Jan 12, 2013 - 2:13 am
Hello my dear CSN friends
Happy and Healthy New Year to you and you families!
I have promising news I would like to share and to vent a little. You can choose whatever you want to read.
I got PET scan results back and have discussed steps forward with my oncologist. There is no new disease, Xeloda is working - no FDG uptake. I still have sclerotic progression within several bony lesions which is typical of reparative new bone formation within treated metastases. Yeah!!
Now I can plan my vacations to Hawaii in May, Nordern California in October. On business probably to Maryland again. So Pinks watch for me, some day I will come to your town!!!
My thoughts are with all my pinks who are in pain and suffering right now. Please never loose hope, your breakthrough is around the corner, your magic drug is the one you have not tried yet or undergoing clinical trails waiting for FDA approval.
Now vent about our site. I am still upset about loss of personal messages. Those letters are irreplaceable, I treasure memories from our Pink angels, those letters hold my story and my life, some information difficult to find.
Honestly, I do not have energy to keep trying to log on 10 times a day. I do need many different fonts, however I need Spellcheck! Being a stage IV survivor who is undergoing chemotherapy and working full-time I cannot wait until 11 pm to get on. I must rest and take care of my family. I wish CSN administration could do a better job with this project plus somehow communicate with us.
So if you want to stay in touch please PM me your contact information and I will be happy to respond. You will let me know when CSN fix this site
Thank you all my CSN sisters and brothers for your continuos support, I could not achieve it without you.
Our Dear Pink Angels
you have been giving me guidance from Heaven, I miss you so much.