Jan 08, 2013 - 7:30 pm
Steve is still in the hospital with the blood clots. He was granted an LOA this am to meet with the liver surgeon. He did not feel that resection was an option,at this time, due to the extent of the disease. Felt Steve would be left with an inadequate amount of liver. Feels even sequential resections would be difficult in terms of clearing all the tumor. RFA would be difficult due to the size of the largest tumor. 4 cm. On a positive note he did say it was a tremendous response to the chemo.
I just don't think systemic chemo for life is acceptable. As far as tests reveal, the only cancer at this time is in the liver. There has got to be something more that is available to him. I am considering getting a referral to Phil's doctor at Sloan. They do the HAI pump at Sloan. The guy we talked to today said most hospitals don't use it anymore due to the new angiogenesis chemo success. It's just that we live in Ontario, Canada. It would be expensive. I don't think OHIP helps with out of country costs. If anyone knows anything different, please let me know. Also, the pump would need to be seen every two weeks. We couldn't go to New York every two weeks. I wonder if the hospital here would be able to "service" it. Not likely. Phil - Do you know of anyone at Sloan that has gotten a pump and then gone to other hospitals to have it filled (not sure of correct terminology. I'm guessing they have to put chemo in it). I looked into Theraspheres - radioactive beads. It seems to be available in Montreal, Vancouver and Edmonton. Montreal would certainly be feasible. It seems like they do it for primary liver cancer but there is an ongoing clinical trial for cr liver mets. Not sure if Steve would qualify. His history of ulcerative colitis has screwed up the possibility of taking part in some chemo clinical trials.
Any info from people would be great. Does anyone have info on the spheres, HAI pump or are there other treatments I am not aware of? Any help would be great. There just has to be something else besides systemic chemo off and on for life. My hope it to target the tumors directly and hope they get to the point where resection is possible.
Thanks a lot,