Feb 12, 2013 - 7:31 am
My husband had a needle biopsy yesterday, and yes his lung collapsed and he is now a patient. During all of this several of the nurses kept saying he had a trach. I told them repeatedly he has a stoma and that that is his airway now. That if he needed oxygen it can only be given thru the hole in his neck. Some knew, some didn't and that is scary. I told several of them that they needed to be trained regarding someone who had had a laryngectomy and of course, they looked at me like I was crazy because they knew but in reality they didn't. Several agreed with me though. I did feel comfortable enough to go home last night and will be heading back later this morning.
I just kept making it a point that he is a neck breather and asked that it be noted on his chart in big letters. Also told them to note that if he rang for the nurse, he couldn't answer. And sure enough he rang, and they come on the intercom and say can we help you. Then the nurse wrote his phone number on the board for Joe to call if he needed anything after learning that he has no voicebox. Scary again. He has a Tru-Tone EL but for some reason he was having trouble yesterday using it. Think it was due to the fact that he was laying down and had oxygen around his neck. Some of the nurses thought he wasn't able to do anything for himself. I had to tell them he was very mobile just couldn't talk.
Now this is the hospital that his specialist uses so you would think they would be better trained regarding what a laryngectomy is. Also several of the nurses we spoke with are foreign and Joe was having a hard time understanding them. I could or would ask that they repeat themselves when I couldn't understand them. I have nothing against a foreign nurse or doctor, but just feel that they should be better able to communicate with us.
Another thing that is scary is that the radiologist said that the tumor or whatever it is, was very small (but she was able to get cells thank goodness) but had grown over the last 3 PET/CT scans and that they almost didn't do the biopsy and just wanted to watch it but for some reason the doctor was pushing the biopsy. Told me she tried her hardess to keep from collapsing the lung and that looking at the PET she couldn't understand why they didn't do the esophagus biopsy first. That was lite up she said.
Caregiver to husband/ 2010 laryngeal cancer/2011 cancer at the cervical of the esophagus