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Latest Scan Results

PhillieG's picture
PhillieG
Posts: 4658
Joined: May 2005

I often don't post about my scans anymore. They've basically have been the same or go in cycles. My latest one is no different but since it's been a while I thought I'd get "up to date". It's also a time for reflection and to give thanks.

I give thanks to my Oncologist, the surgeons who work with her, her staff, and especially the chemo nurses who aside from being the nicest nurses I've ever had they are also the cutest ones :-)
Without her experience and innovations in the treatment of Colon Cancer I have little doubt I would be here today. This seems to be something that's often overlooked. Doctors DO matter.

My CT scan showed that the three "spots" I've had are still stable. One is in/on a lymph node close to my lung(s). An artery runs through it so it's not ablatable. It's been stable for over a year. IF it grows and action is needed it would be treated via Cyber-Knife. I have two other small nodes in my lung(s) that continue to be stable. I am continuing with Erbitux and Irinotecan every other week until I no longer do those treatments.

My CEA is stable at 1.9.

It's basically chronic at this point and that's fine with me.
Sometimes it's hard to stay Upbeat when one feels Beatup but it's up to us how we handle what life hands us. It's less about being dealt a good hand and more about playing a poor hand well.
I have much to be thankful for...
-phil

lauragb
Posts: 368
Joined: Aug 2011

Phil,
It's great to read of your stability but I am sorry the price you have to pay for that.
Yet, you do remain UPBEAT more often than not, handling that hand impressively. Thanks for sharing your status on here.

And....
I have to agree with about Oncology nurses. They do rock!

Laura

janderson1964
Posts: 1343
Joined: Oct 2011

Great news. You are an inspiation. Thanks for sharing. I hope you enjoyed your Thnksgiving.

Jeff

johnnybegood's picture
johnnybegood
Posts: 1120
Joined: Oct 2008

Phil for the scan update.i often wonder how many spots you have and where they are located.you are many of the true fighters on this board in the sence that you have been fighting for many years.i truly look up too you and sometimes say to myself if Phil can do it so can I.Happy Holidays my friend....Godbless..johnnybegood

maglets's picture
maglets
Posts: 2389
Joined: Jun 2006

thank you for that update Phil.....hi johnny.....I too am sorry that you have to keep on with the chemo Phil ....I always like to see posts from some of us oldsters.....

Hope your holiday season is peaceful Phil and that you continue in this stable mode

best love, mags

Brenda Bricco's picture
Brenda Bricco
Posts: 547
Joined: Aug 2011

Phil, you have been at this a long time... I bet you do feel beat up. I am glad you posted about your scan and being stable, it helps keep the hope alive for us all. I hope you find a way to keep your spirits up because when you are in high spirlts, I get a kick out of you ( I think you know that you are a stinker - I say this with the upmost endearment) hehe.
I pray that you stay stable for atleast 50 years. :)
Brenda

Cathleen Mary
Posts: 464
Joined: May 2011

Thanks for this posting, Phil. Your attitude and your posts have often made a difference for me and this one does, too. There is a lot too be said for putting one foot in front of the other. I, too, believe doctors DO make a difference and it is worth the effort of finding the right team.
Thank you. Wishing you many more years of "chronic". It's not such a bad word.

Cathleen Mary

Annabelle41415's picture
Annabelle41415
Posts: 4106
Joined: Feb 2009

I'm glad that you are still stable and the treatment continues to work for you. It's important to have such a great team working for you along with you trusting them. Sounds like a good report.

Kim

z's picture
z
Posts: 1227
Joined: May 2009

I like seeing good news posts. Stable is great. I had the best looking oncologist and anal surgeon ever, and this helped me go to my dr appts. My oncologist has been in Lung Cancer Screening commercials. I wish you continued good news. Lori

YoVita's picture
YoVita
Posts: 528
Joined: Mar 2010

You're a rock. Thanks for letting us know your status. I've been curious about your treatment and scans. Love your attitude - "playing a poor hand well". I too have much to be grateful for this Thanksgiving.

YoVita's picture
YoVita
Posts: 528
Joined: Mar 2010

You're a rock. Thanks for letting us know your status. I've been curious about your treatment and scans. Love your attitude - "playing a poor hand well". I too have much to be grateful for this Thanksgiving.

Kathleen808's picture
Kathleen808
Posts: 2241
Joined: Jan 2009

Phil,
Thanks for the update. I know you appreciate being stable and seeing that you are incredible you are able to live with chemo every two weeks. I pray that at some point you can move from chronic to NED but I also know that in the meantime you will live life to the fullest.

Aloha,
Kathleen

JayhawkDan's picture
JayhawkDan
Posts: 206
Joined: Apr 2012

Phil, you're one of the guys that I think of when I get down and wonder if, and when, this thing could go south. I think, well, Phil has hung around a long time -- what the hell, maybe I can too. Glad you're stable and living life. Happy Holidays! Dan

Chelsea71
Posts: 1154
Joined: Sep 2012

Thank you for your post. It came at a good time for me. Feeling very down in the dumps due to Rick passing away. I realize this sounds selfish as I did not know Rick nor do I know Cynthia. Don't get me wrong, I'm sad for the the years that have been taken from Rick. I'm sad for Cynthia and the kids, who must move on without him. But also, I'm scared and sad for my husband and myself and what inevitably lies ahead for us. Ricks situation reminds me of Steve's (my husband). I know you should not compare peoples cancer. Everyone's situation is different. But there are some similarities with their cancer. Even though Steve is going through chemo and has cancer in his liver and possibly elsewhere, he seems fine. You would not know there's a problem. He looks normal, acts normal. Sometimes I look at him and I just can't believe it. George and now Rick's passing has been a reality check for me. I'm sure this is the same case with many others who take part in this group.

Your situation brings hope to many of us. My wish is that Steve will be able to manage his cancer like a chronic disease in the same way that you have. Unfortunately, your situation seems to be unique. I know you attribute a lot of your success to your onc and her colleagues at Sloan, however, I think you deserve a lot of credit. It takes a tremendous amount of work to stay physically and mentally strong. Thank you for sharing. Your up-date has cheered me up. Have a nice Thanksgiving weekend.

Chelsea

Aud's picture
Aud
Posts: 476
Joined: Oct 2009

I am happy for you that things are still stable. Thank you for sharing your "attitude of gratitude." I too have much to be thankful for.

steved
Posts: 836
Joined: Apr 2004

Thanks for taking the time to update us. I do think it is important to show how this cancer can be managed as a chronic illness with good quality of life rather than an inevitable decline. I also agreed with Chelsea above about acknowledging the role you play in your own illness. I do think that the patient themselves does have a significant influence on the path their illness takes and staying positive, engaging actively in treatments, maintaining 'life' outside of cancer, remaining motivated to work hard at recovery etc are all things we can do ourselves that does influence how our journey with this illness will be. You illustrate this well and as a result I think that you have won one of the greatest challenges we all face along the way of maintaining some sense of control over this whole chaotic process.

Thanks again,

Steve

smokeyjoe
Posts: 1428
Joined: Feb 2011

Phil, everyone above have expressed what I was thinking...I don't have much to add as they've said it all. Thanks for posting....I always wonder when you have scans and what they're showing.....so thank you for answering those questions.

PhillieG's picture
PhillieG
Posts: 4658
Joined: May 2005

Thank you all for the kind words and well wishes.
It has been a rough year on this site for many. We never know what lies ahead for ANY of us. I often use the example of being hit by a streetcar but I use it as an example that just because many on here has cancer there's nothing that says we'll die from cancer. We may not get hit by a streetcar either since they're not as plentiful as they once were.

I stay connected to this site even if I don't post often. There's plenty of better qualified folks to field the majority of the questions and for someone who's just starting this "journey" and doing chemo, I don't think they want to hear about me doing over 320+ treatments! I chime in when I feel I have something constructive to offer.

I wish that none of us had to deal with cancer but I will say that I've learned more about life while facing death.
Hugs to all...
Phil

thingy45's picture
thingy45
Posts: 561
Joined: Apr 2011

annything stable is GREAT, it is livable and acceptable.
Congratulations Phil. Allways good to hear when someone is doing good, it gives us all hope for the future and that is all we have, hope and a future.
Hugs, Marjan

danker
Posts: 680
Joined: Apr 2012

My oncology nurse told me "be good to yourself." So I finally bought the Mustang of my dreams. And just love it--- Good advise. LOL

dmj101's picture
dmj101
Posts: 521
Joined: Nov 2011

Good to hear from you Phil, your news is very heart warming. And I agree the people treating us along this journey make the difference.. I wish I had some male nurses.. when I had chemo i had all male techs...
Well good luck my friend.
We have lots to be thankfull for..

LivinginNH's picture
LivinginNH
Posts: 1215
Joined: Apr 2010

Hi Phil, Well dear, your results of being stable has managed to give me a slight smile for the first time in days. That's really wonderful news, I am so glad that you continue to keep the buggers at bay.

Hugs,
Cyn

k44454445's picture
k44454445
Posts: 494
Joined: Jul 2012

congrats on being stable! great news!!!
judy

Varmint5's picture
Varmint5
Posts: 369
Joined: Feb 2012

And I'm so thankful that your scan shows "stable." Wow, 320+ treatments - that is astounding. I hope you are still doing well with the treatments. Your story has given me such hope and reassurance. I love to hear it every time you post. I hope you stay stable until you are cured. Best wishes to you.

Sandy

tommycat's picture
tommycat
Posts: 790
Joined: Aug 2011

PhilieG---you are simply amazing!!!
Thank you for everything you do one this Board: The laughs, the support, the calling out the BS.
Very glad to see you sharing this excellent news.
Tommycat

SharonVegas's picture
SharonVegas
Posts: 189
Joined: Feb 2012

Great news! That's the thing, if you've never battled cancer you might not know that being chronic and stable is some of the best news you can hope for.
Thank you for sharing, this bring a smile to my night :-)
Ron

jen2012
Posts: 1130
Joined: Aug 2012

Thanks for the update - you are an inspiration. Your mindset is great, it makes me wonder about the beginning. Did you think in the beginning that you'd still be here today helping others cope? How did your family handle it? I feel like my husband handles it better than I do most times. He says he doesn't think about it any more than absolutely necessary and feels he just has to trust the doctors to do the right thing. I wish I could be so trusting, but I feel like I want to question everything the doctor says/does.

jasminsaba
Posts: 149
Joined: Jul 2011

Phil - I am so happy to hear things are stable ... I know you must not be very excited to think of this as a chronic condition - but chronic, in this case, is truly a blessing. You, my friend, have played your poor hand very well ... to the tune of many years and hopefully many more to come.

All the best.

Kathryn_in_MN's picture
Kathryn_in_MN
Posts: 1258
Joined: Sep 2009

Stable is good - and your CEA is great!

If you are feeling beat up, why not take a couple weeks off over the holidays and then resume? Quality of life counts too. My last chemo combo almost killed me. I'm stopping for now.

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