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Ear pain during tx is intensifying..

cureitall66's picture
cureitall66
Posts: 862
Joined: Aug 2012

Has anyone experienced ear pain (sometimes both) during tx? He had some pain before even starting tx and now it's getting worse. Mostly effects the side that is getting radiation. It hurts so bad when he has to cough up the mucus, he plugs both his ears to help with the pain. He's mentioned this to the team at the hospital and they don't seem to be to concerned about it. Apparently it's from the nerves? He has just started Methodone (nerve blocker) that is intended to help with his swallowing ability. Wondering if this will help with the ears as well?

Pam M's picture
Pam M
Posts: 2194
Joined: Nov 2009

Was told it had something to do with damage and swelling.

Still have ear pain from time to time. Whenever I eat food that's spicy, one or both ears hurt. Usually it's just the ear on the side most aggressively treated.

Skiffin16's picture
Skiffin16
Posts: 8088
Joined: Sep 2009

Hi Cris...

Has he communicated any with his ENT on this?

While not uncommon (especially during rads), it's always a good idea to keep all of his MD's up to speed.

My team was led by my ENT, he is still my lead. Though I have been released from everyone else other than semi-annual blood tests and scans that my Onco still takes care of.

Best,
John

cureitall66's picture
cureitall66
Posts: 862
Joined: Aug 2012

to his Rad/Onc weekly along with working with his NP each week with needs/scripts/meds. My understanding is that the ENT oversees everything, though he does not speak with her on a scheduled basis during treatment.

katenorwood
Posts: 1829
Joined: May 2012

Hey there !
It was my ENT that originally got the ball rolling in the beginning...but once surgery was done the ball was handed off to a medical oncologist to supervise everything. I know every clinic is different....please check with your ENT yourself. I had severe pain from surgery resect, ear...jaw. It has gotten better after 11 mo's. I too tried nerve blocker, really didn't make a difference. Thinking of you and hoping this gets better. Katie

Tim6003's picture
Tim6003
Posts: 1495
Joined: Nov 2011

I had ear pain...actually I still do if I push on my ear (as if to plug them up) ...it can hurt for a moment afterwards. The left side hurts more than the right side (left side got higher rads then right).

But you did do the right thing in letting your team of docs know ....

Hang tough ...keep us posted!

Best,

Tim

Skiffin16's picture
Skiffin16
Posts: 8088
Joined: Sep 2009

The main reason that I suggest the ENT, that is his specialty....

I know my case is different as my ENT was and still is my lead.

Also, if I have anything bugging me related to TX and there were many intially I would schedule an appt with my ENT.

Thankfully the majority were just me and changes due to residual primarily.

He assured me that I would have many various aches and pains for a few years out, very common.

But also, he'd much rather I call him and schedule an appointment, than to let it go.

Pro-active, never Re-active..., even if it's only a sanity/confidense check.

JG

meaganb's picture
meaganb
Posts: 226
Joined: May 2012

I had pain in my right ear even before I was diagnosed. It was one of the things that made my Drs want to investigate and that's how they found my tumor. The tumor was invading a nerve, thus the pain. Pain went away almost immediately after surgery to remove the tumor. The same pain came back towards the end of radiation because they were targeting where the tumor had been. I am 5 months out from treatment and occasionally still get a dull ache in my ear but the intensity of the pain is much less. I never had chemo, just Rads so I can't speak to how that can cause ear pain, but Radscan definitely be the cause. I would certainly talk to your Dr if pain meds are not managing the pain and also be patient because these treatments cause collateral damage while healing us. I hope he feels better quickly!

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