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UPSC - Any survivors greater than 5years?

Catmalogen
Posts: 19
Joined: Jul 2012

Hello Fellow UPSC sisters.. I would like to start a discussion on looking at recurrance rates and survival from the USPC group. This may sound depressing, but I think it would be positive to put light on this "Rare Agressive Cancer".

I had surgery (TAH + BSO and pelvic node clearance Aug 2010). Surgical staging IIIC. (Node involvement). Followed by 8 cycles of Taxol/Carbo and 4 Treaments of Vag Brachytherapy.

Now 2+years later and many scans (PET + CT scans).. No recurrance...Thank God.

I feel from reading some of the stories on this site that it is a given that one will have recurrance ??? Or are women who are now USPC cancer free, not on this site?? Anyone out there 5 years on who has had an all clear? Also would like to here if there is anyone with successful clear scans post treatment for recurrance. Cat

willbesurvivor's picture
willbesurvivor
Posts: 50
Joined: Jan 2011

My mother was diagnosed UPSC IIIC, recurrance within 5 months following NED and then passed away within 2 years of diagnosis. Refused further chemo following recurrance.

Catmalogen
Posts: 19
Joined: Jul 2012

Thank you for your reply and may I offer my sympathy on your Mothers passing. I can understand only to well why your mother refused further chemo. It is something I will strongly consider doing if I diagnosed with recurrance in the future.

ConnieSW's picture
ConnieSW
Posts: 593
Joined: Jun 2012

or lack of, to this post is unsettling, to say the least.

daisy366's picture
daisy366
Posts: 1493
Joined: Mar 2009

I'm still here - dealing with second recurrence but do worry about some that have not posted in awhile - like snowbird. And mourn those we know have passed on way to soon - Linda, Diane, and Maggie.

Mary Ann

TAyers's picture
TAyers
Posts: 47
Joined: Aug 2012

Cat, I too have UPSC and was diagnosed Grade 3 Stage 3,on June4 2012, just finished only 6 rounds of chemo and I have my radiation consult on Monday. I am only 45 years old. Would love to see long term survivors.

artist49
Posts: 52
Joined: Oct 2011

I've posted my story before but I feel that the dismal response to your question leaves everyone needing a little ray of hope , so here I go again. I had surgery in September, 2010 and was diagnosed with UPSC stage 4 grade 3 with cancer found in 39 lymph nodes. A patient at Sloan, I was put on a clinical trial - avastin, carboplatin and Ixabepilone
for 6 treatments and then avastin every 3 weeks for maintenance. It is now Nov. 2012 of course and I remain NED and feeling great. Given the poor prognosis of this disease and my advanced stage, I despaired of ever attending my grandson's Bar Mitzvah or ever seeing any of my grandchildren get married. Two weeks ago I attended the Bar Mitzvah and it was beautiful. In two weeks from now my oldest granddaughter is getting married! There is hope
for everyone. We must keep looking forward because the statistics belong to the past and the future belongs to us. We must learn from each other and explore every avenue available to us. Conventional treatment, diet, exercise - leave no stone unturned.

beila
Posts: 97
Joined: Sep 2012

Artist 49.....thank you so much for posting a POSITIVE story, which is what we need.
So glad you are feeling well and enjoying family mitzvas

I collect role models, and you are one of them!!
I just started a week ago on Doxil, and am planning to get on Avastin starting on my next chemo
It's not covered, and will cost me $4000/dose
May I ask you how you cover maintennance?.....or is it still part of your clinical trial

Looking forward....yes
there are always advances
I look to the AIDS history, where the mantra was "stay alive for the cure", which against all odds, came to pass, so that now HIV is a manageable chronic disease

all the best ,
Beila

Ro10's picture
Ro10
Posts: 1429
Joined: Jan 2009

I have had two recurrences and am probably working on a third recurrence, but I am a survivor! I knew at diagnosis of Stage 3C that it would be treated as a "chronic" disease. I am happy to still be here 4 years later, and still have treatment options. I have had minimal side effects from all my treatments. When I am not I In treatment I try to travel and enjoy each and every day. I keep contact with positive people and do not spend time with negative people.

I just bought a plaque that says " Cherish yesterday, Dream tomorrow, and Live today". That's a motto I try to follow.

There is a lot of negative statistics on the Internet, so I stopped reading them shortly after diagnosis. The information I rely on comes from others
On This site. It contains the most current information. Along with the current information is the wonderful support I receive on this site.

Hope this offers some encouragement, even though I am not a 5 year survivor........yet. In peace and caring.

Double Whammy's picture
Double Whammy
Posts: 2303
Joined: Jun 2010

is a 6 year survivor. She was Stage 2, and remains NED. She still has exams and Pap smears every 6 months and a CA-125. All is well with her and I am so happy for her.

Suzanne

ConnieSW's picture
ConnieSW
Posts: 593
Joined: Jun 2012

I have read your stories before but it helps to be reminded. My courage needs a booster every now and again as I adjust to my new normal, post treatment. Thankyou for your generous spirits.

artist49
Posts: 52
Joined: Oct 2011

To answer your question about cost of Avastin - the drug manufacturer pays for the Avastin as part of the clinical trial .

Catmalogen
Posts: 19
Joined: Jul 2012

Thank you for your very positive story, You are indeed a survivor. I hope you have a wonderful day at your oldest granddaughters wedding. I have explored options in the event that conventional treatment may not be successful and came across some wonderful truw life stories about Essiac Tea? have you heard of about it's claims ??

Catmalogen
Posts: 19
Joined: Jul 2012

Thank you for your very positive story, You are indeed a survivor. I hope you have a wonderful day at your oldest granddaughters wedding. I have explored options in the event that conventional treatment may not be successful and came across some wonderful truw life stories about Essiac Tea? have you heard of about it's claims ??

lkchapman's picture
lkchapman
Posts: 105
Joined: Jan 2011

I like to think that those who have made it past the 5 year mark no longer look in on this board and are off living their lives. I myself, am a 3 1/2 year survivor of stage IIIC2 high grade UPSC after completing chemo/xrt in 2009. I come to this board less and less often as time goes by. The CSN website isn't at the top of my url list anymore and that's a really good thing! To me it means that I'm getting my life back.

Laura

beila
Posts: 97
Joined: Sep 2012

that's great
Wonderful that you are getting your life back
and I love that photo of your adorable pussycat!!

Beila

ixmii
Posts: 4
Joined: Sep 2012

I will hit 5 years this February...

Catmalogen
Posts: 19
Joined: Jul 2012

Thank you all for comments on my discussion topic. I am very sensitive to the topic as well I should be, given that I too am like all on this site.. Surviving and getting on with it one day at a time. It's great to read so many comments from the UPSC group. It all points to the positive strong fighting bunch we are. Delighted to read that those of you with recurrance have been offered treatment and are doing well.

Even more enlightening to read is yes indeed life goes on and I am sure the ladies who are 5 years on and well, do not visit this site. !!

All the more reason to keep information and support positive and forwarding thinking on for the rest of us, as mentioned by many of you in discussion.

While reading discussions, I noted that some women are followed up with scans, CA125 markers and PAP... My medical team Scan (Cat 0r PET)every 6months, Tumour markers CA125 I am told are not true indicators of activity (unless you had bloods done prior to surgery). And PAP is only performed on women whose cervix is still intact. I had a TAH+BSO and vaginal vault brachytherapy, hence PAP contraindicated as vaginal cells (cervix removed) will already be changed by radiation. Has the group any comments?? Cat

daisy366's picture
daisy366
Posts: 1493
Joined: Mar 2009

I get CA125 - mine was elevated prior to surgery and seems to be reliable indicator - and PET scans
no pap - doc tells me there's nothing to check but I will inquire again.

lkchapman's picture
lkchapman
Posts: 105
Joined: Jan 2011

My doc at anderson does a vaginal pap and ca125 at every visit. Its just protocol there I suppose.

debrajo's picture
debrajo
Posts: 776
Joined: Sep 2011

Me too! CA125 and then Pap every time. Have had only one ct scan since dx. over three years ago. They said no ct's at MDA unless they supect recurrence. Also only one MRI, but do have an x-ray(chest) every six months.

NJZ62
Posts: 32
Joined: Sep 2012

I have endometrial adenocarcinoma, metastatic.

I had Pap smears every 3 months after a TAH. My surgical oncologist said that because there was nothing but a "Vaginal cuff", the Pap smear works to show any endometrial cells lurking (where there should be none.) I also had 3 brachy therapy radiation treatments.

My Paps were always fine, for 20 mos., then Boom - 2 Cat scans 4 mos. apart showed nodes in liver,lung and omentum.

I have done 3 rounds of carbo taxol, and my CA125 is nearly normal after being in the 300s.

This last treatment was a bear - previously I only had bad symptoms on day 3 & 4 which were always Sat & Sun, which worked out well because I am working.

But...both my oncologists are pleased with my progress so far, which makes it all worth it.

Kaleena's picture
Kaleena
Posts: 1161
Joined: Nov 2009

I have gotten a CT Scan once a year since my diagnosis in 2005 through 2011 until the insurance company changed the protocal and said unless it is medically necessary - so unless there are some type of symptoms, no more scans.

I still go every 6 months for follow up appointments. I get a PAP smear. I do not get a CA125 because it is not a marker for me.

In 2009 I did have PET scans, CT Scans, PET/CT and MRI for a possible recurrence which I eventually had surgery in 2010. (no further treatment needed except for PET scans every 6 months until my new insurance denied them).

Even though I had a Total Hysterectomy (tubes, ovaries, uterus, appendix, omentum, lymph nodes, etc.) I still get PAP every 6 months. (BTW - I also had brachytherapy)

nancibee's picture
nancibee
Posts: 50
Joined: Sep 2012

I don't see my gyn oncologist until the beginning of December but I had my first after-treatment followup visit with my oncologist last week. He said I will get vaginal exams and PAPs going forward. I will get CT scans only if there are suspicious cells.

I asked him why CT scans as opposed to MRI or PET scans. He explained but I don't remember. I do remember that he said CT was best because you get more slices and views than an MRI. If anything does show up on a CT scan if I have one, I will most likely have to have an MRI because before treatment they found out with an MRI that I have benign hemangiomas on my liver that show up as spots on the CT scan. He also said that with a PET scan, anything less than one centimeter cannot be biopsied.

Kaiser follows evidence based guidelines for treatment. I checked and the NCCN evidence based guidelines for UPSC do say that performing CT scans does not have a positive outcome on survival. It kind of bothers me because even though recurrence is most likely to occur in the vaginal cuff, there is a chance that recurrence could be distant. I think it is ironic that they tell you not to view yourself as a statistic yet they base treatment on statistics.

I am going to discuss this further with my gyn oncologist in December. I trust her a great deal. I have also found Kaiser to be flexible when necessary but I am not sure this will be the case with an expensive scan.

Catmalogen
Posts: 19
Joined: Jul 2012

Hi Kaleena, Great to get your comments on this discussion. You are doing so well and 7years post diagnosis. What was your inital diagnosis (staging and treatment)? I figure you must have had cervix removed? Where was recurrance? I hope you are well again and no further chemo require. Stay strong. You can beat this. Cat.

txtrisha55's picture
txtrisha55
Posts: 424
Joined: Apr 2011

I am 14 months out from last treatment on 22 August 2011. Since then I have had 3 month interval appoints with my gyn onc dr. She does ask for CA125 blood test. She also does CT scans every 3 -6 months. I had one in Sept2011, Dec 2011 then went to Jun 12. Just went to the dr in Aug and she wanted another ct scan because the radiologist who read the last ct scan said 1 node on the left side groin area was borderline in size. She did not know what that meant (she said in relation to what size) so I had another ct scan done at the end of Oct. The next radiologist did not even mention the nodes which made my dr upset so she kept asking for them to compare the two scans again and report on the differences in the scan. I finally got that report yesterday and everything is fine. The dr does do a physical exam every time I see her. Since there is nothing to PAP I will probably not have that done. She likes to do the scans, she said, because there is no way of knowing what is going on inside me or any symptoms that she can tell me to look for. A CT scan will tell her that. I think all on this site are amazing women with great friends and family supporting them. I include all in my prayers to give the strength they need to keep pushing through their treatments and living strong positive lives. trisha

nancibee's picture
nancibee
Posts: 50
Joined: Sep 2012

I have a friend who does not have cancer but had a hysterectomy with her uterus and cervix removed. She gets regular PAP smears. I will find out in December.

Catmalogen
Posts: 19
Joined: Jul 2012

Hello Sisters, I have read all your comments. Again let me remind you all I am a UPSC Survivor, and also a health professional. I am confused at some of the logic from the medical world.. when to PAP or not to PAP smear. Again I understand the logic explained to me that cells could be changed by brachytherapy and show a false positive and of course my cervix was removed... So why I wonder are some docs doing smears on women who have had brachytherapy and cervix removed? I will ask again from my team why they feel this is not an appropriate guide?
My oncologist does not request scans, (guess he, and this is only my opnion feels if recurrance, it will show up with sympthons and so be it !) Some say that repeative scans can lead to solid cancers.. However my Gynae team will scan if I moan about something..and my usual complaint is back pain and trunk oedema..(which they always tell me is related to menopause and lymphodema).. So the mistery of a world gold standard survillance for this cancer still troubles me!! So let us all stay strong and positive fellow sisters. BTW has anyone tried Essiac Tea ??? I hear good things about it, but not sure... ? Cat

sunflash's picture
sunflash
Posts: 154
Joined: Aug 2011

I will be one year post treatment November 10......a day I'll never forget! I get a vaginal pap smear with every visit (every 3 months) I haven't had a CA125 test since my last treatment as it was never elevated and probably not a good indicator for me. No scans either, as my doctor feels I would have symptoms before a recurrence would show up on a scan.
I had external radiation and brachytherapy 5 years ago when I had vaginal cancer......I know, lucky me! My paps have been clear, thank God!
As a matter of fact, the reason I had a hysterectomy in June 2011 was because abnormal endometrial cells were showing up in my paps. My doctor put my pap smears through pathology as if it was a biopsy, and the path report showed no sign of cancer. But the paps were enough to make her feel uneasy, and thus the hysterectomy.
My stage was 1A, and the cancer was less than 1/2 a centimeter. But it was cancer, and UPSC at that.
Soooooo, only one year out and so far so good. I'm feeling great, work out at the gym, and teach full time.
I consider myself blessed.

I pray regularly for everyone here.

nancibee's picture
nancibee
Posts: 50
Joined: Sep 2012

And since this is all new to me I am continually confused. Won't have any definitive answers on my gyn treatment until I see my gyn/oncologist on 12/6. Apparently, both my oncologist and gyn/oncologist surgeon will be seeing me on an ongoing basis. Gyn/oncologist does the vaginal exam and oncologist follows up to see how I am doing. Tomorrow I have a phone appointment with the nurse in radiation oncology to check up on me.

So far my oncologist just has a 10 minute conversation with me, asks me if I have questions or concerns, checks my abdomen and orders an monitors blood tests. I have to see him again in 3 months.

I am someone who rarely saw a physician prior to my cancer. I even went almost 3 years without seeing my neurologist for my MS because she kept refilling my prescription and I felt fine. So all of this attention is very new and not something I particularly enjoy. Oh well, I guess I am getting my money's worth from the expensive monthly insurance premiums I pay.

Ro10's picture
Ro10
Posts: 1429
Joined: Jan 2009

I don't want to burst your bubble, but I have never had any symptoms before diagnosis of stage 3-C UPSC, or with 2 recuuences. I am probable
Having a third recurrence, too. No symptoms at all. I had an abnormal PAP before diagnosis. No symptoms. Mt recurrences begin with CA 125 elevating. My gyn/ Ono says it is just a number when it elevates. I have a CAT scan about every 3 months to check for changes. My recurrences have always been with lymph node enlargement. But never have any symptoms.

I have expressed concern over the number of CAT scans I have had. My doctors tell me that the risk of the cancer growing is greater than the risk of the radiation from the CAT scans. So I go from there. Unfortunately my CA 125 begins to elevate as soon as I go off chemo. Last time it got to 3200 before changes occurred in the CAT scan. Right now it is in the 370's, but CAT. Scan is stable.

I agree we all need to stay strong and positive. Have not tried the Essiac tea. I do drink green tea. Good luck on your journey. In peace and caring.

nancibee's picture
nancibee
Posts: 50
Joined: Sep 2012

I did not even think about radiation from CAT scans. Does anyone know if MRIs have negative effects? I know that it does not do much good to dwell on the "Why" with UPSC but I have had so many MRI scans. I participated in a clinical trial for my MS medication and I had to have scans every 6 months. I also had them when I moved around the country and changed neurorlogists. They always wanted a new scan.

Catmalogen
Posts: 19
Joined: Jul 2012

I now very confused given all the info! Reality is I don't worry about scans.. if I need one then best to have it. Not sure what size tumours have to be to be seen on a scan, but I figure it depends on who is reading scans. Going to have a major chat with my Gyane/Oncology team about having repeat PAP smears. As I see this is relevant now from reading many of your comments. So lets not get hung up on scans hey !
At end of day I think physical exam very important as they checking for node enlargement esp in the neck/groin area. I have a surgeon friend just diagnosed with renal cancer.. we both going to try the Essiac Tea !!Stay positive all.. I back in hospital next week for breast lump review. Fingers crossed! Cat

pjba11's picture
pjba11
Posts: 192
Joined: Nov 2008

Just passed the 6 year mark dx on my 54th b-day UPSC Chemo Radiation and Brachy Just got through my 60th birthday and am now enjoying a great granddaughter. My youngest daughter is 15.. Staying busy helping farm about 1600 acres and cattle with my husband. I am also a Real Estate Broker/Owner and now have reached the level of Silver in my Young Living Essential Oils business. I use essiac tea Young Living oils and suppliments. Feel good. My best to all of you sisters on this board. If the Lord leads us to it He can get us through it. Abundant blessings. Pjba

Pat51
Posts: 111
Joined: Feb 2011

Hi,

I am a UPSC sister. I was diagnosed in Feb, 2011. I was a stage 1B grade 3. I had surgery, 6 rounds of carbo/taxatere and 3 brachytherpy. I have had a couple of scans since finishing treatment and at this time I am NED....no recurrences (THANK GOD). I have blood work, CA125, pelvic exam and oncology appointments every 3 months. I have just graduated to PAPs being done every 6 months instead of every 3 months. I do still follow this board, but do not post too often. I think that our chances of recurrence decrease after passing the two year mark. I am halfway there and hope to make it many, many more years!! May God bless each and every one of us as we make this journey!

Pat

Tentoumushi
Posts: 3
Joined: Mar 2013

I was diagnosed with UPSC 7/2004.  I had surgery, radiation & chemo. At my 4 month checkup after my last treatment my cancer had returned.  I have had more radiation & chemo.  Received severe burns from radiation that is causing problems now and I have not been given the wall clear" from my oncologist.

Ro10's picture
Ro10
Posts: 1429
Joined: Jan 2009

Double post.

Ro10's picture
Ro10
Posts: 1429
Joined: Jan 2009

Welcome to the site.  Congratulations on being a 9 year survivor.  I am curios what Stage you were at diagnosis.  Sorry to hear about your problems with radiation.  It must be very uncomfortable.  I had 28 IMRT radiation treatments and the a28 hour internal radiation treatment.  They encouraged me to have a full bladder before each radiation treatment.  That pushed the colon away from the area getting radiation.  Luckily I had no bowel issues during treatment or after.  That was in 2009.

i an so impressed and encouraged by your long survival time.  Thanks for posting.  I was diagnosed with UPSC Stage 3, and have 2 recurrences and will need chemo again In the near future.  Keep hanging in there.

NoTimeForCancer's picture
NoTimeForCancer
Posts: 475
Joined: Mar 2013

While I wish I had found this site much sooner than I did, I only found it recently after I finished all treatment in December 2012, I tend to agree with what was said earlier about not coming back to this site because they have moved on, not necessarily because of a sad outcome.  

I have to be more than this horrible disease.  I know there are so many sisters out there now, and you are all in my prayers, and I hope those who find this when we no longer come to this site, find it as helpful as I did. 

I plan on being around for a very long time and being a happy, little old lady someday.  I get scared sometimes and worry, but I have to stop thinking that way because it does me no good.  As my chemo nurse said to me, "Go live your life!"and she is right.

Never, never, never give up.

 

 

MTheresa
Posts: 6
Joined: Mar 2013

I had my hysterectomy Feb 7, 2013 and meet with my surgeon Wed. Mar 27th and then the radiation oncologist the same day.  The 29th with the chemo doctor and am assuming chemo treatments will start next week (April).  One thing this site has taught me is that it's important for me to stay connected for everyone else.  I was fortunate to have the surgery at Stage 1, although because of the type of cell, grade 3.  All my biopsies were negative.  I was spotting and we tried to find out why for 9 months!!  Seems crazy that it took so long--in fact the doctor who did the endometrial biopsy, 2 days before the diagnosis, said she thought it was just fragile vaginal lining.  Every test I had before then came back negative.  I thought I just had an aggravating little problem.  I'm so glad I kept pursuing an answer.

I know I have no guarantees, but many of you have harder diagnoses and I know the worry has to be more.  I'm kind of going around like Pollyanna while I'm getting ready for this treatment.  (An informed Pollyanna!!)  It feels good to have all of you as support and I appreciate the effort it takes to post when you're scared!

marieinlv
Posts: 40
Joined: Aug 2011

 

My DX of UPSC stage IV, was 11/10, i had surgery and 6 rounds of carbo/taxol. My ca-125 was a good marker for me, it was about 1300, then finally to 4 or 5 . I do have paps and ca-125 ck, no scans for quite awhile now, maybe 7mos? Pretty sure we all go through the depression at some degree for different times. I'm getting a grip on my imagination, I feel good, the adhesion discomfort is definately not worth mentioning anymore. I do still have the port, but there is less and less evidence of cancer all the time. I'm thrilled to hear about the Ladies that are getting better, and staying better longer. I hope that each new Woman that explores this site will find our words of experience and will find that all the phases are normal. All the feelings are ok in moderation, we will get through with all the TLC from our Friends, Family and many Professional Folks that help us.

nthemouse
Posts: 1
Joined: Apr 2013

I was diagnosed with endometrial cancer six weeks ago.  Had a TLH and a couple lymph nodes removed.  The day after surgery, my surgeon was thrilled - he'd caught it early and got it all, he said.  The next day, though, histology told a different story.  Grade II, 53% invasion of the mesometrium, confirmed Type II endometrial adenocarcinoma that had metastasised to one ovary with Stage IIIa squamous cell differentiation.  Luckily nothing in the lymphs, nothing in the peritoneal washings, nothing anywhere else other than one ovary.  I don't have the HER2 marker, so herceptin is out. 

I've had my first session of chemotherapy, Taxol and carboplatin, and my oncologist says my survival chances are about 50/50.  I have enough of a medical background to read medical journals and make sense of most of it, and have scoured university libraries and the internet for information.  Lots of information out there, but strangely very few answers.  Squamous cell cancer and Type II is fairly rare, and very aggressive.  The prognosis isn't great.

To say I'm frightened and depressed would probably be an understatement - it looks very likely that this sort of cancer WILL come back.  Next time, the carboplatin won't work.  My mother died of breast cancer at 62.  Her father of stomach cancer in his late 70's.  I'm only 57, met my wonderful partner just three years ago, a man I love so much my heart aches.  We had dreams of retiring and growing eccentrically old together.  Now I'm wondering how much time I actually have left.  My cat is four - he may outlive me.

Has anyone out there had anything similar to what I have?  I need some real hope...

 

pinky104
Posts: 72
Joined: Feb 2013

I will be three years out from surgery next month.  I had stage IVB.  I had two normal CT scans in the first year and a half.  My CA 125 was 8 at the last visit.  I get another one done in about 3 weeks.  At diagnosis, it was 94.  You'll be happy to hear that I've been NED even though I had the advanced cancer.  I always expect a recurrence, but knock on wood, haven't had one yet.  Just lucky, I guess.  I must have had a very good surgeon and oncologist.

Rewriter's picture
Rewriter
Posts: 494
Joined: Dec 2009

I got the all-clear at yesterday's appointment with my gyne-oncologist at Mt. Sinai Hospital in NYC. For those of you who will be uplifted by my news. I am now officially a five-year survivor. My treatment consisted of six rounds of carbo/taxol followed by three brachytherapy treatments.

When I was diagnosed, I read everything I could about diet and made some major shifts in the types of foods I eat. I consume lots of:

 

--Grains like quinoa, spelt, kasha, millet, oats

--Seeds: pumpkin, flax

--Vegetables, particularly kale, cucumbers, and other green and leafy plants

--Legumes: Beans are your friends

--Fruit: Berries, oranges, lemons and limes as seasoning...lots of GREAT fuit becoming available during the warmer months

--Fish: Wild caught

 

I avoid:

--Sugar; I sweeten my oatmeal with mashed bananas and add fresh fruit to plain, nonfat yogurt. If I have a craving, I make a banana and yogurt milkshake with just those two ingredients. DO NOT EAT SUGAR!

--Meat

--Highly acidic foods. Many charts are available online; and the foods listed as acidic or alkaline may surprise you. Acidic foods are inflammatory and are associated with various disease processes in the human body.

 

Blessings to all of you. Today, I am sending special love to Mary Ann.

 

 

Ro10's picture
Ro10
Posts: 1429
Joined: Jan 2009

What a wonderful accomplishment.  You have worked very hard to reach this milestone.  Blessings to you, too.  May you have many more years of being cancer free.

Rewriter's picture
Rewriter
Posts: 494
Joined: Dec 2009

I wish the same for you. I hope you are soon settled and enjoying being back in IL. Hope the weather warms up.

 

Best,

 

Jill

HellieC
Posts: 444
Joined: Nov 2010

I am SO pleased for you, Jill.  You "took your medicine" in the form of all the established treatments and then set about making your body a hostile terrain for cancer.  It worked!  I cannot tell you how happy I am for you that you've reaped the rewards and reached this milestone.

With every good wish for the future

Helen

Rewriter's picture
Rewriter
Posts: 494
Joined: Dec 2009

Helen--

 

Your comments are always so warm and supportive and remind me of how blessed I am to have found this community. You all have been with me through my ups and downs.  We may not have met face to face, but you have become my good friends.

 

I hold you all in my heart.

 

Jill

Kaleena's picture
Kaleena
Posts: 1161
Joined: Nov 2009

Jill:

 

I am so happy for you!.   I do follow a lot of your advice when it comes to food.  My only vice is that I use honey, but it is better than using artificial sweetners.   Thank you for all your posts!  

 

Kathy

P.S.  How's your dog?   I remember seeing how cute (he/she) was!

 

jazzy1's picture
jazzy1
Posts: 1387
Joined: Mar 2010

I'm so happy for you and know you're on cloud 9!!!!  5 years NED...now that great news is worth yelling from the roof tops, ya think?

 

I know over the years we've exchanged emails and postings and you as well have given great support to others here....we thank you!!  

 

Few things I'd add to your list of diet changes --

.  Probiotics -- be it supplements, raw dairy, fermented foods or kefir (These repair the gut and the compromised villi)

.  Meat/poultry -- organic, hormone-free, antibiotic-free, only free-range, grass fed.  Commercially raised meats contain hormones and antibiotics and the animals are fed grains, results in meath that are high in Omega 6's which cause inflammation and  cancer growth.  

.  9-10 cups/day organic veggies (or follow the DIRTY DOZEN list for which MUST be organic)  Make a green smoothie and ingest 4-5 cups...easy!

.  Eat healthy fats from coconut oil, olive oil, avacado oil, and nuts (especially macadamia and hazelnuts) 

 

When in doubt remember our #1 seller --  THE ANTI CANCER book, by Dr, David Servan-Schreiber

 

I'd love to see more topics on keeping our terrains in healthy working order....

Hugs and best to you Jill~

Jan

 

 

 

Rewriter's picture
Rewriter
Posts: 494
Joined: Dec 2009

It's hard to live on Cloud 9 when so many in our community are struggling, but I am feeling much more peaceful that I did even a week ago.

Still, I take nothing for granted and continue to watch my diet, stress level, and daily exercise. It's gorgeous where I live--in a community called Carroll Gardens, Brooklyn, which certainly lives up to its name with the magnolias, mimosas, cherry blossoms, and pear trees--and I enjoy walking and exploring.

Kathy, thank you SO much for remembering my dog. Trixie is such a wonderful dog and has been affectionately and attentively by my side through this whole process. She is so smart and playful and was always able to keep my spirits up when I was at my lowest point.

Jan, thank you so much for your suggested dietary changes; I am right there with you! I don't eat meat and always choose free-range, hormone-free chicken. I take a daily probiotic called PB8, eat a big bowl of homemade organic vegetable soup and a huge salad with lots of fresh vegetables and 1/2 avocado each day, use plenty of olive and coconut oil, snack on a handful of nuts and make a great kale salad with toasted hazelnuts, make either a fresh vegetable or a yogurt and banana smoothie each day...I have major OCD when it comes to eating healthy food, but I take GREAT pleasure in preparing my meals.

I, too, would love to hear how other women are keeping themselves healthy. BEST of health to everyone.

 

Love,

Jill

 

 

 

 

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