Dec 06, 2012 - 2:53 pm
Esophageal Cancer HELP
My Husband was diagnosed at (T3 N1 Mo) in August tumor at GE junction 2.8cm inoperable he finished chemo Oct-22 and 28 rounds radiation ending November 2 on one medical document he wrote T3NoMX and another he wrote T3N1MO when ask he said there is no way of knowing for sure if its X or O ??? Why put it then.. during the last week of chemo/rad he was hospitalized for severe dehydration AFTER I placed a 2 am call to oncologist and was told to give him a Tylenol and call in the morning,immediately upon release I sought a surgeon to place a j-tube which has helped enormously with my husbands health the oncologist was very much against this., The Oncologist sent us for a ct scan because the pet/ct done before was useless the current ct done Monday says the TUMOR is now 6.2 cm and shows water around heart spots in lungs /kidney and something on his liver..NO one has explained any of this to us.....The oncologist then sent us for a second visits to the surgeon to make arrangements for surgery but the surgeon informed us he wants to wait until second week of January and for us to come back every 2 weeks between now and then to basically shake his hand again which we have gone twice already and paid to simply shake his hand. he also said that the size of the tumor could COULD just be scar tissue BUT the radiologist says its TUMOR, The oncologist also has us coming every 2 weeks for what I have NO CLUE, SO my question is this normal am I crazy? AND is there anywhere we can send all our info and have someone give us a straight answer? I'm so stressed and angry very tired of not getting any information and being treated like we don't have a right to know.