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My husband just diagnosed with Stage 4 colon cancer....

gizzyluv's picture
gizzyluv
Posts: 143
Joined: Feb 2013

Hello everyone, my name is Kris. My husband Jason was just diagnosed with Stage 4 colon cancer. I will tell you all what I know & would really appreciate any feedback you might have. He is 42, & has been experiencing digestive issues for about a year & a half now. We don't have insurance since he was laid off from work, so even though he made a couple of trips to the ER there was never a CT Scan, X-ray or anything done. They told him the first time it was Gastritis & sent him home with Pepcid. The second time (back in December) he almost fainted & was taken to the ER, it was then he found out he was anemic, & the colonoscopy was ordered. He had the Colonoscopy done this past Tuesday, it was then a large tumor was discovered in the upper right side of his colon. Today he went for a CT Scan & chest x-ray, which showed no problems in the chest x-ray, but the CT Scan showed that he has 1 spot on his liver. His dr. hadn't actually seen the picture of the liver so he wasn't sure where in the liver the spot is located, we will find that out on Monday. He goes then to get scheduled for the colon surgery. I'm just still trying to wrap my head around the idea that my husband has CANCER....I'm in shock I guess. Anyway, I would really appreciate any help that any of you can offer, any "good outcome" stories would certainly be a blessing right about now. I know the lord is in control, but like I said, some good outcome stories would be welcomed....Thank you in advance! And God Bless.....Kris

Brenda Bricco's picture
Brenda Bricco
Posts: 551
Joined: Aug 2011

Hi Kris,

I am sorry you are where you are but glad you found us. My husband was diagnosed with stage lv two years ago today (rectal with many mets to liver). It has been a tough road with lots of learning. I always thought that the first thing you do is surgery but it was chemo for my husband because he was not operable at time of diagnoses. My husband did thirteen treatments and then had colon resection with temporary ileostomy, rfa on some of the mets and then resection of 65% or liver. I am happy to say that we are at NED at this time (no evidence of disease).

Hang out here for support and don't give up, there is hope.

GOD's blessings to you and Jason

Brenda

gizzyluv's picture
gizzyluv
Posts: 143
Joined: Feb 2013

Brenda, THANK YOU so much for the encouraging words! It's stories like this that I was hoping to find on here. As I said in my original post, we really don't know that much at this time, just that he is in Stage 4 & he has a "spot" on his liver. The doctor DID say that the colon surgery would be first, so I don't know what that means, if it's a good sign or not, but anyway, that's what's gonna happen first. One question I have that maybe you can answer....I keep seeing "colorectal", but Jason's tumor is no where near the rectum, it's in the upper right part of the colon. Is that still considered "colorectal?".....Just something I was wondering about. I will post on here what we find out Monday. PLEASE pray for Jason (Jason Roach, we're in Maryville, Tn.) Thank you again & I'm sure we'll chat more! =) Take care & God Bless, Kris

Brenda Bricco's picture
Brenda Bricco
Posts: 551
Joined: Aug 2011

I am thinking that your husband has one operable met so surgery is an option before any chemo (that's a good thing I think).

If you have colon cancer (whether in the colon or rectum) with a met to any other organ it is then considered colorectal; don't quote me, I am not an expert. lol

I hope your appt goes well and your husband has a positive up beat doc, if he doesn't go get one that is.

I will praying and thinking of both of you. GOD is good. Laughing

 

gizzyluv's picture
gizzyluv
Posts: 143
Joined: Feb 2013

From what we have been told so far he has a pretty large tumor in the upper right side of the colon. I spoke to the dr. today on the phone after the CT Scan & all he said was that there is 1 "spot" on his liver. He didn't use the term "mass" or "lesion".....just "spot", & considering the fact that he hadn't personally looked at the picture of the liver himself yet (he just got the results from the radiologist over the phone) I'm  hoping it's nothing real major. I mean, I know if the cancer has spread at ALL it's MAJOR, but you know what I mean.....One thing he did make clear though was that he will be doing the colon surgery first, before anything else, so I hope it's the right thing to be doing. The dr. is very highly regarded as being one of, if not THE best colorectal cancer surgeon in this area, so I just pray that the lord guides him to do what is best for Jason. Thank you for your concern Brenda, it really means a lot to me & is really helping me cope with all this. God Bless, Kris

Momof2plusteentwins's picture
Momof2plusteentwins
Posts: 449
Joined: May 2012

I was diagnosed with stage IV rectal cancer 10 months ago. I had 1 liver lesion. I had surgery in June last year, rectal tumor, liver tumor, and gallbladder removed all in one 6 1/2 hour surgery. I did 6 months of chemo - Folfox, every other week. The chemo was tougher than the surgery. The reason they say colorectal cancer - they lump the colon and rectum in one. It's all colon - just a little lower in the rectum.
I am your neighbor a little south of you in north GA, about 45 min south of Chattanooga. I know right now must be really stressful, I think I cried everyday for 2 months. It does get a little easier as you understand more and absorb it all. I am 7 months out from surgery and so far everything is good. I am NED and getting CT every 3 months. The last one was in Dec after I finished chemo and so far clear. Have they told you what your husbands CEA is? Good luck with dr appt and remember 1 step at a time.
Sandy :)
Stage IV

gizzyluv's picture
gizzyluv
Posts: 143
Joined: Feb 2013

CEA?....Nope, I don't even know what that is. That's how "new" I am to all this. Really all we know is that Jason has a large tumor in the upper right part of his colon & a spot on his liver. The dr. just got the results of his ct scan over the phone from the radiologist that read the ct scan, so he said he doesn't even know where the spot is on the liver. He said if it's on the outer part it may be possible to just cut that part out, or if it's deeper in (I guess?) he may need to do chemo &/or radiation. We'll know a lot more when we go see the dr. Monday. I am SO thankful to have found this site, it's stories like yours that I'm looking for, because I really to try & stay positive for Jason's sake & hearing stories like yours makes it so much easier, so thank you so much! I'll post what we find out Monday. Please keep Jason in your prayers....(Jason Roach & we're in Maryville, Tn.) Take care & God Bless, Kris

karguy's picture
karguy
Posts: 1024
Joined: Apr 2009

I'm sorry you have to be here,but at least you can get some answers.I was dx with a colorectal tumor in 2008,did chemo,had surgery,and got a colosomy,and I was fine untill 2011,and a tumor was found on my liver,golf ball sized.I did chemo again,this time with out radiation.I had surgery again,and now I am ok again.Be sure you trust your doctor,and don't pay any attention to the stats,everyone is different.There are some stage 4's that are still ok after as long as 19 years.Hang in there,and don't ever give up.Deppresion is also a part of cancer,don't let it get you down,just talk to someone.Good luck.

PhillieG's picture
PhillieG
Posts: 4672
Joined: May 2005

There are many ways to approach this. What I would do first is to get a second opinion if possible and/or make sure he's going to the best cancer center he can. I'm a firm believer that what you do first makes all the difference in the world. You really want to have an oncologist who deals with this on a regular basis.

 
Also, sometimes it's better to do treatment (often chemo) first, then do surgery. It really depends on each situation. I was diagnosed 9 years ago with Stage IV colon cancer. I had liver mets and lung mets. My first Onc wanted to do surgery first and didn't have a good prognosis for me. I got a second opinion and that Onc didn't feel that the colon was an issue. I had more disease in my liver at the time so that was more important. That's the route I took and I'm still here and doing well.
 
I can't stress enough that no two cases are alike and everyone responds differently to treatments and procedures. But having a great medical team often makes a huge difference.
 
I hope this helps...
-phil
janderson1964's picture
janderson1964
Posts: 1613
Joined: Oct 2011

I am sorry you have to be here but welcome. your husband sounds very similar to me.I was 41 and having a lot of digestive issues. i finally insisted on a colonoscopy which revealed a large mass. follow CT scan revealed one spot in my liver which they cut out after the colon surgery. That was nearly 7 1/2 years ago. there are several folks on here who have been surviving stage IV  OVER 8 years.

maglets's picture
maglets
Posts: 2406
Joined: Jun 2006

well some of the survivors are lining up here to welcome you. I was diagnosed in 2005 with colon and since then have had 2 bouts with liver mets....still going strong and NED (no evidence of disease) for going on 4 years....hope hope and more hope lives here.

Phil is right....each doc will have a different approach....some like to do chemo to shrink things....some (mine) goes straight for surgery first and then after healing some chemo. Perhaps your doc will want to address the colon first and deal with the liver a little later.

This forum is a wonderful source of knowlege, experience and support.  I hope you will stay in touch as you and your hubby begin this long journey....one single step at a time.

 

much love, maggie

janderson1964's picture
janderson1964
Posts: 1613
Joined: Oct 2011

my surgeon is like yours. He likes to cut it out first. Then chemo. That has been the case all three times for me and I have to agree with him.

gizzyluv's picture
gizzyluv
Posts: 143
Joined: Feb 2013

Thank you Maggie! I have been overwhelmed with the outpouring of love I've received here! I'm so glad I found this site! What you said sounds like what Jason's dr. is wanting to do....the colon first to get the tumor OUT!!!! ( I just want it OUT OF HIM!!!!! Yell) and then he's gonna decide what to do about the liver. From what he told me on the phone yesterday, the radiologist saw a "spot" on his liver....I was assuming he meant it was a cancerous "spot", but according to what I've read on here, maybe it's not cancer at all....in all probablility, it is, but maybe not....I can always hope.

I was crying last night & Jason came in & caught me (oops) but I explained to him I wasn't crying because I think he's going to die, I was crying because I know how much pain he is facing (I had colon resection surgery for diverticulitis in '08) & it just breaks my heart to think of him hurting so much.

Thank you again for making me feel so welcome here! I will keep everyone updated! Take care & God Bless, Kris

gizzyluv's picture
gizzyluv
Posts: 143
Joined: Feb 2013

You have no idea how much better hearing this from you makes me feel! Or maybe you do know....Laughing All we know right now is the cancer is Stage 4 with 1 spot on his liver. The dr. is planning on doing the colon surgery first, then according to where the spot is on his liver he will decide the treatment for that at that time. This is all just SO much to take in! He had been having digestive issues for almost 2 years, but with no insurance (and STILL no insurance! Cry) we just couldn't afford for him to have the colonoscopy done, but we finally saved up enough money to have the colonoscopy done & I'm so glad we did.....it was almost too late. I don't know what we're gonna do about the hospital & doctor bills, but money is the last thing I'm worried about right now. My sister has started an online fundraiser, which I didn't even know existed, but we've been so blessed by people giving whatever they could afford. It all adds up. He lost his job in 2008 & has since just been doing odd jobs to bring money in, but even that has stopped within the last few months. He just hasn't felt like doing much of anything, & my job went from full time to barely part time, & now I'm not even working part time so it's gonna be a ROUGH road, but I'll be there by his side to ride it out! The lord always provides.....

 

THANK YOU so much again for sharing your story! I will be sure to let Jason read it as well. I'm so glad I found this site, maybe this way I won't end up going completely insane. lol Take care & God Bless! Kris

khl8
Posts: 809
Joined: Nov 2009

Stage 4 Cancer patients can apply for disabilty and are "rushed" through the system.  I am not sure what state you are in but start looking online and see if you need to find an attorney. The social worker at the cancer center may be able to provide more information.

mom_2_3's picture
mom_2_3
Posts: 937
Joined: Nov 2008

Kris,

I am sorry that you have to be here but I am glad that your husband was able to receive his diagnosis so that you can now work together towards resolving this issue.

I also was diagnosed with colon cancer with mets to my liver.  At the time of my diagnosis I had 5 mets on my liver and they were on both sides, the largest was a bit over 5 cm.  I was able to have a colon/liver resection and completed 7 more months of chemo.  I am now 4 years in remission (NED) and I am on a 2x/year scan schedule.

I would suggest that before Monday you purchase a notebook (preferably one with pockets) as you will be taking lots of notes during your doctor visit and will probably receive pamphlets about treatments.  Make sure you document what you and the doctor discuss.  Both my husband and I would take notes and it was interesting to see what we each captured and in some cases he would write things down I don't even remember hearing my doctor say.  Before your visit, prepare a list of questions for the doctor (assuming oncologist?).  If they are saying that a colon resection is imminent it is likely that the colon tumor is in danger of obstructing your husband's colon.  Depending upon the urgency of that surgery, however, it may be possible to consult with a surgeon regarding the liver met (if that is in fact what it is).  When you are speaking to anyone keep in mind their area of expertise.  Oncologists want to dispense chemo and surgeons want to operate.  An oncologist may not be able to give the final word on surgery.  My oncologist works with a tumor board comprised of the oncologist, colon surgeon, liver surgeon, lung surgeon, interventional ragiologist, etc.  They review each case she brings in to determine operability and treatment plan. 

The board here is a fantastic resource and you will find everyone very compassionate and helpful.  I am glad that you have found your way here.  If you ever want to speak on the phone, please PM me and I can provide my number.  I wish you all the best and will be thinking of you on Monday.

Amy

 

 

 

gizzyluv's picture
gizzyluv
Posts: 143
Joined: Feb 2013

Hi Amy, thank you for sharing. Yes, Jason's tumor is almost to the stage that it will completly block his colon, that's why the surgery is so urgent. One thing I was thinking of, do you know if a CT Scan would have shown if he had any issues with his kidneys? The reason I ask is he complains a lot with pain in his back on both sides where the kidneys are. I did mention it to the dr. that performed the colonoscopy, but he didn't seem to think it was related to the cancer. He also gets pain up under his ribcage, sometimes it's not so bad & others its VERY bad.....is that common? The tumor is in the upper right part of his colon.

I'm SO glad I found this site, I'm having so many questions answered & I'm reading so many inspirational stories that are keeping me somewhat sane. Laughing I will post an update as to how the dr. appt. goes Monday. Please keep Jason in your prayers (Jason Roach, we're in Maryville, Tn.) Take care & God Bless, Kris

mom_2_3's picture
mom_2_3
Posts: 937
Joined: Nov 2008

Duplicate.  Sorry!

jen2012
Posts: 1206
Joined: Aug 2012

Hi Kris...sorry about your news. My husband was diagnosed stage 4 in august. Be ready for many ups and downs and check in here often for great advice, support and hope! Hang in there!

gizzyluv's picture
gizzyluv
Posts: 143
Joined: Feb 2013

I sure will! Thank you for making me feel so welcome here! Kris

tachilders's picture
tachilders
Posts: 315
Joined: Jun 2012

My advice is to make sure that the surgeon talks to an oncologist prior to the surgery, as they may want a biopsy of the liver spot to determine if it is cancer.  Also, if at all possible, get a second opinion from a surgeon and oncologist from a cancer center, and don't rely on the local hospital's surgeon and oncologist.  You want to make sure that everything is done right with this first surgery, as it can impact your husband's health and prognosis going forward.  I am 46 and have stage 4 with mets all over (liver, lung, peritoneal cavity, lymph nodes, etc...) and I had my initial surgery at the local hospital.  Unfortunately, I had a significant blockage of the lower colon (sigmoid junction), so I didn't have time (and didn't know enough) to get a second opinion prior to the surgery.  The plan was a laproscopic resection and reattachment of the colon, but apparently the local folks weren't very good at reading the CT scans, as once they got in there they were shocked to find the tumor was waaaaaay larger (and had mets everywhere) than expected and they couldn't remove any of it.  In retrospect, I wish I had gotten a second opinion from a more experienced surgeon at a cancer center, as maybe they could have done something different.  As it is, the put in a colostomy, and I am stuck with just chemo at this point to try and control my cancer.  However, I am looking into other options.  Your husband's case sounds much more promising than mine, and that spot on the liver may not even be cancer.  Even if it is, a single met should hopefully lead to a good prognosis for him.  As others have said, there are stage 4 folks on here that have been around 8 or more years, and are still going strong.  Ask as many questions as you need to, ad do NOT be afraid to get second or even third opinions if you are not comfrotable with the info you are getting.  Best of luck!!!

Tedd 

gizzyluv's picture
gizzyluv
Posts: 143
Joined: Feb 2013

Bless your heart, I'm so sorry you had to go through such an ordeal. Fortunately for Jason, the surgeon in charge is highly regarded in this area as being the best colorectal surgeon in the area. Thank you for sharing your experience (although I wish it had been better for you). I took care of my mother for almost 18 years, (she passed away in 2011), & during all that time one thing I learned is that the doctors do NOT have all the answers! She was diagnosed with end stage COPD in 1993 & at that time my sisters & I were told that we would be lucky to have her another 5 years & she lived almost 18 years! So, my point is....ANYTHING IS POSSIBLE WITH GOD!!!! Just because you had a bad experience in the beginning doesn't mean the future can't be much brighter! Just keep the faith & keep praying! That's whats keeping me going! Good luck my friend....Take care & God Bless, Kris

wawaju04976's picture
wawaju04976
Posts: 316
Joined: Dec 2012

Don't look at the statistics. One thing I found out is that many CRCs are diagnosed after fifty. If one of those people has a heart attack, he can be lumped into the CRCs statistics. Write down questions/concerns THE notebook. I also write down treatments I see in forums like this. You are your own best advocate (or your husband's). This place has been a lifesaver for me. I sat in the hospital after the surgeon told me no more than a couple of years. I was devastated, of course. It wasn't until I talked to my oncologist that I started feeling better.

Judy

gizzyluv's picture
gizzyluv
Posts: 143
Joined: Feb 2013

That's certainly good advice for sure!....So, when were you diagnosed? If you don't mind sharing your story....? Thanks so much! Kris

wawaju04976's picture
wawaju04976
Posts: 316
Joined: Dec 2012

My fiance had noticed a lump under his arm in October. It was biopsied at Melanoma Stage 4. He had 4 lumps on catscan and petscan. We met w/the oncologist the Friday before Thanksgiving. The next day we took my son to the airport. I was feeling alittle nauseous. On the way home, I had dry heaves. Got home and went to bed, got back up and went to hospital. I was now having pain in lower abdominal region. A catscan showed suspicious lesions on my liver. The uterus was a little enlarged. I was given meds, call primary physician. I called her when I got home. She referred me to an oncologist, with whom I met w/the day before Thanksgiving. Thanksgiving came, by Saturday I was in such pain I drove to the hospital. I was admitted. The following morning, they opened me up. I had an abscess near the bottom of my anus, but they didn't know this because there was so much inflammation and infection. While they were in there, they biopsied my liver. They did a colostomy so the infection could settle and they could see what was there. That was Sunday. By Wednesday I was told the cancer in my liver was rectal cancer. I had surgery that Friday to remove the abscess. The surgeon went up my rectum (as far as he could because of colostomy). Rectum looked good. He then said it was colon cancer. I asked if there was a cure, told no and probably no more than 3 years. I was by myself when he told me this; he called my fiance who came right over. I made the mistake of looking up info on the internet. 2-3% live to five years, etc. Then I learned to google in a more positive way...long-term survivors of stage 4 colon cancer, etc. Things started to brighten up. So, onto the oncologist. After my second TX, I said I wanted a colonoscpy. Well, 1 flat polyp was found. That was biopsied, as well as the fistula where the abscess was. Pictures showed a nice, pink colon. Come back in ten years, I am told. So, I have colon cancer in liver (that is what the biopsy showed), nothing in my colon. But, the tx is working on the liver, so I am pleased. While I was in the hospital, my fiance started on an alternative...vitae elixxir. I call it the purple potion. I was not impressed, until I found out two people at work were at death's door (one w/stage 4 melanoma, chemo tx but the cancer kept returning; he stopped tx, went home, and someone told him about this;he tried it, scans are clean and have been for nine years; another was a woman w/breast cancer that spread to neck area...she did chemo bcuz her family wanted her to, but then stopped...started purple potion and is cancer free). When my fiance went to our oncologist, he was given his plan for chemo. The second visit, doctor says lumps have shrunk a bit (this is before he started his chemo). We joked, saying it was the "purple potion." He went and felt my liver...shrinking, scan showed reduction in tumors, one not showing. I have been doing "purple potion" for a little over a month. We decided not to put all our eggs in one basket. Anyway, that is what we are doing. My fiance started his chemo a few weeks ago. Stressful, yes. We both have stage four cancers (our oncologist just looks at us and shakes his head, as he has never seen this before...both dx with in a week of each other). I had nooooooooo symptoms...my liver functions were fine. Now, my blood work shows my liver functions are better than they were before we started, and my blood looks great. I have had four tx of folfox/avistan. I will have number five Friday.

Please remember...so many people on this site have been told they have weeks/months to live. But, second/third...opinions have changed those scenerios. Remember you and your husband are your his own advocates. It sounds good if there is only one spot on his liver, and you don't even know if the spot is cancerous. Hang in there; this forum has been a lifesaver for me!!!

Judy

gizzyluv's picture
gizzyluv
Posts: 143
Joined: Feb 2013

I've gotta know....what is this "Purple Potion" you're talking about?! I want to get my hands on it, whatever it is! Smile Gosh, I'm so glad I found this site, these stories are what's keeping me sane, no joke. Thank you so very much! Kris

wawaju04976's picture
wawaju04976
Posts: 316
Joined: Dec 2012

Google Vitae Elixxir. You will read about it being good, and you will read about it being quackery. I thought the latter until I found some real people.

Judy

gizzyluv's picture
gizzyluv
Posts: 143
Joined: Feb 2013

Hey Judy, I googled that & it looks promising....I'm gonna look more into it. The site I looked at had it for $150.00....is it that expensive everywhere? Not that it wouldn't be WELL worth that, but we just don't have it right now. I'm sure we can get it though. Thanks so much! Kris

wawaju04976's picture
wawaju04976
Posts: 316
Joined: Dec 2012

It is, but one bottle would last you at least 3-6 months.

wawaju04976's picture
wawaju04976
Posts: 316
Joined: Dec 2012

Don't look at the statistics. One thing I found out is that many CRCs are diagnosed after fifty. If one of those people has a heart attack, he can be lumped into the CRCs statistics. Write down questions/concerns THE notebook. I also write down treatments I see in forums like this. You are your own best advocate (or your husband's). This place has been a lifesaver for me. I sat in the hospital after the surgeon told me no more than a couple of years. I was devastated, of course. It wasn't until I talked to my oncologist that I started feeling better.

Judy

herdizziness's picture
herdizziness
Posts: 3402
Joined: Apr 2010

Since your husband is unemployed and has stage IV colon cancer he needs to apply for social security immediately! For stage IV colon cancer, you are fast tracked, it took 28 days for me to be approved and I had my first check the next month.  Please do this as soon as possible!  Because Medicare takes a couple of years to kick in, and he needs to apply ASAP.

Winter Marie

gizzyluv's picture
gizzyluv
Posts: 143
Joined: Feb 2013

Thanks for the info! Did you apply online or did you have to go into the S.S. office?

gizzyluv's picture
gizzyluv
Posts: 143
Joined: Feb 2013

Hey all, I just thought of a question that hopefully you all can answer....Jason runs a fever sometimes, usually at night, does this or has it happened to any of you? If so, do you know why? Thanks! Kris

Chelsea71
Posts: 1170
Joined: Sep 2012

Hi and welcome. Is it a fever or is it night sweats? If he is drenched in sweat during the night, it is night sweats. This is common with gastrointestinal cancers. It is also has other causes, for example, certain medications. If his temperature is just high, I'm not sure. Must mean he has an infection.

Good luck
Chelsea

gizzyluv's picture
gizzyluv
Posts: 143
Joined: Feb 2013

That's a good question....I know there have been a couple of times that his temp. was high (the last time it was 102.8 & I gave him Tylenol) but he also says he wakes up sometimes wet with sweat, but he has always thought he must have had a fever during the night....but, with this new information re: night sweats, that makes more sense. Thanks so much! =) Kris

herdizziness's picture
herdizziness
Posts: 3402
Joined: Apr 2010

You can apply on line, I actually had the social services people help me do it, they got all the doctor's papers and filled everything out and I just signed on the dotted line.

You can also go in person and file.  Just make sure you have all the doctor's dates, etc.

I think applying on line is pretty simple and straight forward and you don't have to wait in a line.

Winter Marie

gizzyluv's picture
gizzyluv
Posts: 143
Joined: Feb 2013

Thanks so much for the help! I will certainly get right on this! Kris

hippiechicks's picture
hippiechicks
Posts: 326
Joined: Sep 2012

Hi Kris, sorry to hear about Jason.  It sounds as though you have a great surgeon and that is important.  He will be in good hands.  Hands that may very well save his life. So yes, trust your doctors and get as many opinions as you need.

I also experienced terrible night sweats before my tumor was removed.  I also had high blood pressure and migraines.  All went away when the tumor was removed.  I also was experiencing emotional ups and downs prior to dianosis.  Thought I was getting burnt out at my job, patience wearing thin. All changed after I had the tumor removed. I was also told I had a spot on my liver that turned out to be nothing more than a spot on my liver that lots and lots of people have. So, please try not to panic about that until you get more positive results.

The day I was diagnosed stage IV, Social Services came to my hospital room and told me if I would like to file to SSDI they would help me and it would be approved immediately.  It would be a good idea as Jason is going to travel a long road and will need to be under as little outside stress as possible.  Financial stuff can really create havic in the stress area.  Your hospital may also be able to help with financial assistance for tests and treatments.  There are often programs which can be explored through the social service dept at the hospital.

All the best to you and Jason...prayers are with you.

 

sailor_on_a_lee...
Posts: 51
Joined: Jun 2012

Hi Kris,

I am sorry about Jason's dx and the rough road you have already experienced and what you are facing.  I myself was dxed in June 2012 with Stage IV Colon Cancer.  To date, I have undergone:

1.  A hemicolectomy in which almost all of my transverse colon along with a 5cm tumor were removed

2. The pathology report indicated two of 14 removed lymph nodes had cancer as did the section of removed omentum (the ones in omentum were microscopic)

3. A 12-round cycle of chemotherapy using Leucovorin, Oxaliplatin, Avastin and 5FU

4. A five-round course of stereotactic radiation to treat a single ileac lymph node that appeared metastatic

5. Currently, I'm receiving a biweekly IV treatment of Avastin along with a cycle of Xeloda 1000mg twice a day for two weeks followed by one week break then repeated.  

However, that is not why I'm writing.  I urge you to apply for SSDI benefits as soon as possible, especilly if your husband is not working.  With diagnosis of Stage IV Colon Cancer with metastasis to his liver your husband qualifies under the Compassionate Allowance provisions for those with a variety of debilitating diseases such as Stage IV Colon Cancer.  You can read more about it here: http://www.socialsecurity.gov/compassionateallowances/.  When you start looking for information regarding Colon Cancer use the term Large Intestine Cancer , which is how SSA refers to Colon Cancer.  The Compassionate Allowance program essentially predetermines that people with the diseases on the list are eligible for SSDI and expedites their approval as long as you meet the criteria for the particular diagnosis. 

In addition and since your husband does not have health insurance here is some information regarding Medicare and SSDI http://www.ssa.gov/dibplan/dapproval4.htm.  Typically, you have to be on SSDI for two years to qualify for Medicare, however, I UNDERSTAND you MAY be able to apply for Medicare since you have no other health insurance once SSDI is approved. 

You can apply online, which is what I did, from this link: http://www.ssa.gov/disability/ which also has numerous links to additional facts about SSDI. 

Please contact me if I can be of any further help.  By the way, my name is Rick.  I was feeling a bit melancholy when I registered for this site, hence the long name. 

Withing you and Jason "fair winds and following seas."

Rick

sailor_on_a_lee...
Posts: 51
Joined: Jun 2012

Hi Kris,

I am sorry about Jason's dx and the rough road you have already experienced and what you are facing.  I myself was dxed in June 2012 with Stage IV Colon Cancer.  To date, I have undergone:

1.  A hemicolectomy in which almost all of my transverse colon along with a 5cm tumor were removed

2. The pathology report indicated two of 14 removed lymph nodes had cancer as did the section of removed omentum (the ones in omentum were microscopic)

3. A 12-round cycle of chemotherapy using Leucovorin, Oxaliplatin, Avastin and 5FU

4. A five-round course of stereotactic radiation to treat a single ileac lymph node that appeared metastatic

5. Currently, I'm receiving a biweekly IV treatment of Avastin along with a cycle of Xeloda 1000mg twice a day for two weeks followed by one week break then repeated.  

However, that is not why I'm writing.  I urge you to apply for SSDI benefits as soon as possible, especilly if your husband is not working.  With diagnosis of Stage IV Colon Cancer with metastasis to his liver your husband qualifies under the Compassionate Allowance provisions for those with a variety of debilitating diseases such as Stage IV Colon Cancer.  You can read more about it here: http://www.socialsecurity.gov/compassionateallowances/.  When you start looking for information regarding Colon Cancer use the term Large Intestine Cancer , which is how SSA refers to Colon Cancer.  The Compassionate Allowance program essentially predetermines that people with the diseases on the list are eligible for SSDI and expedites their approval as long as you meet the criteria for the particular diagnosis. 

In addition and since your husband does not have health insurance here is some information regarding Medicare and SSDI http://www.ssa.gov/dibplan/dapproval4.htm.  Typically, you have to be on SSDI for two years to qualify for Medicare, however, I UNDERSTAND you MAY be able to apply for Medicare since you have no other health insurance once SSDI is approved. 

You can apply online, which is what I did, from this link: http://www.ssa.gov/disability/ which also has numerous links to additional facts about SSDI. 

Please contact me if I can be of any further help.  By the way, my name is Rick.  I was feeling a bit melancholy when I registered for this site, hence the long name. 

Withing you and Jason "fair winds and following seas."

Rick

danker
Posts: 742
Joined: Apr 2012

His age has much going for him. At 78 I was dxed with a colon tumor. Radiation & chemo before the resection left me with an ileosomy. That was reversed six weeks later.  I am now 80, and have been NED for the past 21 months. Living a normal life.  Just take it a day at atime.  Don't be afraid.

It may be a bumpy ride but it is doable.  Good Luck!

gizzyluv's picture
gizzyluv
Posts: 143
Joined: Feb 2013

All these good outcome stories is what has kept me going this week, honestly. Every night when I start to go to sleep, I find myself thinking all these negative thoughts about Jason's outcome, but then I start thinking of all the survival stories I've read here & it's then & only then that I can go to sleep....so for that, I thank you & all the members who have helped me survive this. His surgery is tomorrow, so we'll know then what we're dealing with for sure. In case you didn't see it, take a look at the post I put up re: flaxseed oil....Take care & God Bless, Kris

Chelsea71
Posts: 1170
Joined: Sep 2012

Hope the surgery is going well. Soon the wait will be over and you will have a better idea as to where things stand. Please give us an update when you're feeling up to it.

Chelsea

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