Jan 27, 2013 - 9:27 am
As the subject line says I am new here. Just found this site this morning. I am a 69 year old diagnosed with a medium Choroidial Melanoma in my right eye in June of 2012. I had plaque radiation therapy in September 2012. The disk was in place for 7 days.
I had my first check up January 3rd of this year. I was told the tumor had not grown which is good. I receive treatment at Princess Margaret Hospital in Toronto, Ontario Canada. It was off handidly "mentioned" that I had 2 side effects. One is dry eye and the other a partially detached retina. I was told to use some artificial tears four times a day for the dry eye. The partial retina detachment is caused by leaking fluid from the tumor. There were 2 interns in the room with me and the doctor and he was talking to them not to me! I asked what happens about the partial detachment and I never did get an answer. I have very little site in my eye, certainly not useful site anyway. I had not seen this particular doctor before at any of my many previous visits, and can't say I cared for him. I have a wonderful husband and 2 daughters that are as supportive as they can possibly be, but I have reached the stage of just not talking about "C" anymore, in hopes of not putting it in their minds if they are not thinking about it.
I would so like to find out if anyone out there with this cancer has experienced the side effects I mentioned above, and what they were told. I can not get any info from any of the doctors I have seen so far. My last visit was particulary upsetting as the doctor at that time said I was to arrange for and Ct scans or ultra sound tests or chest x rays for the rest of my body to check for cancer, through my GP. Up to that point I was under the impression all would be done at the hospital. I have found this to be upsetting to say the least.
That is about it for this time. If anyone has anything they want to say or discuss with me I will be pleased to offer whatever support I can. I will also be so appreciative to read about your "C" journey with Choroidial Melanoma.
All the very best to everyone.