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Brain Tumor-surgery Fri. - scan results, too

barbebarb's picture
barbebarb
Posts: 464
Joined: Oct 2011

Had a seizure Mon., in my car while stopping to explain scan to a friend. Luckily, he was able to get help and send me to the hospital by ambulance. Am mri and scan revealed a small encapsulated tumor. The Dr. feels best to remove and radiate.
He has residency and fellowships at Sloan and MD Anderson.
He spoke to my Oncologist at NW and she wants to go after the liver tumors that reappeared in the spot it was removed after this surgery. The lung nodule that grew did not light up. We have been watching it since March. The good news is only the reappearing liver tumor lit up and another small one. She wants to be "aggressive " in treating but I am afraid today.
Just returned to work in September and my appetite has returned to normal. Been eating lots of green veggies and smoothies with kale...
I am still very frightened wondering systemically how this colon cancer is filtering thru my system....?
I am happy to be at the hospital I work at and we have a special MRIS operating room for the neurosurgeons.
Surgery takes 8 hour.
Have had lots of supportive visitors and my ex -husband is on board and supportive with my adult kids.
Today the questions are hitting me and fear of another surgery after this one.
Any encouraging words?
I am a little apprehensive but want to believe I can get to NED again.

Sundanceh's picture
Sundanceh
Posts: 4306
Joined: Jun 2009

Understandably, you are in a state of shock. I sure was to read this news. I'm so sorry to hear about this. It's the one we don't want to hear...it's the one that has always scared me. So, I can hear your apprehension as well.

Removal and radiation is the standard protocol.

There is a lady here (TaraHK) who has been through brain mets and chemo and has done very very well...she's over 9-years and still going.

I think that she would be a good resource to tell you about her experiences and what has worked for her. I'm sure if you contacted her, she'd be glad to help you.

I don't have experience here (yet), so she's the authority there:)

How about a big hug until she gets here?

(((((BARB)))))

-c

barbebarb's picture
barbebarb
Posts: 464
Joined: Oct 2011

Hope I 'll hear from her.
It is kind of a shock-have faith in my neurosurgeon but I am worried about the whole picture.
It is small and encapsulated and will follow with radiation.
Surgery is Friday.

barbebarb's picture
barbebarb
Posts: 464
Joined: Oct 2011

Out of ICU and in a regular room. Only needed tylenol for pain.
Tumor is related to colon cancer. Will possibly know chemo plan on Wed., from oncologist at NW. Radiation will be needed.
I am very overwhelmed with fear at the moment. My last pet scan showed uptake at the spot where liver tumorwas removed and grew back. No light up on lung nodule.
Thank you for all your support.
Barb

herdizziness's picture
herdizziness
Posts: 3451
Joined: Apr 2010

Glad to hear surgery is done and your recovery is going well.
As for being scared I don't blame you, but remember this, in spirit we are all there holding your hand walking through this with you.
Hugs,
Winter Marie

barbebarb's picture
barbebarb
Posts: 464
Joined: Oct 2011

Appreciate all your well wishes.
My teletubby bandage is off - only one small tumor and it had a wet sandy texture. Neurosurgeon feels radiation would be next but must connect with my oncologist at N. Western. I am concerned about the liver tumor that has grown back since I haven't had chemo since 8/1. Ugh...
Will go home tomorrow.
Trying to tell myself each surgery may buy me NED....
Hope you are all getting your Christmas wrapping and preparations completed.
My daughter wants to get a cat that is up for adoption. We had to put our Sheltie down two weeks ago.
Thank you for all your love and support.
Barb

smokeyjoe
Posts: 1428
Joined: Feb 2011

You are going home tomorrow???     You are amazing!!!! Laughing     Have a wonderful Christmas!!!  

barbebarb's picture
barbebarb
Posts: 464
Joined: Oct 2011

Thank you!!!
So glad to be home.
The kids brought home a cat - we had to put our 11 year old dog down two weeks ago.(They are 21 and 23-son and daughter....) so glad they are with me.
Get to wash my whole head tomorrow and boy do I have a punk look.
Its amazing how we accept, adapt, and adore all at the same time when we observe and have to deal with whatever cancers throws at us.
All of the folks on this board are amazing and keep me fighting!
Merry Christmas!!!!!
I am lucky again to be here after a seizure.....
Barb

Momof2plusteentwins's picture
Momof2plusteentwins
Posts: 466
Joined: May 2012

So glad you made it home for Christmas. I hope you get a good plan to knock all of the cancer out! Merry Christmas to you and your family.
Sandy :)

wawaju04976's picture
wawaju04976
Posts: 316
Joined: Dec 2012

So glad you are home and your kids are home. I, too, have kids your kids' ages. Matt is 23 and Abbie is 22. It is very hard on them. I know it's hard on younger kids, and especially moms/dads of younger kids. But it is also very hard on young adult children.

 

Mend well, glad you are home!

 

Judy

wawaju04976's picture
wawaju04976
Posts: 316
Joined: Dec 2012

And have fun w/the cat!

LivinginNH's picture
LivinginNH
Posts: 1319
Joined: Apr 2010

Hi Barb,

Good to hear that you're not in much pain, but so sorry that you had to go through this in the first place. Rest up, and send us an update again soon.

Take care, hugs (())
Cynthia

k44454445's picture
k44454445
Posts: 494
Joined: Jul 2012

you are in a regular room & need only tylenol. i would be scared too but you have very smart docs & a whole lot of people from here praying for you! hoping your recovery goes smooth.
prayers & hugs
judy

dmj101's picture
dmj101
Posts: 527
Joined: Nov 2011

Good to hear everything went well..
I was just getting ready to ask about you...
Good Luck with every thing to come..
Don't be a hero.. if you need stronger pain med... take them I am sure they offered them to you..
Hang in there and stay strong.. we all need you here...

Chelsea71
Posts: 1170
Joined: Sep 2012

Happy to hear it's over and that it went well. Try not to be scared. You're a strong woman and you will handle whatever treatment you and your docs decide on. Wish you didn't have to go through any of this.

Chelsea

barbebarb's picture
barbebarb
Posts: 464
Joined: Oct 2011

Hope I 'll hear from her.
It is kind of a shock-have faith in my neurosurgeon but I am worried about the whole picture.
It is small and encapsulated and will follow with radiation.
Surgery is Friday.

Sundanceh's picture
Sundanceh
Posts: 4306
Joined: Jun 2009

Wishing you the very best for tomorrow's surgery...that sure was quick...that may be a blessing in a way, to not have too long to think about it.

We'll be holding you in thought, Barb E Barb:)

And wish we could do more than that...

barbebarb's picture
barbebarb
Posts: 464
Joined: Oct 2011

Thanks Craig
I am very scared today.

wolfen's picture
wolfen
Posts: 1196
Joined: Apr 2009

Just wanted you to know I'm also keeping you in my thoughts and sending you a BIG hug. It sounds like you have a very good team.

Luv,

Wolfen

Lovekitties's picture
Lovekitties
Posts: 2970
Joined: Jan 2010

I am so very sorry to hear of this latest development.

Waiting is scarey even in easier circumstances.

My prayers for you that you can find calm, that the surgery is a full success and that your recovery is easy.

Hugs,

Marie who loves kitties

herdizziness's picture
herdizziness
Posts: 3451
Joined: Apr 2010

I just want to wish you the best surgeons and an uncomplicated surgery, I'm sure you are in capable hands and will be fine.
I know that had to be so scary for you and am glad your friend was there.
I'll be praying and sending you all my best.
Winter Marie

tommycat's picture
tommycat
Posts: 790
Joined: Aug 2011

What a frightening thing to have happen Barbebarb; anyone would be shocked and scared.
Here's some encouragement for you: You've been through chemo etc. before and come out the other side NED. Your body remembers this feeling! It is going to strive to get to that place again, and with the help of your medical team, can get there again.
Hang tough (and here's a HUGE hug),
Tommycat

Chelsea71
Posts: 1170
Joined: Sep 2012

Sorry you have to go through this, Barb. However, isn't it wonderful that it was caught early while it is small and manageable! Your onc sounds like he/she has a great attitude. It seems like your main concern is how quickly the cancer keeps popping up. This is my concern for my husband, as well. In 11/2 years he has had two major surgeries and on his second go around with chemo. That is a lot of action in a short period of time. I envy those who get a break between recurrences. We all so desperately yearn for NED. I think it is wonderful this surgery is happening so quickly. Little time to obsess over it. I wish you the very best of luck and I truly believe you will see NED again.

Chelsea

tachilders's picture
tachilders
Posts: 315
Joined: Jun 2012

Do they think the brain tumor is metastisized colon cancer, or something else? Do they plan to do the liver surgery at the same time as the brain surgery, or later after the brain surgery? Very sorry to hear about these new problems. Personally, I would be as aggressive as you can be, but also keep in mind what you want to go though as well as quality of life. I would ask the onc what her expectations are with and w/out the liver surgery, so you can make an educated decision about the value of the procedure. Best of luck.....

Annabelle41415's picture
Annabelle41415
Posts: 4314
Joined: Feb 2009

I'm so sorry to hear of this new development. You are fortunate that your friend was there to get you to the hospital soon. You have every right to be scared - anyone would. You are in my thoughts and prayers for a successful surgery. Please let us know when you can, how you are doing.

Kim

Maxiecat's picture
Maxiecat
Posts: 524
Joined: Jul 2012

I will keep you in my thoughts and prayers and you get things sorted out. I am still new in my journey ...so I don't really have answers or advice for you on what to do or expect. (((gentle hugs)))

Alex

dmj101's picture
dmj101
Posts: 527
Joined: Nov 2011

I totally understand how you are feeling, but it sounds like you are in the right place to get the help you need and there is a plan.
Best of luck on Friday and please keep us posted.
I will be praying for you and sending peace and light your way...
Donna

dmj101's picture
dmj101
Posts: 527
Joined: Nov 2011

I totally understand how you are feeling, but it sounds like you are in the right place to get the help you need and there is a plan.
Best of luck on Friday and please keep us posted.
I will be praying for you and sending peace and light your way...
Donna

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

Dear barb,
best of luck with surgery and finding peace of mind with such challenging events.
I will pray for you to be well and that fear is replaced by peace.

Hugs,
Pete

Cathleen Mary
Posts: 609
Joined: May 2011

Barb, I'm sorry you have to go through still more. I am glad that you feel confidence in your team and have a plan quicklly in place.
Know that you are in my heart and prayer. Think NED again. Courage.

Hugs,
Cathleen Mary

k44454445's picture
k44454445
Posts: 494
Joined: Jul 2012

good luck with your surg. i will be praying
hugs
judy

thingy45's picture
thingy45
Posts: 584
Joined: Apr 2011

Barb, many hugs are coming your way, lucky your friend was there with you and things are being looked after.
Healing thoughts and prayers I send you.
Hugs, Marjan

barbebarb's picture
barbebarb
Posts: 464
Joined: Oct 2011

Thank you all.
My neurosurgeon believes the tumors is encapsulated and may be a met from recital cancer.
I really had no pre -symptoms except a quick autos of not feeling well firing the day for a brief couple of seconds.
I am awaiting the plan attack for a regrowing liver tumors that regrew where it was removed and another smaller one has grown on opposite side. My lung module did not light up on recent pet scan. Only the liver tumors. Its somewhat confusing how this is coming about.
The oncologists here are speaking with my oncologist at Northwestern but I don't know how this will affect treatment timing for the liver down the road.
My appetite had returned and going back to work :-(.
I am trying to put it in perspective but am kind of down.
My neurosurgeon did time at Sloan and MD Anderson and feels the tumors is small and I will have a good outcome. He will do an MRI on the tumor once incision is open. We just built this special imris room for these procedures.
Thank you for your thoughts. I will update when I can. At least the tumors is small.

barbebarb's picture
barbebarb
Posts: 464
Joined: Oct 2011

Thank you all.
My neurosurgeon believes the tumors is encapsulated and may be a met from recital cancer.
I really had no pre -symptoms except a quick autos of not feeling well firing the day for a brief couple of seconds.
I am awaiting the plan attack for a regrowing liver tumors that regrew where it was removed and another smaller one has grown on opposite side. My lung module did not light up on recent pet scan. Only the liver tumors. Its somewhat confusing how this is coming about.
The oncologists here are speaking with my oncologist at Northwestern but I don't know how this will affect treatment timing for the liver down the road.
My appetite had returned and going back to work :-(.
I am trying to put it in perspective but am kind of down.
My neurosurgeon did time at Sloan and MD Anderson and feels the tumors is small and I will have a good outcome. He will do an MRI on the tumor once incision is open. We just built this special imris room for these procedures.
Thank you for your thoughts. I will update when I can. At least the tumors is small.

barbebarb's picture
barbebarb
Posts: 464
Joined: Oct 2011

Double post

YoVita's picture
YoVita
Posts: 556
Joined: Mar 2010

What a scary thing to go through. Hang in there. Glad you're getting the surgery so soon. I'm hoping and praying for good results.

smokeyjoe
Posts: 1428
Joined: Feb 2011

Praying for good results from your surgery. Well, you found it and the doctors are going after it in the same week!!! Best wishes tomorrow.

janie1
Posts: 753
Joined: Apr 2011

Hang in there Barb. Glad they are going after this. Having the seizure and having someone right there with you is probably a blessing.
Sounds like you are in great hands.
Praying for you tonight and all through tomorrow.......i pray A LOT:)

Brenda Bricco's picture
Brenda Bricco
Posts: 558
Joined: Aug 2011

I know it's scary but please don't be afraid to dream, soemtimes dreams come true! :)
GOD'S blessings to you. :)

barbebarb's picture
barbebarb
Posts: 464
Joined: Oct 2011

Iso appreciate all your support and prayers.
My surgery time is 8:30 am.
We are expecting snow in the Chicago area...
Will check in when I am able.
Hugs to all!

Annabelle41415's picture
Annabelle41415
Posts: 4314
Joined: Feb 2009

Prayers just said for your surgery tomorrow and all surgeons and attendants assisting. May God Bless you and have the best outcome for everything tomorrow. Thanks for the update.

Kim

herdizziness's picture
herdizziness
Posts: 3451
Joined: Apr 2010

Just want you to know, we all will be there with you in spirit tomorrow, holding your hand and giving you strength. We look forward to hearing about how well your recovery is going.
Luv and hugs dear lady,
Winter Marie

Annabelle41415's picture
Annabelle41415
Posts: 4314
Joined: Feb 2009

Glad you are recovering and surgery is over with. Sorry to hear it was CC related and you have every right to be scared. You are in my thoughts and prayers. Hoping you are home for Christmas.

Kim

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