Jan 31, 2013 - 2:59 pm
Monday was supposed to be treatment 24/33 getting Dad into single digits (a smile to Phrannie here ;-) ), but tx was canceled due to what looked to be an infection on the right cheek below ear area. Rx from rad-onc MD was for tetracycline. Well, rx couldn't be filled since it is not available anymore per FDA (I've researched and there are so may various forms...it--as a drug--is available, but not in whatever format the MD requested.)
Anyway, no return calls from rad-onc (I'm not finished with that issue yet...) and by Monday evening this area (perhaps the parotid gland) was baseball sized. Dad was becoming delirious and combative and in 9-10 pain level. Couldn't stand-up. Temp 104.5 Paramedics came and throughout it all, my dad was still "dad"...Paramedics were getting an estimate of his mental status and when one of them asked if it was day or night, my dad turned at him and said, "Well, look outside. It's dark out there. That means it's night." Dad has a lot of WWII memorabilia on his walls and when he was asked what planes he flew he rattled off every single aircraft I've ever heard him talk about.
CT scan showed no tumor growth and no abscess, so they are treating with some heavy-hitting IV antibiotics. Debate is ongoing about if this was related to treatment. Perhaps the opening to the gland became swollen due to treatment...they don't know. Those of you set up for treatment keep an eye open for a mild discomfort and be aware this can happen--so fast. The danger is that it can become a sytemic infection (sepsis) and no one ever wants that. I still shake my head when some insist (primarily ER staff) says, "Radiation doesn't "do" that."
My thought???? Horsesh*t. Radiation CAN "do" that and more.
Me? I am fit to be tied about the lack of communication when Monday afternoon it became apparent the RX wasn't available. I don't know if starting him on that RX could have headed-off this degree of problem, but I guarantee I am not finished working this issue out with his team.
So, I have no idea what is next. He is pretty beat up and I hate the worst of radiation still awaits.
Thanks for listening...I really needed to vent.