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Jaw discomfort in area of Mandibulectomy

vetorama's picture
vetorama
Posts: 16
Joined: Sep 2005

Having a lot of jaw discomfort in area of mandibulectomy. The new mandible/flap feels very swollen. It is not mucositis. I'm on Rad #13, chemo # 4.

Just wondering if others experienced this,

Thanks

George_Baltimore's picture
George_Baltimore
Posts: 303
Joined: Jun 2009

Did they replace the mandible with a part of one of your fibulas? Did they put in a titanium plate or is the mandible just swinging on one hinge?

vetorama's picture
vetorama
Posts: 16
Joined: Sep 2005

I have a titanium plate and fibula flap.

George_Baltimore's picture
George_Baltimore
Posts: 303
Joined: Jun 2009

for lack of blood supply, they had to go back in and remove the bone.  They thought that they would be able to leave the titanium plate in but about a month and a half later, a screw was working its way out.  They ended going back in and taking the plate out.  When the screw was working its way out, there was alot of pinpoint pain where the screw was.  You could actually feel it from the outside of my skin.  The swelling (lymphedema), for me, took a loooonnnngggg time to go down and is still not completely gone.  Have you said anything to your docs yet?

hwt's picture
hwt
Posts: 1935
Joined: Jun 2012

My surgery was 01/31/12. For months I felt like I had a bag of nickels hanging on my jaw and some days a bag of quarters. That sensation no longer exists for me. I don't recall feeling real pain but rather a constant discomfort. At a year, things continue to improve. Up until a month or so ago, the inside of my mouth swelled when I ate but subsided about 15 minutes after I finished eating. I too had lymphedema but neck massage therapy helped.

Candi 

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