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DIPG

FearlessMom
Posts: 3
Joined: Oct 2012

My daughter was diagnosed with a DIPG 1-26-2012 at the age of 21. I am just looking for people that may be going through the same thing...We were told that is very rare for someone of her age.

FearlessMom

princesspurple
Posts: 6
Joined: Jul 2012

I was diagnosed at 25 with a pontine glioma with some diffuse enlargement. This was back in 2008. It is indeed rare at this age. From chemo and radiation to trials to side effects, have been through a lot with this over the past nearly 4 years (hit this mark next week), and would be very happy to share my experience. There are also some decent resources specifically for young adults that she might find helpful, I know I have.
All the best to you both.

LeslieLand's picture
LeslieLand
Posts: 49
Joined: Feb 2012

My husband was diagnosed in Jan 2011 at the age of 33.

How is your daughter doing?

GULLFRIENDLY
Posts: 2
Joined: Jan 2015

Hello - anyone with dipg still check this site... It's been a while since these posts.

My daughter is 19 and just finished 6 weeks of radiation. If anyone would care to share your experiences please let me know.
Thanks all

gorawforsophie
Posts: 1
Joined: Jan 2015

My daughter is 3.5 years old and we just finished radiation. she was DX oct 27th 2014. Please look into cannabis oil for your daughter! you can email me any time tpeaster84@gmail.com. we're in a long fight!

HELPCC
Posts: 1
Joined: Feb 2015

Hi there.  Hope your daughter is doing well.  Has she had her MRI done yet to check her progress after radiation?  Praying its great news!

 

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