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Is there anything I hate worse than going for a scan? Updated

annalexandria's picture
annalexandria
Posts: 2263
Joined: Oct 2011

No.
Can’t think of anything I hate more…
with the possible exception of waiting for scan results.
But I can’t complain too much about the PET I got this morning, given that I have to basically throw a tantrum every time in order to get approved for one. It’s just that I have a little extra anxiety about getting the scan at this particular facility, because of what happened the first time I went there.
Everything seemed normal at the start, bit of a drive to the big, fancy, brand-new building (oh really, Group “We Can’t Afford to Pay for Your Scan” Health?), bit of a wait in the waiting room, but no real problems. Then the man came out to take me in for my appointment. We walked down a long hallway, through a door, down another long hallway, through another door, down another hallway, into an elevator, down several floors…ok, so the scanning room is really in the bowels of this place (haha..."bowels", see what I did there?), but that’s pretty normal for radiology stuff, right? Then he escorts me out one last door, and into…the parking lot. And in front of us is what appears to be a taco truck.
1st thought: Oooh, I can get a taco before I go! Awesome!
Then I notice the taco truck doesn’t have any windows.
2nd thought: Oh no! This guy is actually a serial killer who abducts unsuspecting cancer patients and dismembers them in his little silver trailer of horror…after giving them an unnecessary scan. A killer who likes to add insult to injury! (It is possible that I had been sitting at home watching way too many horror movies at this point in my life).
Guy notices the look on my face, says, so they didn’t explain to you that we have a subcontractor who comes once a week with a trailer to do the scans?
Oh. Heh…
Well, it’s good to know that I won’t end up stuffed in the trunk of a car in the Group Health parking garage.
But I’m sorry I won’t be getting a taco.

Think I'm blathering here...sorry.  The scanxiety always gets the better of me.  Hugs~AA

 

**Just got an email from my doc...NED!  This makes 14 months of no cancer.  I think it's finally time to get my port out.  Can always get it put back in if needed.  In October of 2011, I was in the hospital for palliative surgery for my metastatic cancer and things were looking very sucky...now I'm here.  Definitely walking wounded, but alive.  Gotta keep up the hope.

abrub's picture
abrub
Posts: 1532
Joined: Mar 2010

Now it's time to take yourself out for a taco to make it all worthwhile!

 

Hugs,

Alice

danker
Posts: 747
Joined: Apr 2012

The thing I don't like about scans is the contrast I have to drink before them.  It gives me diarrhea for at least a day LOL

abrub's picture
abrub
Posts: 1532
Joined: Mar 2010

I can't tolerate the Gastrografin (the clear one, commonly mixed with Crystal Lite).  Most people prefer that one, but I find that it makes me sick for about 5 days.  I do better with the Barium, which gives me diarrhea for about 3 hours, starting almost immediately.  However, 3 hours later, I'm fine.  Most people have worse reactions to the barium.  However, for me it is much better.  It might be worth asking about trying the "other" contrast next time, to see if you tolerate it better.

Alice

annalexandria's picture
annalexandria
Posts: 2263
Joined: Oct 2011

is that I have a PET/CT done, but they never have me drink the contrast.  I just have the radioactive gunk injected into my veins.  Seems like this might not make the Ct part of the scan as clear as it might be.  Despite not drinking the goop, I still feel sick all day.  Probably just nerves...or maybe not getting my morning coffee.

wawaju04976's picture
wawaju04976
Posts: 316
Joined: Dec 2012

This is wonderful news!!! It is so nice to hear stories like yours!

Judy

maglets's picture
maglets
Posts: 2407
Joined: Jun 2006

ahhhhh what wonderful news....couldn't be better.....yayyyyyyy

mags

Varmint5's picture
Varmint5
Posts: 371
Joined: Feb 2012

So happy for you to hear this great news and so thankful. Whew! Just wonderful.

Sandy

barbebarb's picture
barbebarb
Posts: 464
Joined: Oct 2011

You deserve more than a taco!
That is a terrible experience.
I have had scans in picky areas. One of the waiting rooms was playing some murderer movie and I asked them to turn it off!
I hate the anxiety and seeing the looks on each patients faces and wondering what they are feeling.
Great news. Enjoy and the best to you!
I have learned recently to push more but I am on very high alert.
Barb

bigman4christ's picture
bigman4christ
Posts: 87
Joined: Oct 2012

for you !!!!

zach

janie1
Posts: 753
Joined: Apr 2011

That's what I was hoping to see. Way to go, Ann!

Lovekitties's picture
Lovekitties
Posts: 2951
Joined: Jan 2010

So very happy for you and your great news. 

May your NEDness continue for many many years to come.

Marie who loves kitties

tachilders's picture
tachilders
Posts: 315
Joined: Jun 2012

Congrats!!!

Momof2plusteentwins's picture
Momof2plusteentwins
Posts: 455
Joined: May 2012

YAY! That just goes to show you never know. There is always hope. Congrats and may you always remain NED.
Sandy :)

herdizziness's picture
herdizziness
Posts: 3402
Joined: Apr 2010

Lovely description of your scan taco truck!!!  Imagine my same surprise when that happened to me at our Dominican Hospital here.  I was like, really???  OMGoodness, glad to know I've not been the only one.  Love your description of it all, gave words to my thoughts about the whole thing with it being in a semi-trailer.

WONDERFUL UPDATE, whoooo hoooo!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

You go girl!!!!!!!!!!!!!!!!!

Winter Marie

Chelsea71
Posts: 1170
Joined: Sep 2012

Awesome news. So happy for you. If I were you, I would re-think this whole dairy thing. Maybe you should do exactly what you've been doing for the past 14 months. If Steve is fortunate enough to get a surgery or procedure, he will definitely be taking cimetidine!

Congrats!

Chelsea

annalexandria's picture
annalexandria
Posts: 2263
Joined: Oct 2011

(in a not-so-funny way) if I gave up the dairy, and BOOM!  My cancer came back all of a sudden.  Could probably get a job as a spokesperson for the National Dairy Association...

hippiechicks's picture
hippiechicks
Posts: 326
Joined: Sep 2012

awwwww....that is so awsome!!!! That is just really great news for you!! YOU ROCK!! I agree...you need to have more than a taco for that news!!! Keep goin' girl!

luvinlife2
Posts: 172
Joined: Jul 2012

Thank you so much for sharing your good news!!  It's so important for us stage 4's to know NED is a possibility!!  I HATE the scans too mostly because the iv needle is bigger and my poor veins don't want to co-operate anymore (plus I usually get a trainee who misses the first go).  We use something called Telebrix instead of the redicat.  It's tasteless and you mix it with a cup of water.  Easy peeezy.  I could never finish all the other stuff.

So glad you are clear!!!!   Enjoy and CELEBRATE!!  Smile

k44454445's picture
k44454445
Posts: 494
Joined: Jul 2012

for the post. you had me laughing! congrats on being ned!!!

hugs

judy

steveandnat's picture
steveandnat
Posts: 887
Joined: Sep 2011

I was laughing reading your trip through the "bowels"  just to get to the scanner.  Great news on the results.  Pray you stay NED forever. Jeff

Brenda Bricco's picture
Brenda Bricco
Posts: 556
Joined: Aug 2011

Awesome! I hate to say that I have been to "the taco truck", strange but cool.

 

cinreag
Posts: 154
Joined: Oct 2012

Such good news. Happy for you....

LivinginNH's picture
LivinginNH
Posts: 1307
Joined: Apr 2010

Wow!! NED!!!  I am so very happy for you!!!!  :)

annalexandria's picture
annalexandria
Posts: 2263
Joined: Oct 2011

I'm happy but it's always tempered by the sadness of knowing that too many good people came to the end of the journey way too young because of this wretched stuff.  Makes my heart hurt.

jen2012
Posts: 1208
Joined: Aug 2012

Great funny post and awesome news!  :)  Enjoy the weekend.

smokeyjoe
Posts: 1428
Joined: Feb 2011

Great news on the scans,   congratulations!!!!    Seems those trailers outside of hospitals are getting more common!!!   Our hospital has a large one, not sure what kind of scans are done there,  the CT's are done in the hospital.   But, I've heard people being directed out to the "trailer".     It seems to be pretty permanent and doesn't go anywhere.   

Sundanceh's picture
Sundanceh
Posts: 4300
Joined: Jun 2009

My old cancer center had a roach coach sitting outside the bldg too...they did MRI's in there...oh well, a room is a room...and a machine is a machine...

Now, the new place...they've got scanners all over the campus...and even different satellite locations...no temp bldgs allowed...

 Congrats on the clear status!  I've kept this last port in (3rd one) until I know something...usually when I had them pulled, I was maxed out on my plan and the surgery was free...having not met the out of pocket maxiumum since treatment ended...it would be out of pocket of course if I wanted to do it (which I would)...so I'll have to hold for awhile...even if I scan clean soon.

It just seems "Cheaper to Keep Her."

All smiles for you!

-Craig

annalexandria's picture
annalexandria
Posts: 2263
Joined: Oct 2011

but what keeps me a little hesitant is that the last time I had it pulled out, I was back in the hospital for emergency surgery just three months later.  I am seriously superstitious about having it out after that little episode.

BusterBrown's picture
BusterBrown
Posts: 221
Joined: Mar 2005

AA, you rock!  Keep doing what your doing!  I've done some many CT's that I've lost count. CT don't bother me as much as waiting for the results.  To borrow a verse from Tom Petty,  "The waiting is the hardest part."

Buster

annalexandria's picture
annalexandria
Posts: 2263
Joined: Oct 2011

although I do love all songs by Tom.  Seeing him in concert is on my bucket list, but he's getting kind of old, so I think I better get on it!

marbleotis's picture
marbleotis
Posts: 492
Joined: Mar 2012

Enjoy and get that port out.  I had mine taken out in the hospital - it was a happy day. 

Do not let them convince you to have taken out in office.

I said it was put in while in the hospital when I was knocked out (Zzzzzz) and that is exactly how it's coming out!!

annalexandria's picture
annalexandria
Posts: 2263
Joined: Oct 2011

which was a bad move...had it back in for more chemo in the blink of an eye.  But I had it done in clinic, while I was wide awake.  Talk about disturbing!  I could feel the doc pulling it out...have never wanted to be knocked out so much as at that moment.  Will take that into consideration the next time around.

Helen321's picture
Helen321
Posts: 783
Joined: May 2012

Great news!!!!!!!!!  Now go buy yourself a celebration taco!  And thanks for making me laugh.  lol  I'm also now two weeks NED.  Verified by surgery biopsy. Go NED, go NED, go NED. Actually I'm going to rephrase that!  Stay NED, stay NED, stay NED!  lol

tootsie1's picture
tootsie1
Posts: 5006
Joined: Feb 2008

It's not every day that a post on here makes me laugh quite so much. I know you were anxiouis at the time, but that's a pretty funny story. And I'm SO glad your results were so wonderful!

 

*hugs*

Gail

YoVita's picture
YoVita
Posts: 545
Joined: Mar 2010

14 months - is that a record for you?  Excellent news.  Enjoy.  Love your comments and attitude.  From a fellow librarian.

annalexandria's picture
annalexandria
Posts: 2263
Joined: Oct 2011

I was having surgery about every 6 months there for a couple of years.  Getting over a year for a break is pretty thrilling!  I didn't know you were also a librarian.  Do you work in a public library?

YoVita's picture
YoVita
Posts: 545
Joined: Mar 2010

of a small public library in Illinois.  I'm more of a manager than a librarian these days.  How about you - public librarian?  We're renovating a building for our new library.  Exciting and stressful!  Bet you don't miss your semi-annual surgeries.  

Best, Vita

 

dmj101's picture
dmj101
Posts: 526
Joined: Nov 2011

Yea!! they say time heals all wounds..

So happy for you!

relaxoutdoors08
Posts: 521
Joined: May 2011

So happy to hear the great news.  I still have my port in at 2 years because my Onc. said I may need it.  Hoping for both of us that we continue NED and do not need to use our ports.  Congratulations.

NB

annalexandria's picture
annalexandria
Posts: 2263
Joined: Oct 2011

I had to have it back in within a few months, so leaving it in longer might not be a bad idea.  But I want to wear tank tops this summer without that ugly thing sticking out!

tachilders's picture
tachilders
Posts: 315
Joined: Jun 2012

Congrats on such great news.  Hoping some day I hear those words...

annalexandria's picture
annalexandria
Posts: 2263
Joined: Oct 2011

I hope you do too.  Hope all of us do.

annalexandria's picture
annalexandria
Posts: 2263
Joined: Oct 2011

I hope you do too.  Hope all of us do.

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