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Another Update -- PSA Still Not Below 1

Swingshiftworker
Posts: 657
Joined: Mar 2010

Took another quarterly PSA test on 12/13 and it came back 1.26.

This breaks the upward PSA trend that began 9 months ago from 1.55 on 3/26 to 1.69 on 6/26 to 2.12 on 9/14 and also follows the negative MRI/MRSI scans on 10/2.

Still don't know why my PSA won't drop below 1 BUT all things indicate that I no longer have any cancer.

RO wants to continue w/quarterly PSA testing and I asked him, given the negative MRI/MRSI scans whether this is still necessary. Asked if we could go to semi-annual testing instead.

VascodaGama's picture
VascodaGama
Posts: 1594
Joined: Nov 2010

Another update of great news. It seems that the curve is now realistic. I would keep the quarterly PSA for at least one more time.

Congratulations.

Have a good holiday season.

VG

ralph.townsend1's picture
ralph.townsend1
Posts: 354
Joined: Feb 2012

Merry Christmas, since they can't find anything thats great news.

I don't want to be negative, But if your prostate is remove and your psa is rising, something is not right. AS MDACC doctor told if no prostate = zero psa. I would still be Vigilance in the process of looking for the monster.

It was the same as being a door gunner in vietnam, 90% or more of the time nothing was at the LZ, but that 1% of the green smoke LZ was HOT. So stay Vigilance.

Maybe second opinion?

Sorry to be a downer

Swingshiftworker
Posts: 657
Joined: Mar 2010

I didn't have surgery, Ralph. I had CyberKnife radiation treatment in Sept 2010.

For radiation patients, the PSA "should" at least be below 1.5 w/in 2 years following treatment in order to improve the probability of PCa surival.

See: http://www.ipubmd.com/users/fred@usea.com/uploads/20091222142734_Postradiotherapy%202%20year%20PSA%20NADIR%20as%20a%20predictor%202009%20%20zelefsky.pdf

I'm currently below 1.5 but would like to see my PSA below 1 and closer to 0.4, which is currently the best indicator of post-radiation treatment survival.

See: http://fms.kau.edu.sa/Files/140/Researches/59178_29528.pdf

So, although my current PSA of 1.26 is encouraging, it's still a long way from .04 which would represent the best proof of a cure. Hopefully, I'll get there sometime soon.

djbuk
Posts: 24
Joined: Dec 2011

explains why psa .2 may not be cancer at all.

https://askdrmyers.wordpress.com/2012/12/19/when-recurrent-pca-isnt-cancer/

Also, this one argues that 3+3 "looks like cancer but does not behave so" http://vimeo.com/53146824

bdhilton
Posts: 759
Joined: Jan 2010

I'll be changing oncologist after my December psa (post surgery)test with my Atlanta Oncologist (great oncologist) since I've been living in and out in California the last 1.5 years and now a permanent move with family next month....Anyway, USF has a great group and I will be using this group...

ob66
Posts: 218
Joined: Apr 2010

Do you mean USF, or do you mean UCSF? USF is the University of San Francisco and I do not think they have a medical component. UCSF is the University of California, San Francisco, and it is one of the best in the world. A lot of people confuse the two, just as many people do not know that "Berkeley" as they call the University of California often, is known as Cal by most of it's grads (Berkeley being a city where the uni is located).

bdhilton
Posts: 759
Joined: Jan 2010

I should know better than this....Yes I meant UCSF...A friend played basketball for USF and I know all about Berkely being Cal it been a family school for 4 generations now....Go Cal! 

Swingshiftworker
Posts: 657
Joined: Mar 2010

Just heard back from my RO and he says that semiannual testing from now on will be fine.

Next test will be in June 2013.

Hopefully, my PSA will drop below 1 by then. In the meantime, I'm just going to bask in the glow (at least for now) of actually being a "cancer survivor."

Merry Xmas!

ralph.townsend1's picture
ralph.townsend1
Posts: 354
Joined: Feb 2012

I understand better of your condition and the psa could be at 1.0 to 3.0 with no problem.

Have a good holiday!

Kongo's picture
Kongo
Posts: 1167
Joined: Mar 2010

Glad to hear your RO considers your progress is on track! Merry Christmas to you too!

silverfox1
Posts: 36
Joined: Dec 2010

Swingshift....if I remember correctly we had the Cyberknife treatment around the same time frame...My PSA prior to treatment was 4.4 and steadily dropped to 0.2 a year after treatment and has remained there.  I will have my two year treatment aniversary this March 2013.  This morning in the newspaper there was an article on how Statins not only lower the LDL but also have a positive affect on being cancer free if you have had radiation treatment for PC.  I have been on a statin for sometime now for my LDL cholesteral issues and am not sure if it has also influenced my improved PSA results.  I just wanted to share this information with you in case it could be of some benefit.  I have benefited by the information and feed back that you and others post on this forum and just wanted to pass this information along.  Hope 2013 will be good to you!  Thank you for posting and sharing your results with us as well as the insight you have also shared.....it is appreciated.

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