Having a hard time with weakness fatigue. Any one else?

smalldoggroomer
smalldoggroomer Member Posts: 1,184
in Breast Cancer #1

I had a recurrence this past summer Met to lungs and spine. I was put back on chemo Herceptin, Taxotere, Carboplatin. I started reacting to the carbo so was switched to Cisplatin. After a couple of times started reacting to that too. Then put on Perjeta. It has been used in Europe for awhile I am told. Has had very good results. So I started on this one month ago of course the loading does is twice the strength. I just had my second dose ( not loading ) last Mon. I Get perjeta every three weeks. Herceptin and taxotere every week along with the other meds like steroids.I was feeling really good energy up not weak at all And I had to refill a Rx for pred. Well when they called it in it was refilled Dexamethasone. My face started swelling Breathing got harder, stared feeling weak lots of fatigue. It is a chore to get anything done. It's just so hard now. My Dr, told me that it can take 2 or 3 weeks for the Dex effects to be gone. It has been a week and I don't feel much difference. I'm not sure if it is the Dex or  Perjeta. I hope it is the Dex. What I am wondering is has anyone else had this problem on Dex. I didn't know there was a difference in steroids. Is anyone here on Perjeta? Any problems with it?

Last scans showed No active cancer I am back in remission at this point.

Thanks Kay

Comments

  • Gabe N Abby Mom
    Gabe N Abby Mom Member Posts: 2,413
    #2
    Kay, I haven't had perjeta

    Kay, I haven't had perjeta yet.  And the Dex made me jittery and anxious...it did take a while for it work out of my system tho.  I also think my face is still rounder from it.  The weakness and fatigue could be from the trouble breathing in addition to the drugs.

    I am so glad you met this doc and can say REMISSION!

    Hugs,

    Linda

     

  • Rague
    Rague Member Posts: 3,653 Member
    #3
    Vit/Min levels?

    The end of next month will be 3 yrs since my last TX (other than Femara/letrozole) and do deal with fatigue some time.  For me - it is keeping my D, K (potassium), B, thyroid and hypoglycemia levels on an even keel.  Also being sure to use my light box!

    Winyan - The Power Within

    Susan

  • CypressCynthia
    CypressCynthia Member Posts: 4,014 Member
    #4
    At a talk given recently by a

    At a talk given recently by a radiation oncologist, he mentioned that fatigue is the #1 most reported adverse effect by cancer survivors.

    However, I was recently battling fatigue and wasn't sure if it was my cancer, my cancer therapy or what?  I had my gynecologist check my thyroid level when I was there for a check up and, to make a long story short, I have a very underactive thyroid and had to have my dosage really increased. 

    My point is, if fatigue persists, it may be a good idea to have a good all around physical.  Hope you are feeling better soon.  Big (((hugs)))

  • VickiSam
    VickiSam Member Posts: 9,079 Member
    #5
    CypressCynthia said:

    At a talk given recently by a

    At a talk given recently by a radiation oncologist, he mentioned that fatigue is the #1 most reported adverse effect by cancer survivors.

    However, I was recently battling fatigue and wasn't sure if it was my cancer, my cancer therapy or what?  I had my gynecologist check my thyroid level when I was there for a check up and, to make a long story short, I have a very underactive thyroid and had to have my dosage really increased. 

    My point is, if fatigue persists, it may be a good idea to have a good all around physical.  Hope you are feeling better soon.  Big (((hugs)))

    Kay .. Are you feeling any stronger?

    Just checking on you ...

    please post when you can.

    Vicki Sam

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