Feb 16, 2013 - 7:31 pm
Having had stage iv PCa- Devinci surgery, radiation and hormone shots- Eligard- has not made me an expert.
What advice I share is only observations from my own experience. I picked up a few medical terms along the way, but really, from my lone prospective I know very little.
I do know I did not feel comfortable with the first urologist who did my biopsy so I went to another. That doctor turned my over to his PA and I never saw that doctor again. I did not like the PA so I left that office for a 3rd urologist who I liked. He told me statisticly there was no evidence that 2 yrs of hormone therapy was any more effective than 1 yr and recommended 1 yr was enough. I had a terrible expereince on Eligard and I was delighted to discontinue the Eligard. Others have had less severe effects from Eligard. Having the right doctor is important.
I just wanted to make a statement that PCa has greatly impacted my life and after all is said, I know very little about PCa. What works for one of us aflicted with this cancer may not work for another. I think the most important decision you can make is to have a doctor and doctor's office you had confidence in for wahtever reason makes sense to you.
Sexual function is important to all men. Again, who can say what will happen in your case. It seems a lot of men have normal function after surgery, some men, no matter what they try, will never have an erection again.
Having watched end stage PCa up close I know I never want that end for myself. That fear is real enough. I have never been in battle and had someone shooting at me, but I sometimes wonder if the fear at first is maybe similar. that is just my thought on what I have gone through so far.
So what is the point of this post? Just to say publicly that I can share a similar experience with other men going through this and tell what I have expereinced that may help someone keep his feet on more stable sand, but I know very little after that.
I am in the group that has at best a 50/50 chance of recurrance in the first 5 yrs after treatment.
This April and May I will be out hiking/backpacking the Continental Divide Trail in New Mexico- 650+ miles. This is one of the items on my bucket list. If you lose one part of your life, this is my view, replace what is lost with something else.
And I do find comfort in Jesus and faith in Him.