Dec 08, 2012 - 8:57 pm
My mother has been going through the same journey as many of you, but she has been doing it mostly alone. I have read this site off and on, but she has always reuffed my suggestions that she come here, much to my frustration.
She was treated for stage IV throat cancer at MD Anderson in Orlando, starting last January. She had induction chemo, then a round of concurrent chemo and 35 rads that ended in July. The three month PET scan wasn't clean due to thrush, which has been persistent and painful. She has been on a PEG since January and doesn't seem to think she can work her way off of it. She is not doing her swallowing exercises. When we ask why, she says she doesn't feel good, and it's obvious she is just generally feeling poorly. I think she feels like she's the only one who ever finished treatment and felt crappy for a long time afterward.
If we push her to try to exercise, she says that we don't understand how she feels. But I know that you guys know how she feels. More than anyone else in the world, you guys do! So I thought that maybe I could ask that you respond in this thread, and I'll print it out for her. Maybe she'll come here to the forum later for support, but even if she doesn't, I hope it will help her feel less alone in her experience.
Thanks for any insight or encouragement you can provide.