Oct 28, 2012 - 3:57 pm
Hello! I had brain surgery 11 days ago....I thank God that I am alive! I am 54 years old. I do not drink, smoke, take drugs....I am a runner and have exercised on a constant basis.
My surgeon told my family that it would take at least 10-14 days for me to talk and think correctly again. The day after surgery I was talking and thinking normally like I had done over 4 years ago! The surgeon was amazed.
My question is: I have been off of dexamethasone for 3 days now...but seem to still experience some of its side effects. My appetite is unbelievable today. Yesterday it was normal, but today I could eat forever! I also get anxious and have some trouble sleeping. While I was on this medicine for the last 2 weeks, I would get extremely agitated. My nurse told me it could take at least 1 week to get rid of the side effects. Is this true?
Also I will be starting radiology this coming week and the doctor said I might have to start taking dexamethasone again....which I do not want to do at all!!!!
I am also taking Keppra which is used for seizures - I have never had a seizure in my life. I would like to get off of this as well. It makes me dizzy, weak and gives me diarrhea every morning.
I am a small woman....5 foot 4 inches...about 110#.
I don't mind taking the radiology and chemo treatment...because I feel it will make me live so much longer...but the steroid and seizure medications are pure HELL...and I really do not want to take them.
I am getting my staples out of my head tomorrow. Really I have come so far since my surgery ... it is unbelievable! I pray that I can live for at least another 10-12 years!
Any advice or suggestions would be greatly appreciated! Thank you for listening.