Feb 04, 2013 - 2:24 pm
My 7 year old son Julien, was diagnosed with Philidephia Chromosome Positive Acute Lymphoblastic Leukemia (Ph+ALL) 9 months ago. We were recently told that he is not able to move on to the maintenance stage of treatment as his initial risk level and response to treatment thus far do not support a decrease in theintensity of his treatment. Due to his diagnosis being so rare, I have been unable to connect with the parents of or survivors themselves. I am in desperate need of some reassurance and just looking to communicate with someone that can relate to our experience. Thank You in advance. Blessed Be! Jen.