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Posts: 670
Joined: Apr 2010

Plese keep us informed. I am curious to know what kind of treatment they suggested. Be well and I wish good health for your sis.

crystalblue1208's picture
Posts: 38
Joined: Apr 2012

Unfortunately, she is not on any treatment after the doctor stopped her chemo. The doctor only encouraged us seek for possible clinical trial ourselves but didn't provide any further recommendations :( We feel being abandoned and helpless so we are thinking to find another oncologist.

Meantime we've switched her to another hospital to receive palliative radiation. We are hoping once when her pain gets under control and she could start any clinical trial we've applied for her.

I just saw that your daughter already finished the 1st round of the new regimen. I wish her well and will have a great respond to the new regimen.

Posts: 670
Joined: Apr 2010

Oh My dear: so sorry that your Docs did not stand by you. Please say something to the Administrator of the hospital, please do not let them get away with it. The Docs are the ones who apply for the trials. Crystal, how is she doing? Is she in pain, can she move around? My daughter is literally bed ridden, just going to the comode and back to bed, sleeping all the time.

Yes, she just finished the first round of the chemo, so far so good no side effects that I can relate it to. Last night she had about 12 ounces of chicken broth and about 6 ounces of mac and cheese, so I was very pleased. I am so hoping that this chemo gives us some hope and at least give my daughter a measure of normalcy. How are your parents? Who is her primary caregiver. What a nightmarish journey. I pray that God gives us all the wisdom to continue fighting and to endure this horrible journey. My heart goes out to the family.

Posts: 110
Joined: Sep 2010

You ladies are amazing - you are showing such strength in the worse times of your life. My heart is breaking for you both - I pray for peace for you and your families and God's will for the daughter and sister -- a healing would be absolutely wonderful and would give us all some hope. I hope He is listening to our hearts.
Love and peace

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