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A new info source?

seatown's picture
seatown
Posts: 83
Joined: Sep 2012

This week I happened across what I thought was a valuable reference: NCCN Guidelines for Patients/Ovarian Cancer. The National Comprehensive Cancer Network is comprised of leading cancer research & clinical hospitals in the US: MD Anderson in Houston, Fred Hutchinson in Seattle, City of Hope in LA, Dana-Farber in Boston, Memorial Sloan-Kettering in NYC, & 16 more. They publish patient guidelines for many types of cancer. Tho this one is titled "Ovarian Cancer," they include frequent references to PPC & explain how the treatment for it is basically the same as for ovarian cancer. The 92-page PDF doc is very detailed & seems to answer almost any question I've had. Lots of info about different drugs, different treatment protocols, etc. Here it is:

http://www.nccn.com/files/cancer-guidelines/ovarian/index.html

If this doesn't work for you, go to NCCN.com, click on "ovarian cancer," then click on "patient guidelines"

But: if everybody but me already knew about this guide--never mind.

In my own world: got the CA 125 number for the blood drawn last week. It's down again, down to 100.6 from 149 in October. I hope when I go back for my next-to-last chemo in early Dec., the blood drawn today will show my CA 125 number is down to 2 digits. A big change from the 2,700+ upon diagnosis in July!

More of my own story at www.CaringBridge.org/visit/CaroleSeaton/journal

Nflinchum
Posts: 35
Joined: Jun 2012

Thank you so much for the info and the website. I went to MD Anderson for my second opinion. Awesome cancer center.
Great to hear your CA 125 numbers are down. I hope that continues for you.
I will read your story. My story is on CaringBridge as well under Nadine Flinchum.

seatown's picture
seatown
Posts: 83
Joined: Sep 2012

Thanks for your comments. I was interested to read your story on Caring Bridge & to see your photos. I didn't think anyone'