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Trouble with reactions

smalldoggroomer's picture
Posts: 1181
Joined: May 2010

Had chemo yesterday I have it every Mon. I was on carboplatin in the beginning and started having reactions to it so they had to stop it about a month ago. Put me on a sister drug called sicplatin. Well Last Mon, I had a reaction to that too. Now what? I don't know. The Dr says as soon as they can get my ins in the computer I can go on perjeta. Then I won't need to be on any of the platins. I am also waiting to get a port back in. They haven't wanted to do it because of my respiratory problems. But I am breathing much better now. Hardly use oxygen at all anymore. And my poor arm is getting sore and hard to get a IV in because of scar tissue. ( Ouch )I don't see the sergeon until the 26Th for the port. I guess he is booked up because of the holidays. So I have two more weeks at least to have them try and get a IV in my arm again. Yippee.. Are any of you ladies on perjeta yet? What do you think of it. Side effects?? I was told it really don't have to much in the way of side effects. I guess all we can do is keep on going. You are all in my prayers as always.

Your pink sister Kay,

New Flower
Posts: 4300
Joined: Aug 2009

Sorry for the side effects. Are you triple positive? When I Googled PERJETA™ it came out as (pertuzumab) is a HER2/neu receptor antagonist indicated in combination with Herceptin® (trastuzumab) and docetaxel for the treatment of patients with HER2-positive metastatic breast cancer who have not received prior anti-HER2 therapy.
If you can recall, I am also undergoing Chemo therapy for multiple metastatic tumors in my bones. My current drug is Xeloda, an oral medication which I take every day at home for a week and then I am off for 1 week.
I do remember if anybody on PERJETA, as it is a new drug.
I am glad that your conditions have improved.
Sending positive thoughts and prayers yor way
New Flower

SIROD's picture
Posts: 2204
Joined: Jun 2010

Don't recall that anyone here is using it. I did send you information in a PM where you read about women who are now using this drug the other day.

Wishing you the best with it and am glad that you don't need c02 as often.

I don't know what else one can do but keep moving one foot in front of the other. There are days that are harder than others but we do manage.



Gabe N Abby Mom's picture
Gabe N Abby Mom
Posts: 2415
Joined: Sep 2010

Hi Kay,

I'm sorry you are having a hard time with the platins and the insurance company. I can't remember if your ER/PR/HER2 status. I'm triple neg, along with the IBC. Abraxane worked for me for about 9 months, and it was pretty easy on me. I'm now on Navelbene, again it's pretty easy on me. It might be worth asking your onc about them.

I don't have any personal experience with perjeta, but it's getting good press right now.

I'm looking forward to your next update.



SIROD's picture
Posts: 2204
Joined: Jun 2010

When a drug is new, the Media gives it lots of press. That was the case for almost a year until approval by the FDA for Afinitor and Aromasin combo. I was around to see Herceptin come to market and that had lots of press so didn't Avastin at the time.

I call it Media hype. It does make people aware that there is a new drug that can be use and that is helpful, so I am not against all the hoopla.

Hoping you are doing well, Linda.


Lighthouse_7's picture
Posts: 1566
Joined: Jan 2010

Just sending some hugs and positive energy your way. I'm sorry that you're having trouble but you are a fighter. :)

aysemari's picture
Posts: 1595
Joined: Dec 2009


I really hope your side effect are manageable and
your new treatment is working out for you. Please
give us a quick update.


cahjah75's picture
Posts: 2631
Joined: Jun 2010

to hear about the problems you've been having. It's been so long since I was on CSN that I didn't know you were getting treatments again. I pray that the dr can find a drug that doesn't cause side effects. Peace and prayers being sent your way.

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