Nov 10, 2012 - 12:13 am
Just finished my 8th of 35 rad Tx. I have stage IVa SCC, Lateral Tongue, Floor of Mouth, Mandible and Lymph Nodes. Some of the stories here scare the crap out of me. The "Lump" on the floor of my mouth has all but disappeared, my lymph nodes swelled up like Walnuts after the 1st Tx, but now are almost normal. The only eating problem is because I had to have my 4 lower front teeth removed because of the intrusion into the mandible (I can still eat a Big Mac but only with a knife and fork). I do have "Syrupy" saliva, but a nice hot cup of coffee helps it go away, and dry mouth at night, a sip of water every few hours and it's back to sleep. Looking for the Biotene Gel (I live in the Philippines) to help get a better nights sleep. I've lived in the Philippines for 12 years and since no surgery was required decided to stay here for my Tx since it's only Rad. Cost was another factor, $6,000 before I submit to Tricare for reimbursement, not sure how much they're going to cover.
I guess my question is, am I normal at this stage of my treatment? Are things really going to get as bad as some of the stories I read hear? I know everyone's tolerance is different but I haven't read much about anyone having few complications.
Thanks for any advice, this looks like a good support group for information and just friendly support and advice.