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Primary Plasma Cell Leukemia

VivianLee5689's picture
VivianLee5689
Posts: 546
Joined: Aug 2012

My husband was diagnosed with Primary Plasma Cell Leukemia on November 23, 2012.  It is a very rare aggressive form of Myeloma/Leukemia.  The problem is there are no forums for me to share and get support.  Myeloma people act like we have Leukemia and Leukemia people want to tell us we have Myeloma.  It is like he has both, but no anchor.  We found out yesterday because he had head an neck cancer in July that he will most likely not be a candidate for a bone marrow transplant even if they get a complete remission.  We were told in December that he has a 3% chance of living to next Christmas.  Does any one know anything about this cancer that can be helpful to me?

curtisc
Posts: 3
Joined: Dec 2012

Your question looks familiar to another question I saw a few months back. I was diagnosed with PPCL in September 2011

and I was not told good things either. Everything I read on the internet didn't have very many people surviving but after

bone marrow transplant, GOD keeping good people around me til this very day and a aggressive form of chemo I am

doing OK. I still have some issues from the aggressive form of Chemo but I'm glad to be alive

VivianLee5689's picture
VivianLee5689
Posts: 546
Joined: Aug 2012

Thanks for your reply. My husbands pPCL was in remission; however, yesterday they found three lesions on his brain.  He is no longer a candidate for a BMT.  He has a biopsy on Thursday to see if it is the plasma cell leukemia or head and neck cancer returning. Either way it sucks. 

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