Dec 13, 2012 - 12:56 am
I was recently diagnosed with PMP (pseudomyxoma peritonei). Only one or two people in a million get this. It basically is a tumor on the appendix that creates a jelly in the abdomen. The tumor can spread to other organs and tissues. I had the debulking and the HIPEC treatment. *Regular chemo does NOT work on this condition. HIPEC is also being used on other cancers that are a local problem. I had one emergency treatment to remove liters of the jelly, appendix, ovarian mass, and omentum. The second time I had more debulking, spleen removed and the HIPEC done. I was extremely lucky that a new doctor was on staff at my local hospital that had studied at Duke and knew right away what this was when he was consulted with. Please look into HIPEC and rare cancers if you are in doubt as to your status. In my case PMP was going on.for years and I had no idea until the very end. I hope this is helpful.