Dec 10, 2012 - 12:29 am
I was diagnosed and successfully treated for a SCC on the base of my tongue and tonsil wall about 3.5 years ago. I had 33 radiation treatments. About a year later, I had two molars extracted in the "ground zero" area of the radiation and promptly developed osteoradionecrosis. The ORN has made the cancer seem like a picnic. In September, I had about 4" of my lower left jaw cut out. Last week, I went to see a new ENT/Surgeon regarding a possible fibula flap procedure. After a 2.5 hour examination, the first thing he said to me was, "It is obvious that you have been exposed to excessive radiation."
Now here's the kicker: About half way through my radiation treatments, I mentioned to the technicians that I had a lot of pain all over the inside of my mouth. She had the on-site radiologist examine me and the doctor noticed the metal fillings I had in several of my molars. She said the radiation was being reflected all over my oral cavity by the fillings and ordered the techs/nurses to start softening wax and having me cover those teeth prior to my future treatments. The surgeon I saw last week says that by that time the damage was already done.
The ENT I saw last week is certain about the excessive radiation because all of my remaining teeth are dead. He said that shouldn't have happened. As a result of my jaw bone resection, my lower jaw has literally shifted about 1/4 of an inch to the left, so now my molars don't line up at all. He says that I can forget about eating normal food for the rest of my life as this can't be corrected. In addition, he thinks the ORN is now in my chin. I'm have a CT scan this week to confirm.
Have any of you had a similar experience?