CSN Login
Members Online: 6

nose feeding tube vs G-tube

Kell82's picture
Kell82
Posts: 16
Joined: Dec 2012

Hi Everyone,

I was wondering, can you get a feeding tube down thru your nose instead of the G-tube into your stomache?  Dad is supposed to be starting RADS on Thrusday and this is a question he has.  Also, how quickly will the RADS affect his mouth, saliva glads, dry mouth, ect?

longtermsurvivor's picture
longtermsurvivor
Posts: 1822
Joined: Mar 2010

and the opinions on this seem pretty well split in advance of radiation.  Yes, you can get an NG tube.  It is unpleasant, annoying and in the road.  I only had one for about 9 days after my surgery, and I was very happy to get it out.  The PEG tube is a listed alternatiive, because people find it quite a bit easier to manage than an NG.  So I guess the question begins with, does he need one at all?  And if he only needs one if things dictate he has to have one, can that decision wait until the moment.  I'm one of those people that has actually been through full  radiation on two different occasions.  I didn't need a tube either time.

 

best to you and your dad

 

Pat

Kell82's picture
Kell82
Posts: 16
Joined: Dec 2012

Thanks Pat for responding so quickly.  Wow, so you were able to eat the whole time on radiation without any problems?  I guess I just assumed he would not be able to do that and that a feeding tube was something he had to have.  He has stage 3 cancer and has decided not to take Chemo and really doesn't want to take the RADS either. 

longtermsurvivor's picture
longtermsurvivor
Posts: 1822
Joined: Mar 2010

to spend some time on this board himself.  None of us want to go where this disease takes us, but our choices are somewhat limited.  I didn't want to suggest I could eat normally.  The radiation is quite difficult, and although the first time I had rads I ate pretty well, I was reduced to liquids the second time.  My mouth was just to sore to eat solid food.  So I went with a diet that was mostly ensure or boost, in the amount of at least 2000cal/day.  That got me through the tough part of radiation, and recovery.

 

Your dad needs to carefully think through the decision on chemo, and certainly on radiation. These modalities are offered for a reason--- they save lives.  Granted they are not fun, but the alternative is pretty final.  Induction chemotherapy is generally offered to everyone at or beyond stage 3.  The improved survival is at least 20%.  Even more so the radiation.  You haven't said exactly what the surgical plan is, but curing stage three disease with surgery alone would be pretty lucky.  Radiation can cure stage three without surgery at all, so although I understand his response emotionally, he is in a situation where he really needs the rads.

 

Others will come along to talk to you.  Suggest strongly to your dad that he participate in this discussion himself.  It is his disease, and only he can make these choices on which his future depends.

 

Pat

 

 

vermontgirl's picture
vermontgirl
Posts: 66
Joined: Nov 2012

LTS....I always enjoy reading your posts bc you are direct, objective, and knowledgable and have been through it multiple times witof determination.  So....here's my question....my husband had 3+ cm mass in left lymph nosed and very small mass ito left tonsil....nothing else lit up on PET.  He is 41 and hpv+.  His MD said it was caught early...little disease to start with and did 7 weekly cisplatin and 35 rads.  I assumed it was stage 4 bc it had spread to lymph node and was larger than 3cm.  I think he was T1N2a although I would have to look at my records.  Could he be a different stage and why no induction or fu????  I want to ask his MD at the next follow up in 3 weeks.....but I also have to watch what I ask so as not to freak out my hubby.  No reason to question now....it is completed on th round and hopefully for good.  But I do wonder.  That being said....I trust Dana FarbeI.

longtermsurvivor's picture
longtermsurvivor
Posts: 1822
Joined: Mar 2010

to treat some of these HPV+ cancers.  Your husband's presentation was a pretty common one. Small primary, one big node.  Cure rates are extremely good in these people, and there are protocals being developed to back off of the standard full-court press treatments.  Not doing induction is one such.  Giving 28 radiation treatments in stead of 35 is another.    There are not yet any definitivve answers as to what the treatments will be if they are ever standardized, but they will be less than the old stand-by's.  Having said that, by TNM classification he would be a stage III.  Stage IV is spread beyond the throat, or distant metastasis.  Here's a better website for staging:  http://www.cancercenter.com/throat-cancer/throat-cancer-staging.cfm  It's all good for your husband.  Ask away at the next appointment, but my bet is they will answer something like this. 

 

best

 

Pat

Billie67's picture
Billie67
Posts: 834
Joined: Jul 2012

Hello,
Well I'll give you my 2 cents too. Personally if your dad needs a tube for nourishment I'd recommend the G-tube or PEG (same thing) over the NG tube. The NG tube tends to not be the most comfortable and your dads throat will become pretty sore with radiation alone and to add a tube to that would be undesirable.
The PEG is easy to use and once it's in place you hardly feel a thing. It's also concealable where the NG tube is not. All this being said, your dad may be one who doesn't need it all. I needed it and several of us do but some get by without it.
Stage III responds very well to rads and chemo too. Honestly for me I had Erbitux as my chemo and it was easier than the rads. Not sure what type of chemo they advised for your dad to get but chemo has come a long way and doesn't cause people to become near as sick as in the past. Erbitux is more antibody based and not chemical based, maybe see if he'd be eligible for that?

Many people say they don't want treatment, especially the older folks but once they are convinced to do it and complete the treatment with good outcomes they are happy they did it.
I also advise that you don't allow your dad or yourself for that matter to search the Internet. It will only freak you out and most of that info is old and outdated. Treatment has come so far and is so successful. Have your dad stop in here and say hello to us and ask us anything he may have on his mind.
Take care,
Billie

Grandmax4's picture
Grandmax4
Posts: 585
Joined: Dec 2011

I hope your Dad will reconsider the treatments the Drs want to do~~~cancer is no longer a death sentence, head and neck treatment is brutal, but doable. I went into surgery pretty naive, had not found this site yet, I'm 66 and doing great, had a nose feeding tube for a couple months, was never offered a peg...during that time, I was also doing therpy to learn to swallow correctly, but eating through the tube. To get it in  your nose, you have to swallow it...ugh, lots of gagging going on that day.All and all looking back, the surgery and the year and 3 months since, have passed quickly, I'm pretty much back to normal.. I was blessed that no chemo or rads were necessary after my surgery, Good wishes to you and your Dad as you begin this journey....he'll be okay, trust your Docters

phrannie51's picture
phrannie51
Posts: 3787
Joined: Mar 2012

nobody "wants" to do the treatment....however, most of us want to live and getting the full treatment seems to be the best option to getting a long life.  I hope he changes his mind about the chemo.  I found radiation tougher than chemo, partly because I was getting Amifostine everyday with it....plus the fact that it was every single day.  Chemo was every three weeks, and at least for the Cisplatin part of it, the side effects were gone in 5 days or so (and even they weren't that bad).  The adjuvant chemo of Cisplatin and 5FU was tougher, because I really reacted to the 5FU....and THAT is where the feeding tube became a godsend.  There was no way I could put anything into my mouth after starting the 5FU....not even water. 

If given my druthers.....I'd skip the nose tube....we're talking several weeks of having it hanging down his face....in the way....what a pain in the butt!  Maybe starting out with no tube, see how he does without one.....but keeping an open mind that if eating and drinking become too tough, getting a PEG somewhere during the treatments.  I was glad tho, that I had mine in before I started....getting it placed when you already feel crappy would seem like adding insult to injury.

p

 

HobbsDoggy
Posts: 165
Joined: Feb 2013

My Doctor insisted i get a PEG tube and I guess it was the right thing to do because I used it and kept up my weight. I only lost 15 lbs, but that got me down to 150. I had to use the tube for a few days only. Most of the time I could drink Ensure. Started solid food about 3 weeks after last radiation. Taste is still an issue, but had tube out soon after last radiation. just wanted to feed myself. All in all having the PEG tube was not so bad and it did help.

I agree with everyone else get the full treatment even though it sucks. Neck cancer has a great cure rate if things go well. The side effects are hell but they do go away or at lest so I am told. I am functional about half days now and looking forward to a Canadian fishing trip in the spring and Europe this fall.

CivilMatt's picture
CivilMatt
Posts: 3017
Joined: May 2012

Kell82,

 

I had a NG tube and a PEG tube and the PEG wins hands down for use and comfort let alone visibility.  I can’t imagine having the NG during rads, when there is barley enough room for air in my throat.  Now going without either is an option (to start  with) and if you fail to get enough nourishment they can pop in a PEG.  You may not want to snake a NG tube down once your throat is raw.

 

I always managed to drink one meal a day and possibly could have gone PEGless, but having one sure was convenient and easy.

 

As for surgery, rads and chemo, I had all three and I feel pretty good and my results to date are good.  They gave me some options, but with less treatment my odds of success were less.  If I knew all I would have avoided cancer in the first place.

 

Whistling in Oregon,

 

Matt

hwt's picture
hwt
Posts: 1970
Joined: Jun 2012

I had the feeding tube in my nose 2 weeks in the hospital and was never so happy to get it out and get the g-tube in my stomach. The g-tube in my stomach was a walk in the park in comparison to the nose. Hoping your Dad has an easy journey with few side effects. 

Tim6003's picture
Tim6003
Posts: 1497
Joined: Nov 2011

My feeding tube was placed in my stomach the first week radiation began.  It was a lifesaver.  I'm a wimp compared to many on this board Sealed.  I lost 70lbs during treatment, lost taste just a few weeks into rads and stopped eating via mouth by week four.  Truly I am ashamed when so many worked, ate and went without a tube at all....how in the world they did that I will never know.

Seems like I had it rough out the gate, bad reaction to my chemo, very painful throat issues and neck burns like an atomic accident ....lol...but by golly I made it. 

Everybody responds different, however one opnion I might part ways with on most on this forum is the peg tube (stomach) ...I say getting one at the begining is the best insurance policy just in case you find yourself in bad straights of getting needed nutrition half way through treatments. However, with that said if that were to be the case you MUST continue the swallowing exercises and you keep those muscles going (if only drinking liquids) ....that is very, very important and that is why some doctors (I think anyway) do not like to provide the assitance of a feeding tube of any kind so as to keep the throat muscles exercised and prevent feeding issues later after treatments.

Best,

Tim

Subscribe with RSS
About Cancer Society

The content on this site is for informational purposes only. It is not a substitute for professional medical advice. Do not use this information to diagnose or treat a health problem or disease without consulting with a qualified healthcare provider. Please consult your healthcare provider with any questions or concerns you may have regarding your condition. Use of this online service is subject to the disclaimer and the terms and conditions.

Copyright 2000-2014 © Cancer Survivors Network