Feb 08, 2013 - 8:41 pm
Have been experiencing reallymhard core pain and sharp shooting pain, night sweats so bad I bring a towel to bed. Thought I was getting the feeling back from biopsy. Found out today I have a rare case of radiation myositis. My Onc said "man you are really unlucky". Can not get much better than this. Good thing was I thought I had non hodgkins lymphoma. Had a marine buddy of mine die of that. Bad, bad.anyhow when they do radiation, radio surgery for me, I guess it deateoys everything in its path. Severe pain is the result. I believe it is better to tey and defeat this pain with both mind and exercise as opposed to drugs. This is really hard core pain.
I would do the radiation again, and probably will, because it stopped the growth for awhile. This ismamrare occurrence so do not let this influence your thoughts. It happens. Be aware it can happen.
They told me my PSA was 0.000. My pain is a nine. Onc said he had something to celebrate, my PSA, if this is as good as,it,gets then God Bless Him for theterrible things he has to go through.