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hair's still

LaCh
Posts: 509
Joined: Dec 2012

.....falling out. I'm almost 3 weeks post last round of chemo and it's still coming.  I'm not bald by any stretch but it sure is getting thin.   Lost literally all my pubes which I don't really care about...  but this post is actually about the hair on my head.  It's not a huge concern of mine but it's "duly noted."  Any comments?  Similar experiences?

Phoebesnow
Posts: 437
Joined: Apr 2011

Your shampoo can be a contributing factor.  I was using Pantene moisture balance shampoo and my hair continued to fall out until I stopped using it.  I think it is the ingredient that coats the hair strand dimethiconol.

 

Lost alL the pubic hair and shockingly it grew back after a year or so.

 

Glad u r feeling better!

LaCh
Posts: 509
Joined: Dec 2012

feeling better, yes thanks.  I'm not really using shampoo...  it took a year for your pubes to grow back???????????

cap630
Posts: 142
Joined: Jul 2011

My hair continued to fall out for 3 months after my treatment ended.  Did not lose it all, but had some bald spots.  It came in thicker and curly.  It is so different for everyone...

LaCh
Posts: 509
Joined: Dec 2012

three months???  Hmm.   Anyway, my hair's already curly...  now it's thin and curly... can see my scalp....

jcruz
Posts: 182
Joined: Jan 2013

Mine continued to fall out weeks past my last chemo too.  I went almost completely bald except for a few random strands that I called my "crazy old man hair".  I didn't think it was anything but the chemo as I had stopped using shampoo after the hair loss of the first round of chemo.  I recently got a trim, not a cut, to kind of shape up my hair as it's growing back in. Now I look like a lady with a short hairstyle instead of "lady what happened to you??"

LaCh
Posts: 509
Joined: Dec 2012

yeah, I think I'm moving in that direction too....  

mp327's picture
mp327
Posts: 2675
Joined: Jan 2010

My hair continued to fall out for weeks after treatment ended in early September 2008.  By Christmas that year, I had bald spots all over my head and the remaining hair was very thin.  It began to grow back about a month later and didn't take long to fill back in. 

A friend of mine told me to use a shampoo with Biotin in it, which I think helped some to strengthen my hair and perhaps keep the fallout from being as bad as it could have been.  I bought a brand called Jason at a GNC store and continued to use it for about a year.  I also tried not to blow dry my hair or use hairspray to keep breakage at a minimum.

LaCh
Posts: 509
Joined: Dec 2012

yeah, it'd be nice if it slowed and started to grow back as soon as yours did...  <smile> no, no, no blow drier, hairspray, hair products, that sort of thing.  Surprised  Never really gave much thought to my hair, till it started to abandon me...  now all of a sudden, I find my eyes looking upwards when I stand in front of a mirror. 

Phoebesnow
Posts: 437
Joined: Apr 2011

Pubic hair for me was a year.  I was happy it came back.  There is an old thread about pubic hair.  U could search for it.  My hair and nails always grew slow, same for my mother.

islandgirlculebra's picture
islandgirlculebra
Posts: 132
Joined: Dec 2012

The treatment caused me to lose about 2/3 of my (already fine) hair. Very thin with a couple of bald spots, so I got it cut short cuz it just looked bad.  At least these chemo drugs don't make everyone go completely bald...... I think it depends on how thick your hair is to begin with on what you end up with....

LaCh
Posts: 509
Joined: Dec 2012

I had a lot of hair to start but have lost a lot, and continue to. I can see my scalp but still have quite a bit up there...  so it could be better but could be a lot worse, too.  In terms of length, well....  it was an inch and a half or something like that when this all began but I've not cut it since.

LaCh
Posts: 509
Joined: Dec 2012

I'll check it out, thanks....

eihtak
Posts: 789
Joined: Oct 2011

I had thick wavy hair and it got VERY thin and wirey. It also continued for several weeks after treatment. Now, two years later, it is thicker than before, less gray, and grows fast! Could also be thanks to better nutrition. As far as pubic area, came back sparce, but don't care at all!

Lorikat's picture
Lorikat
Posts: 548
Joined: Jul 2011

Me too with the less gray...  

Marynb
Posts: 1134
Joined: Aug 2012

I was told that I may lose hair, but I didn't lose any at all. In fact, it got thicker and wavy. I used Infusium 23, did not use a brush, no blow drying, and was very gentle with it. As far as down below, I am almost 2 years post treatment and I am still sporting the Telly Savalis! :)

LaCh
Posts: 509
Joined: Dec 2012

wow... two years...really?  Well, it's an interesting look, I'll say that. In the greater scheme of things, it doesn't matter but...  it's an interesting look.  As for the hair on my head, I usually do my thing and it does it's thing, but aside from observing it abandoning ship, I'm not doing much about it (not that there's much that I could do if I wanted).  It's basically, "Sorry to see you go, Hair, do come back if you're in the mood. You'll always be welcomed." 

Lorikat's picture
Lorikat
Posts: 548
Joined: Jul 2011

Love the description!   Me to on the Telly savalis 16 months post tx!!  Lost about a third of the hair on my head but it's back and wavy.  I always had stick straight hair but not now!  

Angela_K
Posts: 370
Joined: Jan 2011

I find the variances in hair loss interesting. Just as the variances in treatment side effects.  I had very thick hair to begin with and lost about 85% of it. Much more than the doctors lead me to believe. I cropped it off short so I could shampoo and go which was great because the regrowth at first was very fragile and heat would have damaged it. Then it came back very, very thick and curly at the nape of my neck. It took about 6 months for the thin spots to completely fill in.  Now it's back exactly the way it was before. Super thick with a little wave. Just a lot dryer than before due to lack of hormones. Pubic hair was back in 6 months, but thinner.

I wrote about it on my blog: http://assdiaries.blogspot.com/2011/02/new-growth.html

Angela_K
Posts: 370
Joined: Jan 2011

I find the variances in hair loss interesting. Just as the variances in treatment side effects.  I had very thick hair to begin with and lost about 85% of it. Much more than the doctors lead me to believe. I cropped it off short so I could shampoo and go which was great because the regrowth at first was very fragile and heat would have damaged it. Then it came back very, very thick and curly at the nape of my neck. It took about 6 months for the thin spots to completely fill in.  Now it's back exactly the way it was before. Super thick with a little wave. Just a lot dryer than before due to lack of hormones. Pubic hair was back in 6 months, but thinner.

I wrote about it on my blog: http://assdiaries.blogspot.com/2011/02/new-growth.html

LaCh
Posts: 509
Joined: Dec 2012

This emu's feathers are my hair on a good day so while I may observe my hair falling out, how much worse could it really be if it does?  I've got a lot of it to lose anyway so it still looks pretty thick.  The hair down south is another story; not a single one remains.

swordranch's picture
swordranch
Posts: 35
Joined: Feb 2013

Hi, I am new on here and am about to have my last chemotherapy treatment in a 12 treatment regime.  Rectal but like a 1/2 inch from what used to be the exit.  So I imagine pretty close to what you guys are dealing with. 5FU, Oxy, Leucovorin?  About a month after my pre-surgery chemo/radiation I lost all the hair "down under".  Just woke up one morning and it was gone...don't know where it went...not in the bed, not in the jammies, not in the shower...no clue.  You could say it just vanished into thin hair (yuck yuck yuck!) But WHATEVER, didn't really matter.  Since then surgery (the dreaded APR) and 7 months post surgery chemo.  I had thin hair, but quite a lot of it and it has thinned a bunch to were you can see a lot of the scalp.  But I can still disquise it a bit.  Hoping that it does not continue to thin after chemo is done but from the posts on here it looks like that is more than likely.  The "down under" has actually filled back in quite a bit even during while on the last series of treatment.   We shall see...I have the grandkids prepared for a hairless Grammy and the other day my 5 yr old granddaughter ws excited to hear that I might not lose it all.  She thinks maybe I will have a mohawk!  Looking for others with a radical APR and I mean RADICAL!  Permanent colostomy etc..

mp327's picture
mp327
Posts: 2675
Joined: Jan 2010

I'm sorry your diagnosis, surgery and treatment all brought you here, but I hope you are doing well.  I'm trying to be clear on your situation, so please correct me if I'm wrong.  You had chemo/radiation prior to surgery, then APR with permanent colostomy, and are now undergoing post-surgery chemo with the chemo drugs you mentioned?  That is a lot to endure.  However, I love your attitude and sense of humor about it all.  I guess if we couldn't laugh about some of this stuff, we'd be crying 24/7.  I hope you don't lose much more hair, but it's possible that it will continue to come out for awhile after your last chemo session.  However, my personal experience was that it started growing back pretty quickly, which I hope will be the case for you.  I hope you'll keep us posted on how you're doing and I wish you all the best!   

Marynb
Posts: 1134
Joined: Aug 2012

Hi. I wish you all the best with your treatment! I love your sense of humor. The treatment most of us endure with this canceris much shorter in duration and ususally does not reauire surgery. We have 30 radiation and 10 days of chemo. Usually, if caught early, that is enough for a cure. I admire your strength and courage. God bless you!

eihtak
Posts: 789
Joined: Oct 2011

Hi, I have had a virus on my computer and just got it cleaned so am late in responding to some posts. Two years ago I was diagnosed with Stage3b anal cancer. Because of size, placement, and overall poor health at time of diagnoses I was given what was to be a temporary loop colostomy to help me through treatment of chemo/rad. After a couple weeks of radiation, internal swelling caused my colon to prolapse almost 5in. What a mess keeping that bag on with the additional weight from the colon! Soon I was hospitalized and then nursing home for a couple months. I was put on TPN (a nutrional supplement via IV), but was also compliant with my trusted doc as to diet, exercise, rest, etc. I also had a lot of praying going on! The colon repaired itself when the radiation was done. When I came home I joined a couple support groups, one specificly for people with ostomies. It was huge support in helping find the right appliance for my body type, tweak my diet, fashion ideas etc., along with an emotional adjustment. Soon my "temporary" colostomy was looking like a permanent addition to my life. Apparently the radiation did excess damage, and having even a little control of my bowels seems unlikely. I keep the reversal option open, but have accepted the fact that most of my doctors (even saw a specialist) don't at this time. Then...last spring I was diagnosed with breast cancer and had a double mastectomy, presenting yet the need for some more creative clothing ideas! I don't consider myself to be vain, but grew up as a ballet dancer for more than 20yrs and I think body image is just ingrained in me. It has taken time, support from others in the same boat, and the knowledge that we all have crosses to bear, some are visible some are not, but I think I can confidently say I am 95% ok with the ostomy thing. I am fortunate though, I have virtually no current problems with it in regards to function, and am even able to leave the bag off for 5-6 hrs a day. I don't believe that most people could tell that I have it, then again most wouldn't be looking or even know what it was if they saw it. In the beginning I kind of felt the need to educate everyone on what I ws dealing with daily, then eventually decided that we all poop one way or another everyday. I don't ask or need to know about others (except for people on sites as this) bowel issues, and most don't need to know mine. Some days are still better than others, as with anyone. I wish you all the best, it is often true that some things just take time......patience. Keep in touch please.

 

 

 

 

swordranch's picture
swordranch
Posts: 35
Joined: Feb 2013

Thanks so much ladies for your kind words.  I am actually amazed that a person can go through all of this and still feel like yourself.  But I do!  And I am confident that I will be in the 10/20 percent survival that they have given me.  We are calving here on the ranch now and I am getting out early every morning now to check the cows and calves and am happy to say that it has helped 1000%.  Will get results in two weeks, confident that this last chemo regime has KICKED ASS!

Laura

mp327's picture
mp327
Posts: 2675
Joined: Jan 2010

I glad you are finding activity to be very helpful with how you feel.  I wish you all good results in 2 weeks!

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