Feb 16, 2013 - 1:26 am
Hello everyone !
I'm doing pretty well after that surgery in December. Still having issues with the lungs, but no more surgeries. (ever...wouldn't make sense) I am completely off of the 02, but get weak very easily doing every day activities. I remember I could shower, dress and be off to work at 4:30 a.m. in 20 mins. Wow are those days missed ! But it's all good, I'm excepting my limitations and continuing life. I did send the information out to get that tumor profile done. Once they receive the tissue it takes 3 weeks to get results back. I was told that this may or may not help me with future tx's because of the rareness of my disease. But I guess it's not even why I'm doing it. As most of you know, our family is one of those that was unlucky in the draw with cancer. (as other's as I'm reading on site) I think it's very important to track not only with current prodical, but with any and all other resources available. We are thinking if possible to get our Mother's tumor profiled also with Father's permission. Mom passed 2 yrs ago from ovarian. Her tissue is kept at the same lab as mine. It may help to see if there is a familiar (family) link to developing a cancer dx. Maybe, I'm grasping at straws....but if I can link anything for future generations, then I've done my job to stop the beast in it's tracks. DNA, RNA is still in what I would call it's infancy, but I feel in time may be the building blocks in finding a cure. God willing. I will continue to research and share any viable findings with everyone. I have been reading everyone's post's but kinda staying in the back ground for awhile. Know I'm here with you and for you always. Katie