Jan 21, 2013 - 2:14 am
Was diagnosed with neuroendocrine carcinoma, the same kind that is usually found in the lungs, but my tumor was on the vulva which the docs can't figure out why. Surgery removed the tumor, only 1 cm, and now started on chemo for the next 5 months. They are treating me as though I had lung CA due to the type of cells in the tumor. My CT scans were all clean, no other tumors that they can find. Anyone else with this type of not only rare cancer but growing in a rare location? The docs are baffled. Any one else?