Feb 15, 2013 - 10:48 am
For those who have been following my never ending blood clot saga, I have an update. Steve's ultrasound ruled out a blood clot in the leg. This came as a surprise to all doctors involved. The leg is extremely swollen, bruised and very very painful. Not the calf but the thigh. (no veins popping out, leg not warm to the touch) Steve's onc, however, was not as surprised as the thrombosis docs. She is attributing the problem to the dexamethasone taper. I am relieved that it is not a clot. (they were so sure that they switched his needles from fragmin to lovenox). However, I am concerned about permanent muscle damage. He literally cannot even stand, let alone walk. He will meet with a physiotherapist this aft. They are giving him two units of blood. I think she said the hemoglobin was 63. Lowest they've seen it. Hopefully this will give him more energy to deal with the pain. I have researched this extensively and have come across muscle pain and weakness as relatively common side effects. But I have never heard of anything to this extent. My gut tells me it's the dex. The timing makes a lot of sense. Maybe I should push for more tests? Has anyone heard of this sort of problem with getting off the steroid?