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Hi to all.

merrywinner's picture
merrywinner
Posts: 620
Joined: Aug 2009

To all of my friends who know me hi and I have missed you. To those of you I do not know I am glad to meet you and hope you are finding what you need here. To everyone I hope this finds you well and staying strong. I am hanging in there but now am doing the pre followup anxiety. I will go to Rochester tomorrow for bloodwork,  a CT scan and then see my MD in the afternoon. So wish me luck and send some prayers if you would. Oh wait I go down there tomorrow but my appointments are on Friday. I had eye surgery earlier this month and I am having that checked tomorrow.  So the butterflies are starting to get active. Love to all. Mary

PS: If the remission holds it will be three years in April!! EEK maybe I shouldn't have said that.

allmost60's picture
allmost60
Posts: 3171
Joined: Jul 2010

Hi Mary,

 So happy to hear from you! I know the feeling.."followup anxiety" ..UGH! My last Rituxan infusion is on Feb 22nd and then 1 year followup CT scan the first of March. I'm anxious to get done with the R, but on the other hand I'm a little nervous and anxious finding out if everything is ok, or not. Kind of silly to get so anxious, but I think it's a pretty normal feeling we all have. I will keep you in my prayers and send positive thoughts your way for continued remission! Let us know what you find out after your scan. Good hearing from you Mary! Much love...Sue

(FNHL-Gr2-stg3-TypA-Dx6/10-age 62) 

merrywinner's picture
merrywinner
Posts: 620
Joined: Aug 2009

  You look great! Thanks for taking the time to reply. I am home now and all was well thank God(literally). Looks like my next followup will be in 9 months. I hope all goes well for you and you hang in there. Again thanks. (FNHL-Gr1-2-Stg4A-Dx 7/08) <3

Max Former Hodgkins Stage 3's picture
Max Former Hodg...
Posts: 1123
Joined: May 2012

Mary,

I just got all clean results two weeks ago, and am now 3.5 years in C.R. I have developed anemia from something, and am awaiting some further tests to figure that out, but the blood tests to not suggest cancer at this point. 

I am of the opinion that the butterflies never fly away...

max

merrywinner's picture
merrywinner
Posts: 620
Joined: Aug 2009

       I too ended up with clean results and am so thankful. Congrats on yours. Hope they find the cause of the anemia and fix that and you can carry on! Good luck. Mary

PS: The butterflies do like to hang around but they were smaller this time.

JoanieP's picture
JoanieP
Posts: 573
Joined: Mar 2010

 I retired January 18th and it is the best!!!   Just have to be old to do it:)  I had lunch with someone my Dr connected me with 4 years ago that had Follicular Stage 3 NHL.  She is almost 8 years in remission and I am coming up on 4 in June.  Praise God.  Every day is so precious.  I am so glad that you are doing well.  The butterflies never go away Max that is for sure but if I had to have cancer this is the one I would choose.  I see your precious grandchildren Mary and how is your cutie Sue?  Mine still live in San Fran but are moving to Scottsdale AZ which is closer to Tampa Florida:)   My daughter is going through fertitility in April and I am praying for a healthy baby.  Sue do you ever know what happened to Fran aka cooking girl.  I hate not knowing.   Love and blessings to all of you Joanie

Max Former Hodgkins Stage 3's picture
Max Former Hodg...
Posts: 1123
Joined: May 2012

Bless all of your happiness and good fortune. May it continue for decades !

max

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