Feb 07, 2013 - 10:05 am
Hi Everyone. I have been following all the posts and sending positive thoughts and congrats through the air but have not had any time to post. My husband and I and our two kids relocated to another state to complete weekly cisplatin and 35 rads which we finished last week. I have been homeschooling out kids, and taking care of my hubby and am finally back home with kids back to school. My husband tried to get a PEG....but his stomach was not in a safe position to place it (he is among the 1%). SO, he has gone without one. It was doable up until we finished. It seems that all the trouble waited for us to finish. His throat is excruciating....raw and bloody. His mucousitis is unbelievable and his nose has bloody cracks and patches of yellow scrapes. He can barely swallow his pain meds. He is on fentanyl and liquid meds and tussin (which is so hard to swallow). What bothers him most is that his tongue seems so swollen that it doesn't fit between his teeth. He has sores all along the sides and last night even on the front. He cant do boost or ensure because it sends his mucous into overdrive. He has been doing rice milk with canola oil and whey isolate protein powder. He also is now trying to drink coconut water in place of regular water to increase calories.
I am looking for any advice at all to help him be more comfortable. I was thinking that he just has to endure for a week or two....but any help in the meantime would be great. He is up around the clock at night....coughing/spitting, choking, taking pain meds, etc. His tongue drives him crazy.
Also....how long can I expect this mucous and sever pain to last?
Thanks in advance. You are all so great. Warriors is such a good term.