Dec 18, 2012 - 11:15 am
I haven't posted this to caring bridge as I want David to do it. We had a very sobering talk with our doctor today. I told you he consulted with the lead person in the field of PPCL last week and was encouraged to change his course of treatment. David has been feeling a little better and started asking me questions last night so I told him to ask the doctor. I remember I had to tell him the lump in his throat was cancer and I never want to do anything like that again. So this morning we had a list of questions. The doctor told us David would do one day of chemo 3 out of 4 weeks a month for the rest of his life unless they were able to get him into remission. Then he could have a stem cell transplant. Then he went on to say that only 1 in 10 get to remission and only 30% of those make it through the transplant. Then remission typically lasts up to two years. He told us he was sort, but the disease is so aggressive. He told us of one person who he treated and had the same chemo David has had so far. She had it six times and still didn't go into remission. She decided to go home to hospice. He told us he was sorry he couldn't give us brighter news. Of course I have been reading and what he says is consistent. I guess I was hoping the expert would be further along. It was hard to see David tear up and then say after they left so I'm going to die? I couldn't help if I hugged him and he let me. We both had a good cry. This is so hard and around the holidays. It all sucks.