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DIPG

FearlessMom
Posts: 3
Joined: Oct 2012

My daughter was diagnosed with a DIPG 1-26-2012 at the age of 21. I am just looking for people that may be going through the same thing...We were told that is very rare for someone of her age.

FearlessMom

princesspurple
Posts: 6
Joined: Jul 2012

I was diagnosed at 25 with a pontine glioma with some diffuse enlargement. This was back in 2008. It is indeed rare at this age. From chemo and radiation to trials to side effects, have been through a lot with this over the past nearly 4 years (hit this mark next week), and would be very happy to share my experience. There are also some decent resources specifically for young adults that she might find helpful, I know I have.
All the best to you both.

LeslieLand's picture
LeslieLand
Posts: 49
Joined: Feb 2012

My husband was diagnosed in Jan 2011 at the age of 33.

How is your daughter doing?

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