Nov 23, 2012 - 9:04 am
Hi all. I am so glad I found you. My husband had his first surgery to get more diagnostic info. They scoped him under general and took 4-5 biopses....nasoph, both tonsils, BOT, and one lower down. The MD said the only suspicious one was the left tonsil. He said that depending on the path results, he recommends davinci surgery and then rad (no chemo). Our other choice is rad and chemo. We have 2nd opinion at Dana Farber on Tues. They probably won't have path results....but will give us an idea from what they know and at least I'll get a sense of how I feel about them. His pet indicated left tonsil and left lymph node. They are testing for HPV.
Lots of decisions and I feel a bit lost...like I need more info or more research. We just want to make sure it is all out and gone like everyone else....but of course there are no guarantees....makes the decision hard. One question we intend to ask is....if we leave chemo out for now.....is that a card we can play if it recurrs. Or can we use that again even if we use it now?
OKay....just wanted to keep you all in the loop. DF on Tues and then meet with original MD/ENT who did surgery on THurs after path results are discussed by tumor boards. I feel good. He feels good (albeit a nagging sore throat at times)...but he knows this is nothing compared to what's ahead. We just want to start being active against this invader.
Hope you all had a great holiday.