Nov 18, 2012 - 11:06 pm
Been a while since I've been on the board, been busy which is a good thing, working again part time, still dealing with side effects from cancer. I was diagnosed with anal cancer that spread to my rectum and some of my lymph nodes. I the myomiticin and 5 FU chemo and 5 weeks of radiation. I also had a colostomy. My problem was that I had a severe abdominal infection along with 2 recto vaginal fistulas due to that "wonderful" mesh they used to repair prolapse 4 years ago. Anyway, I finished Chemo/radiation in beginning of July 2011, repair of fistulas in Nov 2011, then thank God...a colostomy reversal in Feb 2012. The reversal has gone well, and I'm happy I decided to try it. I had a PET scan in June 2012. It came back clean, with the area where the original tumor was noted as "to watch", as they couldn't tell if something was going on or it was damage lighting up.
Well, I have developed numerous hernias due to the damage to my abd wall muscle from radiation and infection. I have to wear a binder to help with pain management.
So here is the question, for those of you who have it reappear, how soon after finishing your 1st round of treatment did it come back? My symptoms started 3 weeks ago, lower dull back pain, I can't sleep on my belly, if I wake up and try and turn over it is as if someone is sticking a knife in my back. My stool is formed, but it can alternate with loose stool. I am also having a lot of mucus, clearish brown, and have a little bit of blood (very little), and a couple of mild itching.
I'm calling the doctor tomorrow, but I don't want to appear paranoid. I'm just wondering. My body didn't handle chemo well at all, the radiation was fine. I'm kinda scared...