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Recurrent cervical cancer

ccfighter
Posts: 326
Joined: Jan 2012

So...1 year post hysterectomy for 2A adenosquamous carcinoma of the cervix with pelvic lymp mets, 6 months post treatment with chemo, chemo/radiation and more chemo, and a ct scan revealed a new 1.7 cm soft tissue mass is the anterior pelvis. Pet/ct coming soon. I'm so sad.

debrajo's picture
debrajo
Posts: 684
Joined: Sep 2011

So very sorry ccfighter! Maybe it is contained and the can radiate it. What are the dr.'s saying? Do you have a plain of action yet? Wishing you the best...it's almost Christmas, the time for miracles! best, debrajo

ccfighter
Posts: 326
Joined: Jan 2012

Already radiated my pelvis so that would not be an option. My doctor is waiting for the pet/ct results before suggesting a plan. I really hope nothing else comes up.

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debrajo
Posts: 684
Joined: Sep 2011

Let us know the results of the scan. I know it's right, but I absolutely hate the stay positive speech. I'm more the "Scarlett O'Hara" type,.....I'll think about it tomorrow..or the next day,ect.! Best, debrajo

NoBluess
Posts: 1
Joined: Jul 2012

CC Fighter,  I'm so sorry.  I can somewhat relate to your situation but in my case my mom is 'THE FIGHTER".  My mom has been through so much a hysterectomy, radiation, chemotherapy and is getting ready to start radiation (for a tumor that decided to plant itself on her knee) and hormonal therapy next week. As her family, watching her go through these "emotional rollercoasters" is heartbreaking and it drives me to tears everytime I see her dissappointment.  But I'm going to tell you what I tell her,  GOD is the only one that knows our true fate.  And HE gives you the ability and the choice to FIGHT or just take it.  I  hope you decide to FIGHT! FIGHT! FIGHT.  I will pray that GOD gives you and my mom the necessary strength to keep pushing forward, and whatever the future holds, know that you have a prayer warrior in Texas whose heart goes out to you and is saying a prayer just for you.  I made this for my mom for those days when she feels she has no more strenth to keep going...cling on to that.

Sending you prayers and hugs...NOELIA

 

 

"What Cancer Cannot Do...

 

It cannot cripple love

 

It cannot shatter hope

 

It cannot corrode faith

 

It cannot destroy peace

 

It cannot kill friendship

 

It cannot suppress memories

 

It cannot silence courage

 

It cannot invade the soul

 

It cannot steal eternal life

 

It cannot conquer the spirit"

 

 

 

Cancer is so limited...

 

kimmiehedg
Posts: 27
Joined: Nov 2012

I'm sad for you and I know how you feel. I am 8 mnts post hyst with same cancer and 6 weeks after my last chemo found 2 enlarged nodes in pelvise (2cm each. Having surgery on 12/10 and will shoot the areas with high does radiation (since I already had radiation as well). I'm so sad to hear you are going through the similiar thing. After my diagnosis, I decided my family needed a break from reality and we just returned from a cruise. I didnt feel that well during but it was nice to escape for awhile.
PLeae keep me posted on the next step.
Also, do you have any side effects from the radiation? Like, moderate to severe cramping (feels like bad menstraul cramps)?
As always, you are in my prayers ccfighter.................hang tough!

ccfighter
Posts: 326
Joined: Jan 2012

Kimmiehedg,
Thanks for the comments. I feel like crap. I have no pain, I have no cramps, I have no discharge. What I have is severe fatigue that has come on in the past few weeks, as well as feeling as if I have a fever but dont. My eyes burn and my chest is heavy and I dont feel like doing anything. Im anxious and naseaus and dont want to eat. I just passed my 1 year hysterversary. I wasnt having any symptoms really to warrent a CT but requested one on account of it having been 4 months since my last PET/CT and I came down with a weird 48 hour fever with vomiting. I was worried and asked for a CT of the abdomen and pelvis. Appears I have a 1.7 cm soft mass in the center of my pelvis, I guess somewhere near my bladder. Im so bummed out. Guess its time to kick some more cancer a$$. I just feel so weak right now I cant imagine this upcoming battle.
I pray for you as well kimmiehedg, and the rest on this journey. Good luck on your surgery and let me know how it goes. I will stay in touch.

kimmiehedg
Posts: 27
Joined: Nov 2012

When are you supposed to hear something? I know this new battle seems almost impossible but you are strong and will find the strength to fight. Have you ever heard of the macrobotic diet? My sister has been doing some research (plus a nieghbor of a friend had stage 4 brain cancer and has been doing this diet for 4 years now!). Anyway, I heard a story of a woman who lives a few towns from me and she was very sick. Doctors said there was nothing they could do for her and she was grossly underweight. She started this diet and one year later has no cancer in her body. I'm not sure how true it all is but I'm willing to give it a try. Anyway, I just thought I'd pass it along. I hope you start feeling better soon. Keep me posted!

ccfighter
Posts: 326
Joined: Jan 2012

Hi Kimmie,
Yes I have heard of it. When I was diagnosed my family went out and bought all sorts of books. But...my cousins husband was diagnosed with stage 4 melenoma about 5 years ago. He had no symptoms until he began vomiting and they took him to the ER. Found a tumor on the brain. Did surgery and removed it. They could never find the original source. But, he started on the macrobiotic diet while doing chemo, radiation and immune therapy as well. He died within a year. 10 years earlier he had been diagnosed with Hodgkins lymphoma and beat that. I really wish that diet would do the trick, and I am sure that it does help to some small degree. But if that were the answer there wouldnt be so many people wandering around dying of cancer. Sometimes it is all a matter of what we "believe" in, as I believe the mind has greater controll over the cells in our body than the food we eat does. Then again, I never wanted this, and no matter how hard I try to "believe" it way, it does not go. Still, I pray cry and eat. I was a vegetarian since I was 14, ate almost all fresh veggies, fruit and whole grains. I still got this cancer. Now...Ive decided I like cheeseburgers and eat them when ever I want to. Lifes too short. Do what you love and love what you do.Believe in life and open your arms to embrace all the positive energy out there. That is all I know to do.
I should find something out Wednesday or Thursday. My oncologist was supposed to look over my CT images and give me her impression and the PET/CT is scheduled for Wednesday morning which means my doctor should have it but that afternoon or Thursday. The stress of all this is probably just as toxic as the cancer. If by some small grace of God this is not a recurrence, then I need to find someone to figure out what is wrong with me because I can hardley keep my eyes open to type this.
I know that your surgery will go smoothly and you will get positive results. Im sure it will be much easier than the hysterectomy. That surgery really knocked me down. That really hurt. I was unprepared for the recovery. Are they doing yours laproscopically or with open incision? I hope you are well.

kimmiehedg
Posts: 27
Joined: Nov 2012

I also believe the mind plays a very important role as well. I was doing accupuncture duting my radiation treatments and that did seem to help out. I think I will start that again as well. Who knows if all these things really work but I feel like I have to everything I can for my kids.
My sirgery will be an open incision as my doctor needs to really get in ther and move my intenstines and bowels out of the way when they shoot the radiation in the area where the toxic nodes were. I'm hoping it won't be as bad as the hysterectomy.....as that really knocked me down as well.
You are right about the stress being just as toxic. My doctors tell me knot to worry but how can you not?

ccfighter
Posts: 326
Joined: Jan 2012

Yes, everything we can for the kids. I feel the same way.
So you are having radiation during surgery?! I have seen commercials for the Cancer Centers for America where they advertise that. How interesting. I really hope that this goes well for you. I hope that this is all that is necessary and no more extra chemo to follow. I really think that your prognosis is very good with limited recurrence to lymph nodes and nothing else. Please let me know how it all goes. I will be praying for you.

kimmiehedg
Posts: 27
Joined: Nov 2012

so, what's the good word???? I was just released from the hospital last night. I went in tues because that cramping I've been having for several weeks got so bad that even the 10mg of oxycodone and 4 motrin was doing nothing. turns out the tumor n pelvis grow some and was resting up against my ureter and was kinking it up so that my kideny was backing up and losing function. I had a sent put in throught my back......yikes did that hurt......now I have a bag indefinitely. But hey, let that be the worst thing I have to deal with! I am going in Monday for surgery and will be in the hospital all week but I will be checking in to see how you are.

Fingers crossed for you...

ccfighter
Posts: 326
Joined: Jan 2012

Thank you kimmie for thinking of me. I still have not heard anything on my pet/ct. I am so mad. I had it done on Wednesday and they told me the results would be at my doctors by Thursday. I called all day and they kept telling me the results are not in. My oncologist was not in the office on Friday and so I have suffered through the weekend with no news and I still feel terrible. I can't even be sure if it is cancer related or something else. My eyes burn and ache and it drags me down. Still no pain anywhere else. I'm so frustrated.

I'm sorry to hear that you have been in so much pain. I hope the stent eased that up for you and you will be comfortable until surgery. Are they only removing the lymph nodes or are they going to be more aggressive? I hope that it all goes smoothly and that this will be the last time you have to deal with this ugly beast called cancer. Praying for you. I will post my results as soon as I get them. Probably tomorrow. HUGS!

ccfighter
Posts: 326
Joined: Jan 2012

So the results are in and not good. Lung nodule grown and sub uptake increased and pelvic mass glowing so, stage 4B with little hope. Going to schedule surgery on the, lung and pelvis to follow. So upset. Can't stop crying.

beckyracn's picture
beckyracn
Posts: 323
Joined: May 2009

CC I am so sorry to hear of your recurrance. I've been away from this site for too long. I will be checking in on both of you ladys and keeping you in my prayers.

ccfighter
Posts: 326
Joined: Jan 2012

Beckyracn,
Good to see you back on here. I hope things are all well with you.

So, it appears that surgery for both lung and pelvis will occur at the same time. Appears the location of pelvic tumor may make it amenable to more radiation as well. Seems i am starting this whole horrible process over again. Surgery, chemo, radiation, blah blah blah. Feels like someone hit the rewind button, except now I get two surgeries instead of one. Some sort of cancer jackpot. With much worse odds of ever getting out of the game. Crap.

beckyracn's picture
beckyracn
Posts: 323
Joined: May 2009

I'm still hanging in there!

When do they plan to do the surgery? Are they going to try a different chemo this time? This really sucks that you've already taken a ride on this haunted rollercoaster and still can't get off. Wishing you the best!

ccfighter
Posts: 326
Joined: Jan 2012

Surgery is on the 20th. Will have lung resection via VATS and possibly laproscopic resection of pelvic tumor, they will go open if they have to. Done all the pre-surgery stuff (blood work, EKG, ect.) and calling everyday for cancellations to move surgery up. I think that if oncologists moved with a greater sense of urgency then more cancers would be cured. Slow motion is paramount to murder. But here I wait and let it grow, day in and day out. The lack of control over this process can drive one insane. Trying to remain hopeful in this bleak foggy cloud of sadness. Perhaps someone will send a Christmas miracle my way.

Becky-you are an inspiration to us all and hope that 5, 10, 15, 20 years from now you are still posting with reports of your good health and happiness and that dismal prognosis can be overcome. Thank you for that.

And for all of you, who post and share their experiences, I thank you. Not only does this allow for a support system but also to learn from one anothers experiences, trials and errors, ups, downs and sideways. Honestly, I probably would not have requested a CT of my abdomen and pelvis if it were't for the shared experiences here that provoked me to become anxious and unsettled in a 4 month wait since previous scans. I was without symptoms to warrent a CT and requested such because of the shared experience of others in this site and others in which quick recurrence or persistance of disease was so common for my specific type and grade of cancer. And though my CT results were not what I wanted them to be, I am so very lucky to have caught the recurrence before the tumor became inoperable. For all of you on this website, gyn cancers and others, I am so grateful for your communication and openness and sharing of this horrible disease and the hope and inspiration in which it provides me. even though I am considered "incurable" I certainly dont consider my self hopeless. So Thank You.

ccfighter
Posts: 326
Joined: Jan 2012

Had surgery on the 20 th. lung met removed vats wedge resection and pelvic tumor removed by vertical open-incision where tumor was found resting on small bowel. Had part of my small bowel resected also. Spent more time in hospital than anticipated. Still at the hospital, waiting to pass gas. I feel so much better already, despite the surgical pains, the cancer fatigue is gone. Will find out future treatment after pathology comes back.

kimmiehedg
Posts: 27
Joined: Nov 2012

Glad to hear you are feeling better already. Now hurry up and pass gas so you can get home for Christmas! I've been thinking and praying for you every day. My surgery went ok........got most of the cancer but culdnt get it all because it was to risky since it was wrapped around my ureter and next to a large group of blood vessels and a large group of nerves that control my leg. I meet with the Dr on the 26th to get staples removed and go over our next step. I was so happy to hear your surgery went well!!! Keep me posted on your next steps. Have a wonderful holiday and enjoy your kiddos!

ccfighter
Posts: 326
Joined: Jan 2012

So glad that your surgery is done and you are recovering!  I have been thinking and praying for you as well.  I am home now!  Yea! Still having a hard time getting around but doing ok.  The abdominal pain doesn't seem all that different to me as the radical hysterectomy last year.  May just be severe gas pains.  I have been  passing gas which help elevitate the pain a little.  I had a vertical incision this time.  It goes quite low near by pubic bone and so even wearing underwear is quite uncomfortable.  Then the lung surgery is just a double whammy but I am glad to get them both done at once.  I still have the onQattached to me which delivers pain meds directly to the chest so that it remains numb and I am not in pain.  It works very well.  My chest really does not hurt at all.  The only thing about that surgery that hurt was the chest tube.  Now that hurts!  My whole abdomen hurts too, but that is from the abdominal surgery.  Part of thE small bowel was removed as it was touching the tumor growing on my abdominal wall.  Ugg.  I too will find out the next stea in another week or two at my follow up appointment.  

 

Please  keep me informed on what your oncologist suggests for treatment.  Its great to have somebody to compare notes with.  I'm sorry that they could not fully debulk the tumor.  Did they radiate it during surgery?  I know they were thinking of doing something like that originally.  I hope you are recovering comfortably and enjoying the holidays with your kids and family.

beckyracn's picture
beckyracn
Posts: 323
Joined: May 2009

So glad to see you made it through the surgery safely and are home for the holidays. Hopefully you will feel up to spending time with family tomorrow. And remember...you made it to celebrate one more time. That's all any of us can ask for.

beckyracn's picture
beckyracn
Posts: 323
Joined: May 2009

Wishing you the best kimmie and glad to here your home from your surgery. I wish you only the best on your follow up visit! Hang in there!!

kimmiehedg
Posts: 27
Joined: Nov 2012

I'm so happy you made it home for Christmas!!!!!!!!  Glad to hear you arent in too much pain.  I too had a vertical incision........thankfully I just had my staples removed today......what a difference!  My dr said we will do another scan Jan 30 to see if anything is going on...........praying harder than ever!  My dr did do radiation duting surgery since he couldnt get the whole thing.  Hopefully the raidation killed any cancer cells left.........a girl can dream right?!    What is your game plan?

 

ccfighter
Posts: 326
Joined: Jan 2012

Glad to hear your post surgical appointment went well.  Staples out and well on your way to recovery.  So glad they were able to do the radiation during surgery.  I'm sure they wiped out any remaining cancer cells.  Keep on dreaming of the future girl.  You'll be there.

I don't have a game plan yet but I'm pretty sure it's going to be a long hard battle.  I'll probably be doing high dose chemo and  low dose chemo concurrent with IMRT radiation again.  Not lookingforward to it.  Trying to keep my spirits up and my positive attitude but really having a hard time with this quick recurrence.  Not to mention, since it's traveled to my lung and is a distant metastasis, well...you know, my odds aren't so good.  I guess I'm lucky that everything was able to be surgically debulked.  Now I'm fighting those micro metastasis.  

I will let you know my plan when I have it.  In the mean time still trying to work though the chest pain associated with the lung surgery.  Ouch!

mroberts0326
Posts: 1
Joined: Dec 2012

I was diagnosed with cervical cancer on July 5, 2012 through biopsy.   I had a radical hysterectomy (using robotics) on August 30, 2012.   The doctors sent everything to be biopsied and out of 14 lymph nodes, 1 came back positive for cancer.  I had to heal so I waited 6 weeks to start treatments.  I am just now finishing up with 25 external radiation treatments, 6 internal radiation treatments and 5 chemo treatments.  I have felt pretty good through this whole process.  Chemo was a weak dose (cysplatin) so I didn't even lose my hair.   Worst week was the last week of radiation and they said that is a cummulative effect of the treatments.  After reading all the comments on here, I am terrified that it will come back.  I go back on January 16th and they will tell me what future scans are in store for me.  What do you all think I should request be done and how often??  Also, does anybody know if the Cancer Treatment Centers of America will see you just to do a PET scan or like 2nd opinion.  I know they are for advanced cancer so just curious.   Thanks in advance!! 

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smotsch
Posts: 2
Joined: Dec 2012

I am not familiar with Cancer Treatment Centers - the biggest problem I had was getting my insurance to approve the PET Scan.  I only had the one a few days after my diagnosis and haven't had to have any more (5 years ago).  I look forward to reading wht you find out. 

 

ccfighter
Posts: 326
Joined: Jan 2012

I'm sorry you have had to deal with this disease.  Usually the follow up surveillance is a pet/ct done three months after completion of treatment and then a ct scan every 3-6 months for two years then continued scans and paps for another three years.  Good luck.  Trust your intuition.

smotsch's picture
smotsch
Posts: 2
Joined: Dec 2012

I am saddened to hear of anyone having to go through a 2nd round of treatments - as if the first aren't bad enough.  I am 5 years out from Stage IIB and am always fearful that I will have a recurrence.  I was looking for more information on where recurences occour.  I thought it was the lungs but after reading here I am questioning that. 

 

Stay strong - allow others to help - never give up!

ccfighter
Posts: 326
Joined: Jan 2012

Congratulations of your 5 years cancer free!

ccfighter
Posts: 326
Joined: Jan 2012

Surgical follow up today and all path came back as recurrent cervical cancer and will soon begin 6 rounds of chemo with yet to be determined poison.  Perhaps radiation will follow.  Prognosis is 10% for disease free survival.  Not too happy.  Any suggestions on how to be part of that 10%?

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debrajo
Posts: 684
Joined: Sep 2011

So sorry dear....but why NOT you(in the 10%)?  SOMEONE has to make up the stats,why not ccfighter?  Will be praying for the 10% solution!  Best, debrajo

kimmiehedg
Posts: 27
Joined: Nov 2012

is that what the prognosis is for recurrent cervical cancer?  I thought you couldnt do radiation if you already had it in your pelvic region? 

maybe you are in the 10%............the art of positive thinking.......it's hard isnt it??

 

 

 

ccfighter
Posts: 326
Joined: Jan 2012

Yes, the 10% is given for recurrence but probably worse for me since I have a lung met also, which of course is a distant metastasis.  The metastasis in mypelvis in on the abdominal wall.  This is tissue that was not targeted for radiation previously, as originally the radiation is targeted to the pelvic lymph nodes and their surrounding tissue, the vagianl cuff and the pelvic side walls.  this tissue is very close to the previously radiated tissue and requires me to seek out an excellent radiation oncologist that feels comfortable radiating so near the other tissue.  Essentially, the radiation has to be controlled to only penetrate as deep as my abdominal wall and no further as that would re-radiate the pelvic area.  All this really worries me and i wish my oncologist would have just been moree aggressive surgically so I wouldn't have to worry about radiation.  AHHhH!  I hate that I don't have any control over any of this.  I'm fighting a battle with a double edge sword and no armor.  And my opponent does not fight with any honor.  

ccfighter
Posts: 326
Joined: Jan 2012

Starting chemo next week with carbo/taxol?  Ugg.  Those are long infusions days.  Going bald again.  Seems my tumor has been sent out for chemo sensitivity testing and will change cnecessary that test comes back with a better chemo.  Radiation will be included somewhere in the mix.  Don't know where yet.

babe12
Posts: 37
Joined: Jul 2012

God bless you ccfighter, you are such a brave woman with an incredible attitude. You inspire so many and I wish you the best with your treatment. You are so young and a fighter, you can do this!!!!!!

ccfighter
Posts: 326
Joined: Jan 2012

Thank you Babe 12,

If nothing else, I hope I can ease the fear of the unknown for the next whose misfortune finds them engaged in this battle.

God's Speed, and positive energy for us all.  Be well.

ccfighter
Posts: 326
Joined: Jan 2012

Got second opinion.

Dr thinks another surgery to get better margins or radiation either standard or cyber knife.  Doesn't have much faith in chemo for cervical cancer.  Now I have some thinking to do.

kimmiehedg
Posts: 27
Joined: Nov 2012

cc.......glad to hear you got a 2nd opinion.  are you up for another surgery?  i thought you had good margins on this past surgery?

 

ccfighter
Posts: 326
Joined: Jan 2012

The lung resection was fine but the pelvic tumor the closet margin was 1 mm.  It's freaking me out.  another surgerywould not be fun, especially since they may have to do some reconstruction of the abdominal wall to close me, but of it is the matter of getting it all out in hopes I never deal with this again than that is what I must do.  it would certainly be more effective than chemo.  Though,I would probably do chemo after surgery anyway.  Since this recurrence is in an area that is amenable to surgery, then I think that wold be my best shot.  Really just wish it was done right the first time around. 

 

How are you kimmie?  Feeling good?

May1976
Posts: 2
Joined: Jan 2013

I am new to this site.  I did not know that these sites existed.  I have all these things happening and did not have anyone to talk to that knows what I am going through, though at the same time I am sorry that others have to go through this terrible disease.   I was diagnosed with stage IB1 squamous cell carcinoma of my cervix in November 2009 and underwent a radical hysterectomy.  At that time I went through chemo radiation treatments.  I was okay for a year and then in March 2011 the cancer came back.  I completed 10 cycles of chemo at md Anderson but then had to stop because of blockages And the excrutiating pain that came with them.  The next couple of scans came out clean but then this past September they did a biopsy on my ovaries and it came back as metastatic  squamous cell carcinoma.  They were unable to do surgery because the tumors that are on my ovaries and blader are also stuck to blood vessels.  I am getting attacks of unbearable pains in my abdominal area.  It feels like it did when I had the blockages, but the doctors say I don't.  It feels like the worst gas pains in your life, my stomache feels very bloated, i can't go to the bathroom and no amount of pain medication helps.  i have to go to the ER, and only after they put in a catheter and I am on IV pain meds for a couple of days does the pain subside.   I go home for a few days and then it starts again and I am back in the hospital.  Has anyone had this happen to them and found a solution?  The doctors say I need to have chemo again, but if I am getting these attacks without chemo I am terrified of what will happen with chemo.  Any advice would be appreciated.  

May1976
Posts: 2
Joined: Jan 2013

I am new to this site.  I did not know that these sites existed.  I have all these things happening and did not have anyone to talk to that knows what I am going through, though at the same time I am sorry that others have to go through this terrible disease.   I was diagnosed with stage IB1 squamous cell carcinoma of my cervix in November 2009 and underwent a radical hysterectomy.  At that time I went through chemo radiation treatments.  I was okay for a year and then in March 2011 the cancer came back.  I completed 10 cycles of chemo at md Anderson but then had to stop because of blockages And the excrutiating pain that came with them.  The next couple of scans came out clean but then this past September they did a biopsy on my ovaries and it came back as metastatic  squamous cell carcinoma.  They were unable to do surgery because the tumors that are on my ovaries and blader are also stuck to blood vessels.  I am getting attacks of unbearable pains in my abdominal area.  It feels like it did when I had the blockages, but the doctors say I don't.  It feels like the worst gas pains in your life, my stomache feels very bloated, i can't go to the bathroom and no amount of pain medication helps.  i have to go to the ER, and only after they put in a catheter and I am on IV pain meds for a couple of days does the pain subside.   I go home for a few days and then it starts again and I am back in the hospital.  Has anyone had this happen to them and found a solution?  The doctors say I need to have chemo again, but if I am getting these attacks without chemo I am terrified of what will happen with chemo.  Any advice would be appreciated.  

ccfighter
Posts: 326
Joined: Jan 2012

Hi May 1976.  I am sorry that you are in so much pain.  I personally have not experienced the kind of pain you are talking about.  Have they considered radiation to ease the pain since they can not do surgery?  Have they suggested you keep the catheter in at home for a while so they can come up with a better way to manage your pain?  I hope that you get this resolved soon.  (((hugs)))

ccfighter
Posts: 326
Joined: Jan 2012

HavE decided to go with radiation over surgery.  Finally got a chance to talk to radiation oncologist who thinks this tumor was not in the radiation field and that he could apply electron radiation to the area and complete in a matteroff 5 days.  So,still waiting on the chemo sensitivity test to know the type of chemoJill be getting and will take it from there.  Hugs to all.

kimmiehedg
Posts: 27
Joined: Nov 2012

I think thats a good choice.  I just got the results from my scan from my 12/10 surgery......large tumor that was the problem last time looks bigger but dr said that he believes it is dead tissue and just swollen right now from the high dose radiation during surgery.   I do have 2 new spots, one that is a concern to him, so I will get pet scan 1/30.  I never asked until this last visit if this was incurable and he said yes and stupid me asked what is the typical life span........1 year!!!  i year!!   What am I supposed to do with this?????  I'm so sad I dont even know what to do.....................

 

 

 

 

 

 

 

 

 

 

 

 

ccfighter
Posts: 326
Joined: Jan 2012

Kimmie, I'm sorry,

 

But doctors can't predict the future and treatment can keep this disease at bay for much long than a year.  There are so many new therapies being researched right now and I know there will be a cure for this soon.  Did your doctor mention an clinical trials or any other treatment plan to you?  You should ask him to get the caris testing done to see what chemos will be most effective on your cancer.

Where are these new spots?  I hope the pet/ct  show's them to be benign.  Keep up the fight.  You can beat this.  You are strong.

kimmiehedg
Posts: 27
Joined: Nov 2012

I know they can't but it's so scary to know that poeple with this type of recurrent cancer typically only live 1 year.........it just kind of is that blow that needs alot of getting up from! 

You are radiating where your tumor was found right?  Did you do the caris testing to see what kind of chemo works best for your cancer?  Has your doctor said anything to you about survival, etc???

Have yo been feeling better?  I was flipping through this new macrobiotic diet book and flipped to this page that says that marijuana is known to slow the growth rate of cancer cells.................I don't smoke the stuff but I told my husband I may have to give it a try! 

But seriously, please keep me posted on you and your atest treatments.  I think if we all share our different findings, it's got pay or=ff right??? 

Thanks for all your support.  Biggest hugs to you !!!

 

ccfighter
Posts: 326
Joined: Jan 2012

It is scary.  I spend all day researching but really just end up spinning in circles.  And definitely sharing information gives up much needed options, support, ect.  One doctor doesn't know everything.  Perhaps pooling all the doctors ideas gives us a better way to form our own opinions on treatment options.  

Yes I will be having radiation to the area in the pelvis where the tumor is located.  I will also be doing systemic chemo but the caris report is not in yet and so don't know what that will be.  Not looking forward to any of it.  Been there.  Done that.  Don't want to go back.  But...don't know what else to do.  Mostly I get tired and my eyes hurt.  Recently my upper gastric region has been hurting.  I don't know why.

My doctor said my prognosis is not good.  10% at best.  Really, she is being optimistic by saying that.  I've read.  I know.  This sucks.

I have heard about marijuana slowing cancer progression.  I smoked a little while under going treatments before but don't handle it real well.  Makes me really anxious.  Too bad the same cant be said for cigarettes.  I used to smoke those with no problems.

Curcurm, omega 3's for fish oils, ginger, mushrooms all have properties to slow cancer growth.  

Where is the location of the new spots your doctor is worried about?

kimmiehedg
Posts: 27
Joined: Nov 2012

My mom took me to a faith healer last weekend and said I need to be on vitamon D 10,000 units a day immediately and also gave me this recipe that supposedly dries up cancer cells.    You take 4 dark purple egglplants, cut off greens, slice into 6 pcs each and add 2 gallons of water.  Brig to a rapid boil and boil for 2 hours.  Take off heat and let sit for 6 hours and strain.  When cool transfer to a jug.  Drink 3 oz in the am on an empty stomach and 3 oz befre bed every day.  The active enzyme solasodine glycoside in this is supposed to dry up your cancer cells.  Take this until you have no trace of cancer left in yur body.  Worth a try, you think?

I'm not sure where they are....I kind of zoned out after he said I had 2 new spots.  I think he said one where some where around my bowel or someting and that is probably what has been causing my pain for the past few months but its just popping up now.

Listen, if you every want to talk, cry or anything, you can ALWAYS call me day or night. 

Lets beat thsis nasty thing!  I kow you arent up for those treatments again.....I most certainly dont blame you but hang in there.......your a =one tough cookie!!!!

 

Kim

 

kimmiehedg
Posts: 27
Joined: Nov 2012

My mom took me to a faith healer last weekend and said I need to be on vitamon D 10,000 units a day immediately and also gave me this recipe that supposedly dries up cancer cells.    You take 4 dark purple egglplants, cut off greens, slice into 6 pcs each and add 2 gallons of water.  Brig to a rapid boil and boil for 2 hours.  Take off heat and let sit for 6 hours and strain.  When cool transfer to a jug.  Drink 3 oz in the am on an empty stomach and 3 oz befre bed every day.  The active enzyme solasodine glycoside in this is supposed to dry up your cancer cells.  Take this until you have no trace of cancer left in yur body.  Worth a try, you think?

I'm not sure where they are....I kind of zoned out after he said I had 2 new spots.  I think he said one where some where around my bowel or someting and that is probably what has been causing my pain for the past few months but its just popping up now.

Listen, if you every want to talk, cry or anything, you can ALWAYS call me day or night.  My cell is 216-240-7404.

Lets beat thsis nasty thing!  I kow you arent up for those treatments again.....I most certainly dont blame you but hang in there.......your a =one tough cookie!!!!

 

Kim

 

ccfighter
Posts: 326
Joined: Jan 2012

My mom has been trying toget me to an energy healer.  I'm game, it just hasn't paned out.  Do you watch through the worm hole with Morgan freeman on the science channel?  There was an episode where science proved that daily meditation and energy work can alter genes and can be used for self healing. Worth a try.

Please edit your last post and remove your phone number.  This is a public forum and now anyone can see it.  Send me a PM with your number.  I'd love to talk.  I'll send you a PM in case you don't know how.  

Id find out exactly where these new spots are and if they can be surgically removed.  With the abdominal tumor I had it was resting on part of my small bowel and where they were touching was removed also.  So, bowels can be resected.  If they asame all, the sooner the better to get them out.  Surgery sucks but it's our best chance.

I love eggplant.  Certainly worth a try.

Also, caffeine, melatonin and red wine.  Which makes me happy.  Wouldn't want to live without coffee and wine.

Hang in there.

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