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another scan today, results on Thu (UPDATE)

Phil64's picture
Phil64
Posts: 461
Joined: Apr 2012

I have completed the 9th FolFox treatment. At treatment 8 I had a CT and PET scan completed. Those scans showed a small 3mm nodule in the lower lobe of the right lung (same location as a previous met that was resected on 6/1/12). Today, six weeks later, I just completed a follow-up chest CT. I'll receive the results on Thur, 11/15. Waiting...

If the nodule has grown another surgery will be scheduled. And the FolFox will be deemed as not working. I hate the idea that I may have received 9 FolFox treatments along with all the ugly side effects, without receiving benefit. Maybe the small nodule will turn out to be nothing by inflamation.

I try to keep a positive outlook but sometimes that is hard to do.

So I will wait until Thursday to hear results and see what the next steps will be...

God Bless!

Phil

UPDATE ON 11/15:

Good news and potentially bad news...

The good news is that the scan on 11/12 shows that the small nodule is almost not detectible. It has shrunk considerably and the onc thinks it is most likely inflamation. However, he will want to watch it closely.

The potentially bad news is that my CEA level is up to 13.3. On 10/18 (last chemo treatment) it was at 6.3. His concern is that being on a chemo break may have allowed tumor activity, resulting in a rising CEA level. The highest CEA I had (pre surgeries to remove colon tumor and lung met) was 19.7.

If I read correctly from you all and from other web sites, CEA levels can rise and fall due to other non-cancer-related things... So, I'm hoping that the increase is not cancer related. The doc also said that the recent scans show NO cancer in lungs, liver, pancreas, etc... He did say it is possible that a tumor in the abdomen may not have been detected but he also said that is a low probability...

What is the significance of the rising CEA? Should I be overly concerned about this???

jen2012
Posts: 1207
Joined: Aug 2012

Praying it's inflammation...let us know please.

Phil64's picture
Phil64
Posts: 461
Joined: Apr 2012

Thank you for your prayers! I will post an update on Thursday.

YoVita's picture
YoVita
Posts: 541
Joined: Mar 2010

Hoping you get good results. Will you and your doctors consider RFA instead of surgery for this potential nodule? Please keep us posted.

Phil64's picture
Phil64
Posts: 461
Joined: Apr 2012

Thank you for the well wishes. I will ask the Onc about RFA instead of surgery, if I'm faced with surgery. I'm still hoping and praying that this will turn out to be inflamation.

k44454445's picture
k44454445
Posts: 494
Joined: Jul 2012

praying that it is not cancer. hang in there. i know how hard it is to wait on results.
hugs & prayers
judy

Phil64's picture
Phil64
Posts: 461
Joined: Apr 2012

Your prayer and encouragement is greatly appreciated! It is hard to wait for results and it is especially hard to deal with a reoccurance which I'm really hoping will not be the case here. Thursday is only a couple days away.

Chelsea71
Posts: 1170
Joined: Sep 2012

Waiting is rough. Hopefully it is inflammation. If not, surgery will take care of it. Hang in there. Wishing you all the best.

Chelsea

Phil64's picture
Phil64
Posts: 461
Joined: Apr 2012

Yes, I will hang in there and I'm hoping to report good news on Thursday.

rogina2336's picture
rogina2336
Posts: 188
Joined: Apr 2011

Best of luck for good results!!! We scan tomorrow A.M., and will have results in the afternoon. Actually I am very excited as hubby has been feeling sooooo good on Vectibix!!

Phil64's picture
Phil64
Posts: 461
Joined: Apr 2012

Thank you for your encouragement and positive attitude. I appreciate the need to always keep a positive attitude.

Momof2plusteentwins's picture
Momof2plusteentwins
Posts: 449
Joined: May 2012

Gosh I hope it is just inflammation. I hate that you have to wait until Thursday for results, you are much more patient than I am. I need to know same day. Please let us know the results, hoping for the best.
Sandy :)

PhillieG's picture
PhillieG
Posts: 4672
Joined: May 2005

I hope it turns out to be nothing or at most, something easily taken care of.
I have had five RFA's done on my lung(s) but it all depends on their location
as to whether they can ablate it.
-phil

pepebcn's picture
pepebcn
Posts: 6352
Joined: Aug 2010

Wish you good results,hugs!

Luckygirl2
Posts: 308
Joined: Mar 2012

you get good news! and you just have some inflamation!

Phil64's picture
Phil64
Posts: 461
Joined: Apr 2012

Good news and potentially bad news...

The good news is that the scan on 11/12 shows that the small nodule is almost not detectible. It has shrunk considerably and the onc thinks it is most likely inflamation. However, he will want to watch it closely.

The potentially bad news is that my CEA level is up to 13.3. On 10/18 (last chemo treatment) it was at 6.3. His concern is that being on a chemo break may have allowed tumor activity, resulting in a rising CEA level. The highest CEA I had (pre surgeries to remove colon tumor and lung met) was 19.7.

If I read correctly from you all and from other web sites, CEA levels can rise and fall due to other non-cancer-related things... So, I'm hoping that the increase is not cancer related. The doc also said that the recent scans show NO cancer in lungs, liver, pancreas, etc... He did say it is possible that a tumor in the abdomen may not have been detected but he also said that is a low probability...

What is the significance of the rising CEA? Should I be overly concerned about this???

k44454445's picture
k44454445
Posts: 494
Joined: Jul 2012

you got some good news! about the cea: i have read, not just on here, that when cancer cells die that the cea can rise for some strange reasons. i hope that is the case for you. it can also rise because of unknown factors. i am still praying for you!
hugs
judy

Phil64's picture
Phil64
Posts: 461
Joined: Apr 2012

Judy,

Thank you for your prayers and for the info. My gut tells me to not worry about the CEA. I only have two more treatments and then we will be in a monitoring mode. Treatment 12 is scheduled for 12/13.

God Bless!!!

Phil

Sundanceh's picture
Sundanceh
Posts: 4298
Joined: Jun 2009

Phil,

When cancer cells die, they emit a protein into the bloodstream that can temporarily elevate CEA levels...this could be a distinct possiblity.

And there are other factors that can affect CEA...illness or infections etc.

I wouldn't put too much prudence into the CEA just yet...you showed all clear in most of the spots, so that sounds good.

Worry less about CEA and more about mass...congrats as you sprint towards the finish line:)

Phil64's picture
Phil64
Posts: 461
Joined: Apr 2012

One thing I try to do is remind myself that this fight is a marathon, not a sprint. Humm... someone shared this wisdom with me some time ago... could it be you who shared this. :-)

And I will think positive and endure the last few treatments, and go from there...

God Bless!

Phil

Rubyrose
Posts: 47
Joined: Feb 2011

My husbands CEA levels are 2000 and were once over 3,000. They also got down to 7 when we were hoping for surgery last year. Was told is same type of measurement. Keep fighting.

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