side. Cancer does not run on my biological fathers side (don't know much about this side) but I do know he had a kidney removed in the 60's, before he met my mother. I have asked my fathers side of the family if anyone knew why it was removed but no one knows. He died in 2009 from complications of congested heart failure. My labs (creatinine, GFR & BUN) have always been normal. I have never had pain or any health issues other than being a type 2 diabetic (well controlled with diet, activity & metformin). My Dr referred me to a Urologist who explained to me the necessity of a partial nephrectomy with assistance of the Divinci Robot. He was confident that the mass resembled RCC. I explained to him that I never once felt that I had RCC and I fought it every step of the way (STILL DO =0). I had another MRI done right before my pre-op appt and I heard the Dr talking outside my door. I heard him telling another Dr that he has never seen anything like this. He comes into my room then asks me to follow him to his computer. He showed me the actual MRI film and asked what I saw (I have been in the medical field for over 20 years & I was a recent LVN graduate). I told him that the mass was indeed solid but perfect in shape. It didn't look ugly or have what I know to be, cancer characteristics. The Urologist said that he didn't feel that I needed the surgery ASAP & we agreed to wait 6 months to do a repeat CT scan. 6 months later I had the CT scan and the mass was the same size 2.6cm. Shortly after this, my insurance benefits ran out. Fast forward 1 1/2 years later & I got sick with diverticulitis. I was in the hospital for 3 days cause of the mass but at the time I didn't know. Not once did a Dr talk to me about it & I was in so much pain that I wasn't thinking. After I went home, I went back to the hospital for a copy of my medical records. I saw that the mass grew to 4.4cm with no mestasis, not doing anything but growing then sitting there & sometimes not even growing. This was a county facility and they never mentioned doing surgery or anything about it. Now that I do have insurance & a Urologist, he has recommended a total removal of my left kidney. He has said that he does feel that I have RCC (according to his experience) and feels positive of my outcome. We are hoping to do the surgery 5/2013. Now that I feel that I have said it all =0), I would appreciate any words of advice. Yes, I am a working nurse (also in school pursuing my RN) but this is not my field of expertise. I have my moments of saddness but mostly I have feelings of fear for my future. I feel this isn't RCC but something in which has to do with my biological father. I have done so much research & honestly, this is the absolute BEST resource out there for support.
Thank you & may god bless all of us. Keep the hope, keep the faith & always keep the dream alive.