Feb 02, 2013 - 5:40 pm
Hi All..! I figured that since I was already posting here.. I would introduce myself and share a few things about me and my RCC tale..
First, I am a male, 59, well.. in a few days I will get to turn 60.. Born in Detroit, Mi and been living in Cal since 1975. Not much of a medical history of sorts until now... Like some / many..? of you I had no early symptoms of RCC. In late Dec 2011 I had what was thought to be Kindey stones... The symptoms came and went several times... Two Doctors first said stones, here are some pain pills call back if they do not pass... So, as I felt great for a few weeks, I thought all was well.. then it started up again... this time I had a hunch all was not well... got to see a great Urologist, he examined me closely, and stated NO CANCER, Kidney stones.... BUT, he sent me for a scan to see what he was dealing with.. Three days later he gave me the bad news... however he was able to get me up to Stanford.. very lucky for me..!! The Doctor, then Doctors knew what to do, my tumor was very large and the scan showed Renal vein intrusion, but no other signs of an issue. Oh yes, my Creatinine level was high at 1.7. A few weeks later was surgery time.. what was interesting and a real value I am sure was a pre-op, op.. they went in and tied the blood vessels off to my left Kidney the day before.. This was to make the actual surgery go better. Fast forward, after the surgery I was told a lot of info.. but they did not take any Lymph Nodes which was a good sign..my tumor was described like others here as a small football..!! The routine was to get a CTScan and MRI every 90 days, plus blood work. The first 90 tests were good. The second 90 day tests were OK, then the next tests showed spots in both lungs, too small to treat.. and a few days ago the spots have grown and now it is time to start treatment.
OK, a little history, my Mom died of what I think was RCC 30 years ago (almost to the day) yet several doctors say not related... I do have my doubts..!
I hope the Votrient works... start that real soon... Hope it works, and then I hope I can somehow afford the co-pay...
Best wishes to everyone...!