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Update from Lewvino

lewvino's picture
lewvino
Posts: 948
Joined: May 2009

I have taken a break for the past three months from the forum. I did think of everyone though!

My last post was back in October when my PSA measured .2 following three years of zero's post Davinci Surgery.

I had my retest this week per the Doctor's suggestion. The good news is my test came back again as .2.

So no increase in the past three months.

The Doctor is trying to determine a doubling time since the increase has been from 0 to .2 from Oct 2011 to Oct. 2012 (Sometime during that period it raised)

So the plan is to set back and wait and retest again in late July. That will be close to 2 weeks shy of my four year surgery anniversary.

I'm happing with this plan. If / when radiation is started I would rather know how aggresive this appears to be.

Lewvino (larry)

Swingshiftworker
Posts: 582
Joined: Mar 2010

It's statisticallly impossible to determine a "doubling time" based on a zero baseline.  Was it reallly ZERO or just a low number that they rounded down to zero? 

As I recall, 0.2 (which is where you're at) is the redline for concern for possible PSA recurrance post-surgery.  So, it's obvioulsy good that your PSA has not changed in the 3 months since that reading in Oct 2012.  Hopefully, there will be no further change in July.

Good luck!

 

 

Trew
Posts: 845
Joined: Jan 2010

Lew, I hope you can avoid radiation.  Maybe only get a few hormone shots?

Radiation is rough.  No kidding.

 

Not meant to scare you, but radiation can do things to you.

 

I am hoping and praying for the best for you.

 

 

 

 

ralph.townsend1's picture
ralph.townsend1
Posts: 343
Joined: Feb 2012

I'm praying that the .2 stays right there or lower, Zero. Maybe HT is a better choice than radiation. I know with your experience with this monster has been a long road.

Good luck

God Bless!

 

ob66
Posts: 190
Joined: Apr 2010

Wow. Every body is obviously different. In a different thread I described how easy lupron was for me, and how I loved it and called it my "lupron vacation" as lack of worries about PSA rise for two years. Now with RT, I can say it was a walk in the park. Hardly noticed it other than having to show up 38 days in a row for 15 minutes. Now Trew, you and i shared AUS surgery....That was a b*tch.....Testicles swelled and turned purple black. Pain near over the top, but then even that settled in 2-3 weeks....Maybe I am just and optimist, or maybe I am lucky with pretty good protoplasm, but some of these warnings I see are just not so in my case....JMHO

hopeful and opt...
Posts: 1119
Joined: Apr 2009

 I thought of you several times during the last few months.

I notice that you will be waiting 6 months for the next PSA; have you considered 3 months?

I wonder, who is managing your case, is it a medical oncologist tha speicializes in prostate cancer or another professional that you consider to be qualifed, why so?

My thoughts and prayers are with you.

steckley
Posts: 100
Joined: Aug 2009

Larry,

Sounds like a good plan.  

All the best to you.

VascodaGama's picture
VascodaGama
Posts: 1256
Joined: Nov 2010

Yes it is difficult to calculate your PSADT but the PSAv is Zero. You will need three results to verify aggressiveness. In any case let's hope for a continuing indolence status.

Don't rush.

VG

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